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Melanoma In Situ — Scalp

Forums General Melanoma Community Melanoma In Situ — Scalp

  • Post
    Kacey79
    Participant

      I had a biopsy done last week on a mole on my front scalp, right behind my hairline.  This is my 3rd melanoma diagnosis within the past year.  One was on my left upper arm (.30 breslow depth), the second was on my right forearm (in situ), and the third is on my scalp.  I feel sick to my stomach right now but I'm trying so hard not to worry.

      I was actually at Moffitt in Tampa two weeks prior to have total body photography of all my spots.  I'm anxious as to what else on my body is melanoma.  

      What should I expect with the WLE on my scalp?  I just know it's tighter skin up in this area.  I appreciate your advice and/or encouragement.

    Viewing 2 reply threads
    • Replies
        _Paul_
        Participant

          Make sure you have a plastic surgeon do the WLE. My was done by a general surgeon, who later admitted (to the plastic surgeon that mopped up his work) that he was out of his depth. I was sent home with an open wound under a tegaderm. The tegaderm came off within a couple of days because of all the seepage and it was not a pretty sight.

          It would have been much simpler if I had the pastic surgeon from the start.

          _Paul_
          Participant

            Make sure you have a plastic surgeon do the WLE. My was done by a general surgeon, who later admitted (to the plastic surgeon that mopped up his work) that he was out of his depth. I was sent home with an open wound under a tegaderm. The tegaderm came off within a couple of days because of all the seepage and it was not a pretty sight.

            It would have been much simpler if I had the pastic surgeon from the start.

            _Paul_
            Participant

              Make sure you have a plastic surgeon do the WLE. My was done by a general surgeon, who later admitted (to the plastic surgeon that mopped up his work) that he was out of his depth. I was sent home with an open wound under a tegaderm. The tegaderm came off within a couple of days because of all the seepage and it was not a pretty sight.

              It would have been much simpler if I had the pastic surgeon from the start.

                Kacey79
                Participant

                  Thank you for the response, Paul.  I will definitely be letting a plastic surgeon do the WLE.   Did you have any further treatment or was the WLE sufficient? 

                  Kacey79
                  Participant

                    Thank you for the response, Paul.  I will definitely be letting a plastic surgeon do the WLE.   Did you have any further treatment or was the WLE sufficient? 

                    Kacey79
                    Participant

                      Thank you for the response, Paul.  I will definitely be letting a plastic surgeon do the WLE.   Did you have any further treatment or was the WLE sufficient? 

                      _Paul_
                      Participant

                        Unfortunately, I had two recurrences following the initial WLE and eventually progressed to stage IV. But everyone's story is different, and I had a much more aggressive primary than this one you are having excised. Mine was a nodular 1.3mm mel.

                        It doesn't sound like any one of your melanomas is that bad individually but I totally get your concern given that this is the third one. Do you have a melanoma specialist as your oncologist?

                        Kacey79
                        Participant

                          I'm sorry to hear that, Paul.  I saw Dr. Zagar @ Moffitt Tampa for my first primary. He did my WLE.  My previous 2 were with my dermatologist.  Melanoma is so unpredictable and some are more aggressive than others. 

                          I guess, I'll get my WLE and go from there.  I read conficting reports of getting scans for early melanomas. I'm trying to stay in tune with my body.

                           

                          Kacey79
                          Participant

                            I'm sorry to hear that, Paul.  I saw Dr. Zagar @ Moffitt Tampa for my first primary. He did my WLE.  My previous 2 were with my dermatologist.  Melanoma is so unpredictable and some are more aggressive than others. 

                            I guess, I'll get my WLE and go from there.  I read conficting reports of getting scans for early melanomas. I'm trying to stay in tune with my body.

                             

                            Janner
                            Participant

                              Scans are RARELY done for early melanomas – especially for 3 as small as yours.  Scans only catch tumors of a certain size, and despite having 3 melanomas, your risk is actually not higher to have a recurrence.  In a study out of Australia, those with multiple primaries actually had better survival rates than those with 1.  Scans haven't even been proven to improve survival which is why some institutions don't even do them for stage III/IV unless there are symptoms.  Insurance is extremely unlikely to pay for scans either unless again, there are symptoms.

                              Janner

                              Stage Ib since 1992, 3 MM primaries

                              Janner
                              Participant

                                Scans are RARELY done for early melanomas – especially for 3 as small as yours.  Scans only catch tumors of a certain size, and despite having 3 melanomas, your risk is actually not higher to have a recurrence.  In a study out of Australia, those with multiple primaries actually had better survival rates than those with 1.  Scans haven't even been proven to improve survival which is why some institutions don't even do them for stage III/IV unless there are symptoms.  Insurance is extremely unlikely to pay for scans either unless again, there are symptoms.

