› Forums › General Melanoma Community › @ MDA – Decision Time!
- This topic has 8 replies, 6 voices, and was last updated 6 years, 11 months ago by
Bubbles.
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- June 13, 2018 at 12:09 pm
Labs, Full CT & Brain MRI on the menu for today. Meet w/ the Team, tomorrow to discuss known (kidney tumor) & unknown. Hoping nothing else turns up, though I've had a 1" hard lump behind my left nipple, since the beginning of May & am still recovering from prostate surgery, early April. That recovery has been surprisingly difficult, even though I'm now 9 weeks out. I'm pretty sure I've developed another UTI (ugh!) but the doctors here were kind enough to order a urinalysis & save me from waitning another 2 weeks, before my appointment w/ the urologist back home.
Per Celeste, I'll definitely push for a neoadjuvant approach, especially if any vagary exists about the exact nature (RCC or Mel?) of the kidney tumor … it's at least worth a try & may stave off surgery, at least for a while. Like most of you, I'm sure, I've had more than enough of that 😉
Anyone in town? If so, it would be great to connect. Please, let me know & take care, everyone!
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- June 13, 2018 at 1:56 pm
Hey Jagstter! If I was in Houston I'd love to connect but alas next treatment is still about 2 weeks out. Who are your docs down there? I have Ross and Amaria, both very solid but I think its hard to go wrong at MDA. Hope everything goes smoothly today and they have a great plan for you. Warrior On!
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- June 13, 2018 at 10:06 pm
Just missed you. My husband and I flew home last night. Would have been nice to meet. Good luck to you! -
- June 18, 2018 at 1:16 pm
Hello Everyone!
My sincere thanks, for the well wishes & encouragement offered … I am very grateful! Last week was a bit of a whirlwind & I'm still awaiting more info from the results. In the meantime, here's a quick update:
New cancer @ right ear helix – biopsied & pending pathology, in a week or so. Tissue frozen (ouch!) @ forehead – tbd. Left breast tumor observed on CT, yet still requires mammogram, ultrasound & potentially, a core biopsy. MDA couldn't schedule before we left, so Dr. Joudeh (a local oncologist) will conduct the tests, Wednesday. Outcome & strategy will be pending results. MDA’s Tumor Board meets, today & will offer their recommendations re: right kidney tumor. MAYO & local urologist both recommend nephrectomy but I am hopeful for a neo-adjuvant approach before diving into radical surgery. Dr. Amaria concurred & I was pleasantly surprised! In fact, I was encouraged by a sense of advocacy I wasn't sure I'd get.
Finally, (1) .8 CM hilar pulmonary nodule was noted but no formal assessment was given of its etiology. I'm not sure if it is a hold-out from last year's pulmonary infection or something new. Even Dr. Amaria lamented the variability & vagary sometimes accompanying the radiologist's assessments. You all know the drill; standard protocol is watch & rescan for change or resolution … sigh. Unfortunately I still have no results from the Brain MRI, yet. My portal app (MyChart) only yesterday showed the results from bloodwoork, so they are a bit slow to update. Hopefully, no news is good news, LOL 😉
A belated Happy Father's Day to my fellow Dad's & keep up the good fight, Everyone!
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