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Melanom IV

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    • March 31, 2019 at 11:04 am
    Sonja1972
    Participant

      Diagnosed melanoma, liver, bone and soft tissue metastases. I come from Slovenia, I am BRAF -negative. I'm being treated with Keytrudo up to now 4.x for 3rd week. I have unbearable pain in muscles and bones, is this normal?I can not walk alone, it's been 4 days. After the third dose of Keytrude, I was told that the markers have decreased and that this is a good result, what do you think

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        • March 31, 2019 at 8:12 pm
        Tracyyy
        Participant
          Hello Sonja, I am from Bulgaria. I know that immunotherapy might take some time to work, but decreased markers is good news. Scans will show better, are you having one? Keytruda can cause pain in the muscles and joint inflamation. Did your doctor prescribe you something for the pain? Good luck!!
            • April 1, 2019 at 5:45 am
            Sonja1972
            Participant

              Thanks for the information, y hope really that Keytruda works for melanoma, only to make the pain disappear, only my legs are terribly painful. The oncologist prescribed the painkiller, but it does not help much.I have a scan of 9.4. before that, the 5th Infusion Keytrude. thank you all

              • April 1, 2019 at 5:45 am
              Sonja1972
              Participant

                Thanks for the information, y hope really that Keytruda works for melanoma, only to make the pain disappear, only my legs are terribly painful. The oncologist prescribed the painkiller, but it does not help much.I have a scan of 9.4. before that, the 5th Infusion Keytrude. thank you all

              • March 31, 2019 at 9:30 pm
              Edwin
              Participant

                Bone cancer can be very painful.   Three years ago walking was very painful due to melanoma in my bones.  The 4 or 5 infusions of Keytruda that I received did not help.  Switching to Yervoy and Opdivo immunotherapy did help me.  My bone cancer is gone.

                • April 1, 2019 at 5:10 pm
                mandyjill
                Participant

                  Sonja,

                  If I am reading this right, you are saying you are having bone and muscle pain from the Keytruda.  I too experienced that when I was on an Opdivo/Yervoy combo.  My oncologist put me on a low dose prednisone that helped tremendously.   You might want to check with your doctor and see if this is something that can be prescribed.  Best wishes.

                    • April 1, 2019 at 7:02 pm
                    Sonja1972
                    Participant

                      Thank you very much, because I really do not know what else or what a disease has advanced or Keytrude. thank you all

                      • April 1, 2019 at 7:11 pm
                      Sonja1972
                      Participant

                        4.4. I have a 5th dose of Keytrude, 9.4. CT scanning. I pray and ask God to let Keytruda work for all of us who need treatment.

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