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Melonoma diagnosis

Forums General Melanoma Community Melonoma diagnosis

  • Post
    Samroberts4
    Participant

      Hello all,

      I was diagnosed with melonoma today, which the doctor termed "a particularly nasty one." I am going to the plastic surgeon on Monday (10/17/16) to see if he can remove the melonoma; they are also going to cut into the surrounding areas to see if it has spread.  The melonoma is on the side of my right bicep, and my primary-care physician looked at it several months ago but didn't think it was a grave concern. 

      Today, my skin doctor said that she would pray for me, which freaked me out even more than hearing the diagnosis.  I am glad to join this support forum and will give you an update on further develoments, which I will post on Monday.  I am 48 years old and in good health, so I hope this bodes well for me in my fight against this awful form of cancer. 

    Viewing 11 reply threads
    • Replies
        stars
        Participant

          Hi Sam

          I'm sorry you have received this diagnosis, and just as sorry you have such insensitive care providers! They should be giving you reassurance and facts, not fear. You will not find that silliness in this forum, so you have come to the right place. If you can post more detail from your pathology report, you will get some great advice here from others who have walked the path before you. Being diagnosed with melanoma can mean anything from minor surgery and cure, to metastatic disease and immunotherapy. With any luck, you are at the minor surgery end of this spectrum. Look forward to your update.

           

          stars
          Participant

            Hi Sam

            I'm sorry you have received this diagnosis, and just as sorry you have such insensitive care providers! They should be giving you reassurance and facts, not fear. You will not find that silliness in this forum, so you have come to the right place. If you can post more detail from your pathology report, you will get some great advice here from others who have walked the path before you. Being diagnosed with melanoma can mean anything from minor surgery and cure, to metastatic disease and immunotherapy. With any luck, you are at the minor surgery end of this spectrum. Look forward to your update.

             

            stars
            Participant

              Hi Sam

              I'm sorry you have received this diagnosis, and just as sorry you have such insensitive care providers! They should be giving you reassurance and facts, not fear. You will not find that silliness in this forum, so you have come to the right place. If you can post more detail from your pathology report, you will get some great advice here from others who have walked the path before you. Being diagnosed with melanoma can mean anything from minor surgery and cure, to metastatic disease and immunotherapy. With any luck, you are at the minor surgery end of this spectrum. Look forward to your update.

               

              youngann
              Participant

                Hello Sam.

                So sorry that you have joined our club but, now that you are here… welcome. My advice is to reconsider using a plastic surgeon and, instead, go to see a melanoma specialist. The plastic surgeon is more concerned about leaving a pretty incision whereas a melanoma surgeon will know the best way to completely remove the melanoma.

                Good luck,

                Ann

                 

                  Surf Rower
                  Participant

                    Agree with Ann. I was diagnosed 1A two weeks ago and the derm referred me to a plastic surgeon to do the wide excision. He did a beautiful job and the scar is pretty but he didn't get all the melanoma! Now I have to have it done wider, and extra wide because of the first scar. I switched to an oncological surgeon at a cancer center. Kind of bummed my arm will have a shark bite out of it, but I'm sure this guy will get it all.

                    Surf Rower
                    Participant

                      Agree with Ann. I was diagnosed 1A two weeks ago and the derm referred me to a plastic surgeon to do the wide excision. He did a beautiful job and the scar is pretty but he didn't get all the melanoma! Now I have to have it done wider, and extra wide because of the first scar. I switched to an oncological surgeon at a cancer center. Kind of bummed my arm will have a shark bite out of it, but I'm sure this guy will get it all.

                      Surf Rower
                      Participant

                        Agree with Ann. I was diagnosed 1A two weeks ago and the derm referred me to a plastic surgeon to do the wide excision. He did a beautiful job and the scar is pretty but he didn't get all the melanoma! Now I have to have it done wider, and extra wide because of the first scar. I switched to an oncological surgeon at a cancer center. Kind of bummed my arm will have a shark bite out of it, but I'm sure this guy will get it all.

                      youngann
                      Participant

                        Hello Sam.

                        So sorry that you have joined our club but, now that you are here… welcome. My advice is to reconsider using a plastic surgeon and, instead, go to see a melanoma specialist. The plastic surgeon is more concerned about leaving a pretty incision whereas a melanoma surgeon will know the best way to completely remove the melanoma.

                        Good luck,

                        Ann

                         

                        youngann
                        Participant

                          Hello Sam.