                                Janner

                                Stage Ib since 1992, 3 MM primaries

                                Janner
                                Participant

                                  Scans are RARELY done for early melanomas – especially for 3 as small as yours.  Scans only catch tumors of a certain size, and despite having 3 melanomas, your risk is actually not higher to have a recurrence.  In a study out of Australia, those with multiple primaries actually had better survival rates than those with 1.  Scans haven't even been proven to improve survival which is why some institutions don't even do them for stage III/IV unless there are symptoms.  Insurance is extremely unlikely to pay for scans either unless again, there are symptoms.

                                  Janner

                                  Stage Ib since 1992, 3 MM primaries

                                  Kacey79
                                  Participant

                                    I'm sorry to hear that, Paul.  I saw Dr. Zagar @ Moffitt Tampa for my first primary. He did my WLE.  My previous 2 were with my dermatologist.  Melanoma is so unpredictable and some are more aggressive than others. 

                                    I guess, I'll get my WLE and go from there.  I read conficting reports of getting scans for early melanomas. I'm trying to stay in tune with my body.

                                     

                                    _Paul_
                                    Participant

                                      Unfortunately, I had two recurrences following the initial WLE and eventually progressed to stage IV. But everyone's story is different, and I had a much more aggressive primary than this one you are having excised. Mine was a nodular 1.3mm mel.

                                      It doesn't sound like any one of your melanomas is that bad individually but I totally get your concern given that this is the third one. Do you have a melanoma specialist as your oncologist?

                                      _Paul_
                                      Participant

                                        Unfortunately, I had two recurrences following the initial WLE and eventually progressed to stage IV. But everyone's story is different, and I had a much more aggressive primary than this one you are having excised. Mine was a nodular 1.3mm mel.

                                        It doesn't sound like any one of your melanomas is that bad individually but I totally get your concern given that this is the third one. Do you have a melanoma specialist as your oncologist?

                                        Sheepsandcows
                                        Participant

                                          My son had a similar procedure. Because they scoop as much as they can you want it done by a well experienced  headf and neck surgeon with the willingnesss to take his time and do it right. Best wishes!

                                          Sheepsandcows
                                          Participant

                                            My son had a similar procedure. Because they scoop as much as they can you want it done by a well experienced  headf and neck surgeon with the willingnesss to take his time and do it right. Best wishes!

                                            Sheepsandcows
                                            Participant

                                              My son had a similar procedure. Because they scoop as much as they can you want it done by a well experienced  headf and neck surgeon with the willingnesss to take his time and do it right. Best wishes!

                                              ldub
                                              Participant

                                                There is a lady on Facebook who wrote about her scalp WLE and even posted her recovery photos.  If I can find that I will post the link.  It has "pretty picture" in the FB page title though I can't remember the whole thing.  That might get you started.  She was in situ as well.

                                                ldub
                                                Participant

                                                  There is a lady on Facebook who wrote about her scalp WLE and even posted her recovery photos.  If I can find that I will post the link.  It has "pretty picture" in the FB page title though I can't remember the whole thing.  That might get you started.  She was in situ as well.

                                                  ldub
                                                  Participant

                                                    There is a lady on Facebook who wrote about her scalp WLE and even posted her recovery photos.  If I can find that I will post the link.  It has "pretty picture" in the FB page title though I can't remember the whole thing.  That might get you started.  She was in situ as well.

                                                    Kacey79
                                                    Participant

                                                      That would be wonderful if you could find it.  Thanks for the reply.

                                                      I have a consultation Thursday with the plastic surgeon.

                                                      Kacey79
                                                      Participant

                                                        That would be wonderful if you could find it.  Thanks for the reply.

                                                        I have a consultation Thursday with the plastic surgeon.

                                                        Kacey79
                                                        Participant

                                                          That would be wonderful if you could find it.  Thanks for the reply.

                                                          I have a consultation Thursday with the plastic surgeon.

                                                          ldub
                                                          Participant

                                                            Good luck – I will keep you posted on my search.

                                                            ldub
                                                            Participant

                                                              Good luck – I will keep you posted on my search.

                                                              ldub
                                                              Participant

                                                                Good luck – I will keep you posted on my search.

                                                                ldub
                                                                Participant

                                                                  https://www.facebook.com/MyMelanomaIfIPhotographYouWillYouGoAway

                                                                   

                                                                  Well, I had the name totally wrong but here is the link! 

                                                                  ldub
                                                                  Participant

                                                                    https://www.facebook.com/MyMelanomaIfIPhotographYouWillYouGoAway

                                                                     

                                                                    Well, I had the name totally wrong but here is the link! 

                                                                    Kacey79
                                                                    Participant

                                                                      Thanks so much!

                                                                      Kacey79
                                                                      Participant

                                                                        Thanks so much!

                                                                        Kacey79
                                                                        Participant

                                                                          Thanks so much!

                                                                          ldub
                                                                          Participant

                                                                            https://www.facebook.com/MyMelanomaIfIPhotographYouWillYouGoAway

                                                                             

                                                                            Well, I had the name totally wrong but here is the link! 

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