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Lung tumor while on opdivo
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Lung tumor while on opdivo

› Forums › Cutaneous Melanoma Community › Lung tumor while on opdivo

  • Post
    • December 14, 2018 at 12:12 pm
    bdpp
    Participant

      Hi.  Should I have expected additional findings while on opdivo?

      Hx: Small breast lump found July 2018.  (Burning sensation waking me up at night.)  Aggressively grew in 2 months.  6 cm mass removed with mastectomy. Rochester Mayo Clinic pathologist: “Most suggestive of melanoma.” Unknown origin, Derm commented that I have very few moles.  Started monthly Opdivo 9/28/18.  PET scan 12/11/18 shows 1.8 cm in lung, shadow in other lung. Whew, was not expecting that.  August 2018’s PET only had breast tumor.  Breast tumor testing done, not BRAF, its mutations not commonly seen with melanoma. Chest CT scan done, Thoracic consultation on Monday.

      Thoughts on new tumor while on opdivo and the “most suggestive of melanoma” pathology.  Common?

      Thank you, 

      Barb – a healthy, active 59 yo

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    • Replies
        • December 15, 2018 at 3:54 pm
        WithinMySkin
        Participant
          Hi Barb! So sorry you had to join the ‘club’ but this is a great place to get info. What you describe doesn’t sound very common – melanoma does tends to spread to the lungs, but not often it spreads to the breast. If you aren’t already seeing a specific melanoma oncologist, please consider a second opinion with one. Melanoma doesn’t play by the rules, and only docs who specialize in Melanoma know the best treatments for funny mutations. Hoping others will chime in who have experiences similar to yours.

          Lauren

          • December 15, 2018 at 5:36 pm
          lkb
          Participant

            Barb, my experience has been more typical of melanoma (skin to lymph nodes to brain). I have, however, had progression while on Nivo/Opdivo. I agree with the other poster; find a melanoma specialist. And thank you for reminding us, with your signature, to stay healthy and active! 

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