                          So sorry that you have joined our club but, now that you are here… welcome. My advice is to reconsider using a plastic surgeon and, instead, go to see a melanoma specialist. The plastic surgeon is more concerned about leaving a pretty incision whereas a melanoma surgeon will know the best way to completely remove the melanoma.

                          Good luck,

                          Ann

                           

                          casagrayson
                          Participant

                            Sam,

                            I'm assuming you had a biopsy of this lesion?  You say your dermatologist said it was a "particularly nasty one" but you don't mention words I would expect to hear from someone who had been provided a pathology report and educated about the results (wide local excision, sentinel node biopsy, Breslow depth, etc).  I'm concerned that your dermatologist doesn't have much experience with melanoma — and also angry that she gave you so little information but left you with such a startling comment!  If you DO have a pathology report, and more data about the lesion, please share.  If you *don't* — then I'd suggest making an appointment with a dermatologist who specializes in melanoma and get a second opinion before scheduling any surgery.  Depending on the depth of the lesion, there are steps that need to be taken in a certain order to fully stage the melanoma and set the best course for treatment.

                             

                            casagrayson
                            Participant

                              Sam,

                              I'm assuming you had a biopsy of this lesion?  You say your dermatologist said it was a "particularly nasty one" but you don't mention words I would expect to hear from someone who had been provided a pathology report and educated about the results (wide local excision, sentinel node biopsy, Breslow depth, etc).  I'm concerned that your dermatologist doesn't have much experience with melanoma — and also angry that she gave you so little information but left you with such a startling comment!  If you DO have a pathology report, and more data about the lesion, please share.  If you *don't* — then I'd suggest making an appointment with a dermatologist who specializes in melanoma and get a second opinion before scheduling any surgery.  Depending on the depth of the lesion, there are steps that need to be taken in a certain order to fully stage the melanoma and set the best course for treatment.

                               

                              casagrayson
                              Participant

                                Sam,

                                I'm assuming you had a biopsy of this lesion?  You say your dermatologist said it was a "particularly nasty one" but you don't mention words I would expect to hear from someone who had been provided a pathology report and educated about the results (wide local excision, sentinel node biopsy, Breslow depth, etc).  I'm concerned that your dermatologist doesn't have much experience with melanoma — and also angry that she gave you so little information but left you with such a startling comment!  If you DO have a pathology report, and more data about the lesion, please share.  If you *don't* — then I'd suggest making an appointment with a dermatologist who specializes in melanoma and get a second opinion before scheduling any surgery.  Depending on the depth of the lesion, there are steps that need to be taken in a certain order to fully stage the melanoma and set the best course for treatment.

                                 

                                Samroberts4
                                Participant

                                  First of all, thanks so much for all of your mindful comments and support.  To update you on my condition, I have a 6 mm deep melanoma and am in stage IIb.  The mitotic rate was high, although I don't remember the exact figure because the doctor was hitting me with a barriage of negative information at a faster rate than I was able to absorb it. The margins were also wide.  Yesterday, the plastic surgeon cut out a large chunk from the side of my right bicep, which required him to graft a significant amount of skin from my right quadricep to patch the wound.  He also did a sentinel-node biopsy to see if the melonoma has reached the lymph nodes in my armpit.  I am on pins and needles waiting for the result, which will come tomorrow or Friday.  However, three things cause me to remain hopeful: a manual check by the doctor revealed no lumps or swelling under the armpit; the alkaline phosphatese test indcated normal levels; and the LDH were normal, meaning that cancer has proabably not spread to other organs.

                                  I elected to go with a plastic surgeon because he worked primarily on melonoma for ten years when he was in New York and Philly.  When he was in upstate New York, he was the only doctor who worked on melanoma cases within a 60-mile radius, which comprised 60% of his cases.  I also live in Montana, where we aren't exactly close to melonoma specialists, and the doctor felt at the rate the tumor was growing, I needed to act fast.  I don't know if it's because melonoma comprises such a small amount of cancers, but when my doctor took a proactive approach to seek out oncologists who could treat melonoma in the event it is found in the lymph nodes, nobody in Missoula, MT. was comfortable treating it. My doctor said he contacted his friend from med school who lives in Kalispel, and he has quite a bit of experience in lymph-node dissection, which is a bridge I hope I don't have to cross.

                                  I'll let you all know how things turn out in a couple of days. In the meantime, I will be taking percocet, tramadol, heaps of antibiotics, and sponge baths.  On the bright side, I'm glad that my arm is so heavily bandanged that I don't have to see the giant hole that I know is there. If you all have any thoughts on where I'm at, or what my next step should be in the event that the lymph nodes are involved, I look forward to reading them.

