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Mel back again
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Mel back again

› Forums › General Melanoma Community › Mel back again

  • Post
    • December 31, 2013 at 5:30 pm
    Pink
    Participant

      2006 diagnoses with Mel on leg, wide excision. Now I have nodules in my leg and went for isolated infusion in my leg, the nodules in leg responded well but foll up PET showers mets to shoulder and back and brain mets. Going back to Moffit next week for consultation for stereotactic radiation and to get started on Ipi. How are the results with the radiation I have 3small ones and worried about getting rid of them.

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    • Replies
        • January 1, 2014 at 11:45 pm
        Momrn5
        Participant

          No personal experience but I have read that there have been some good results with brain radiation and ipi.  Especially  if it is timed right.  Best wishes.

          • January 1, 2014 at 11:45 pm
          Momrn5
          Participant

            No personal experience but I have read that there have been some good results with brain radiation and ipi.  Especially  if it is timed right.  Best wishes.

            • January 1, 2014 at 11:45 pm
            Momrn5
            Participant

              No personal experience but I have read that there have been some good results with brain radiation and ipi.  Especially  if it is timed right.  Best wishes.

              • January 2, 2014 at 12:54 am
              POW
              Participant

                Many people here have had SRS on their brain mets with very good success. My brother had SRS at Moffitt and it went very well. He made 2 visits– one to have the plastic mask custom-made and the second to have an MRI and then the SRS. Although there was a lot of waiting around involved, the procedure itself only took 20 minutes and he went home that same day. There were no side effects except for fatigue for a couple of days. 

                There are some anecdotal reports that ipi (trade name Yeroy) does work in the brain and that radiation-killed melanoma cells can stimulate an immune response better than live melanoma cells. The treatment plan you describe sounds quite reasonable. Best of luck to you!

                • January 2, 2014 at 12:54 am
                POW
                Participant

                  Many people here have had SRS on their brain mets with very good success. My brother had SRS at Moffitt and it went very well. He made 2 visits– one to have the plastic mask custom-made and the second to have an MRI and then the SRS. Although there was a lot of waiting around involved, the procedure itself only took 20 minutes and he went home that same day. There were no side effects except for fatigue for a couple of days. 

                  There are some anecdotal reports that ipi (trade name Yeroy) does work in the brain and that radiation-killed melanoma cells can stimulate an immune response better than live melanoma cells. The treatment plan you describe sounds quite reasonable. Best of luck to you!

                  • January 2, 2014 at 12:54 am
                  POW
                  Participant

                    Many people here have had SRS on their brain mets with very good success. My brother had SRS at Moffitt and it went very well. He made 2 visits– one to have the plastic mask custom-made and the second to have an MRI and then the SRS. Although there was a lot of waiting around involved, the procedure itself only took 20 minutes and he went home that same day. There were no side effects except for fatigue for a couple of days. 

                    There are some anecdotal reports that ipi (trade name Yeroy) does work in the brain and that radiation-killed melanoma cells can stimulate an immune response better than live melanoma cells. The treatment plan you describe sounds quite reasonable. Best of luck to you!

                    • January 2, 2014 at 7:12 am
                    JerryfromFauq
                    Participant

                      A valid approach based on previous observations.  Need more participants too get a good statistical basis.  We are very interested in your results and hope they are absolutely GREAT!

                      • January 2, 2014 at 7:12 am
                      JerryfromFauq
                      Participant

                        A valid approach based on previous observations.  Need more participants too get a good statistical basis.  We are very interested in your results and hope they are absolutely GREAT!

                        • January 2, 2014 at 7:12 am
                        JerryfromFauq
                        Participant

                          A valid approach based on previous observations.  Need more participants too get a good statistical basis.  We are very interested in your results and hope they are absolutely GREAT!

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