                                    Samroberts4
                                    Participant

                                      P.S. the melanoma is not ulcerated, which is another good sign.

                                      Samroberts4
                                      Participant

                                        P.S. the melanoma is not ulcerated, which is another good sign.

                                        Samroberts4
                                        Participant

                                          P.S. the melanoma is not ulcerated, which is another good sign.

                                        Samroberts4
                                        Participant

                                          First of all, thanks so much for all of your mindful comments and support.  To update you on my condition, I have a 6 mm deep melanoma and am in stage IIb.  The mitotic rate was high, although I don't remember the exact figure because the doctor was hitting me with a barriage of negative information at a faster rate than I was able to absorb it. The margins were also wide.  Yesterday, the plastic surgeon cut out a large chunk from the side of my right bicep, which required him to graft a significant amount of skin from my right quadricep to patch the wound.  He also did a sentinel-node biopsy to see if the melonoma has reached the lymph nodes in my armpit.  I am on pins and needles waiting for the result, which will come tomorrow or Friday.  However, three things cause me to remain hopeful: a manual check by the doctor revealed no lumps or swelling under the armpit; the alkaline phosphatese test indcated normal levels; and the LDH were normal, meaning that cancer has proabably not spread to other organs.

                                          I elected to go with a plastic surgeon because he worked primarily on melonoma for ten years when he was in New York and Philly.  When he was in upstate New York, he was the only doctor who worked on melanoma cases within a 60-mile radius, which comprised 60% of his cases.  I also live in Montana, where we aren't exactly close to melonoma specialists, and the doctor felt at the rate the tumor was growing, I needed to act fast.  I don't know if it's because melonoma comprises such a small amount of cancers, but when my doctor took a proactive approach to seek out oncologists who could treat melonoma in the event it is found in the lymph nodes, nobody in Missoula, MT. was comfortable treating it. My doctor said he contacted his friend from med school who lives in Kalispel, and he has quite a bit of experience in lymph-node dissection, which is a bridge I hope I don't have to cross.

                                          I'll let you all know how things turn out in a couple of days. In the meantime, I will be taking percocet, tramadol, heaps of antibiotics, and sponge baths.  On the bright side, I'm glad that my arm is so heavily bandanged that I don't have to see the giant hole that I know is there. If you all have any thoughts on where I'm at, or what my next step should be in the event that the lymph nodes are involved, I look forward to reading them.

                                          Samroberts4
                                          Participant

                                            First of all, thanks so much for all of your mindful comments and support.  To update you on my condition, I have a 6 mm deep melanoma and am in stage IIb.  The mitotic rate was high, although I don't remember the exact figure because the doctor was hitting me with a barriage of negative information at a faster rate than I was able to absorb it. The margins were also wide.  Yesterday, the plastic surgeon cut out a large chunk from the side of my right bicep, which required him to graft a significant amount of skin from my right quadricep to patch the wound.  He also did a sentinel-node biopsy to see if the melonoma has reached the lymph nodes in my armpit.  I am on pins and needles waiting for the result, which will come tomorrow or Friday.  However, three things cause me to remain hopeful: a manual check by the doctor revealed no lumps or swelling under the armpit; the alkaline phosphatese test indcated normal levels; and the LDH were normal, meaning that cancer has proabably not spread to other organs.

                                            I elected to go with a plastic surgeon because he worked primarily on melonoma for ten years when he was in New York and Philly.  When he was in upstate New York, he was the only doctor who worked on melanoma cases within a 60-mile radius, which comprised 60% of his cases.  I also live in Montana, where we aren't exactly close to melonoma specialists, and the doctor felt at the rate the tumor was growing, I needed to act fast.  I don't know if it's because melonoma comprises such a small amount of cancers, but when my doctor took a proactive approach to seek out oncologists who could treat melonoma in the event it is found in the lymph nodes, nobody in Missoula, MT. was comfortable treating it. My doctor said he contacted his friend from med school who lives in Kalispel, and he has quite a bit of experience in lymph-node dissection, which is a bridge I hope I don't have to cross.

                                            I'll let you all know how things turn out in a couple of days. In the meantime, I will be taking percocet, tramadol, heaps of antibiotics, and sponge baths.  On the bright side, I'm glad that my arm is so heavily bandanged that I don't have to see the giant hole that I know is there. If you all have any thoughts on where I'm at, or what my next step should be in the event that the lymph nodes are involved, I look forward to reading them.

                                        Viewing 11 reply threads
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