MRF-Logo2019-Horizontal-RGB
metastatic melanoma
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

metastatic melanoma

› Forums › General Melanoma Community › metastatic melanoma

  • Post
    • September 6, 2014 at 8:59 pm
    grandtulba
    Participant

      Hi Everybody, 

      Im ahmed from Cairo – Egypt, Two weeks ago we discovered that my father is suffering from metastatic melanoma.  he is 67 Years old 

      What i read on the interenet is not helpfull and it's very disapointing My father didnt start the treatment yet. 
      still  waiting for Bt scan. But the doctors here told him that they will give him pills for 6 months and if the  disease didnt respond to the treatming they will stop it. 

      Please advice me what to do ? and where can i find melanoma specialist to bring my father to him. 

       

      I highly appreciate your support 

      Thanks

      Ahmed

       

    Viewing 5 reply threads
    • Replies
        • September 6, 2014 at 11:51 pm
        arthurjedi007
        Participant

          In Egypt I'm not sure. The folks on melanoma international might know. I believe there is a lady by the name of Catherine Poole that helps folks a LOT. Here is that link: http://forum.melanomainternational.org/mif/viewforum.php?f=54&sid=0a3f138f75fe749471552efdc3902d81

          If in the USA there are many melanoma specialists. If you could only go to one I would recomment Dr. Weber at Moffit in Tampa Florida.

          As far as treatment if he is BRAF positive the USA has approved the Tafinlar/Mekenist combo. I have no idea about Egypt. The older BRAF is zelboraf. From what I've read the combo works better with less side affects. But everyone is different.

          Depending on his tumor burden if he has a lighter tumor load and the tumors are not in critical locations there is Yervoy and Merck's PD1 in the USA. Also Bristol Meyer's Nivo PD1 is in Japan. These are immunotherapies.

          Then there are clinical trials. Dr.  Weber has some good trials especially for treatment niave patients.

          Also try to keep him strong with good fresh foods if you can. Also if he can walk some that is good for the digestion.

          Dunno if that helps but I hope so. Good luck to you and your father.

          Artie

          • September 6, 2014 at 11:51 pm
          arthurjedi007
          Participant

            In Egypt I'm not sure. The folks on melanoma international might know. I believe there is a lady by the name of Catherine Poole that helps folks a LOT. Here is that link: http://forum.melanomainternational.org/mif/viewforum.php?f=54&sid=0a3f138f75fe749471552efdc3902d81

            If in the USA there are many melanoma specialists. If you could only go to one I would recomment Dr. Weber at Moffit in Tampa Florida.

            As far as treatment if he is BRAF positive the USA has approved the Tafinlar/Mekenist combo. I have no idea about Egypt. The older BRAF is zelboraf. From what I've read the combo works better with less side affects. But everyone is different.

            Depending on his tumor burden if he has a lighter tumor load and the tumors are not in critical locations there is Yervoy and Merck's PD1 in the USA. Also Bristol Meyer's Nivo PD1 is in Japan. These are immunotherapies.

            Then there are clinical trials. Dr.  Weber has some good trials especially for treatment niave patients.

            Also try to keep him strong with good fresh foods if you can. Also if he can walk some that is good for the digestion.

            Dunno if that helps but I hope so. Good luck to you and your father.

            Artie

            • September 6, 2014 at 11:51 pm
            arthurjedi007
            Participant

              In Egypt I'm not sure. The folks on melanoma international might know. I believe there is a lady by the name of Catherine Poole that helps folks a LOT. Here is that link: http://forum.melanomainternational.org/mif/viewforum.php?f=54&sid=0a3f138f75fe749471552efdc3902d81

              If in the USA there are many melanoma specialists. If you could only go to one I would recomment Dr. Weber at Moffit in Tampa Florida.

              As far as treatment if he is BRAF positive the USA has approved the Tafinlar/Mekenist combo. I have no idea about Egypt. The older BRAF is zelboraf. From what I've read the combo works better with less side affects. But everyone is different.

              Depending on his tumor burden if he has a lighter tumor load and the tumors are not in critical locations there is Yervoy and Merck's PD1 in the USA. Also Bristol Meyer's Nivo PD1 is in Japan. These are immunotherapies.

              Then there are clinical trials. Dr.  Weber has some good trials especially for treatment niave patients.

              Also try to keep him strong with good fresh foods if you can. Also if he can walk some that is good for the digestion.

              Dunno if that helps but I hope so. Good luck to you and your father.

              Artie

                • September 9, 2014 at 2:43 pm
                grandtulba
                Participant

                  Thanks Artie for your fast reply,  What about BRAF combination versus ipilimumab treatment ? we still waiting for the test result. 

                   

                  My father now is sleeping too much and he is not eating, if you have some links for best food for Melanoma Patient and what  best activities he can practice? what sport ..etc 

                  I appreciate your support again 

                   

                  • September 9, 2014 at 2:43 pm
                  grandtulba
                  Participant

                    Thanks Artie for your fast reply,  What about BRAF combination versus ipilimumab treatment ? we still waiting for the test result. 

                     

                    My father now is sleeping too much and he is not eating, if you have some links for best food for Melanoma Patient and what  best activities he can practice? what sport ..etc 

                    I appreciate your support again 

                     

                    • September 9, 2014 at 2:43 pm
                    grandtulba
                    Participant

                      Thanks Artie for your fast reply,  What about BRAF combination versus ipilimumab treatment ? we still waiting for the test result. 

                       

                      My father now is sleeping too much and he is not eating, if you have some links for best food for Melanoma Patient and what  best activities he can practice? what sport ..etc 

                      I appreciate your support again 

                       

                    • September 7, 2014 at 10:56 am
                    JerryfromFauq
                    Participant

                      As toi what meds aare available for him, it depends on what his Melanoma has for it's DNA mutations.  HAs he had a DNA mutation test conducted?  Ther three most effect immunotherapies are IL-2, Yervoy and PD-1.   These three treatments have a chance of having a positive effect reqardless of which DNA mutation one has.  Targeted chem therapy only has a chance if  one has the partiucular DNA mutation they are taargeted at.

                      • September 7, 2014 at 10:56 am
                      JerryfromFauq
                      Participant

                        As toi what meds aare available for him, it depends on what his Melanoma has for it's DNA mutations.  HAs he had a DNA mutation test conducted?  Ther three most effect immunotherapies are IL-2, Yervoy and PD-1.   These three treatments have a chance of having a positive effect reqardless of which DNA mutation one has.  Targeted chem therapy only has a chance if  one has the partiucular DNA mutation they are taargeted at.

                        • September 7, 2014 at 10:56 am
                        JerryfromFauq
                        Participant

                          As toi what meds aare available for him, it depends on what his Melanoma has for it's DNA mutations.  HAs he had a DNA mutation test conducted?  Ther three most effect immunotherapies are IL-2, Yervoy and PD-1.   These three treatments have a chance of having a positive effect reqardless of which DNA mutation one has.  Targeted chem therapy only has a chance if  one has the partiucular DNA mutation they are taargeted at.

                            • September 10, 2014 at 9:29 pm
                            grandtulba
                            Participant

                              Hi,

                              Thanks for your reply, Today we got the Braf result, it's non braf , 

                              im very disapointed also the doctor prescribed temodal 100 Mg as a treatment 3 pills every day for 5 days.

                              Please advice

                              Thanks

                              Ahmed

                              • September 10, 2014 at 9:29 pm
                              grandtulba
                              Participant

                                Hi,

                                Thanks for your reply, Today we got the Braf result, it's non braf , 

                                im very disapointed also the doctor prescribed temodal 100 Mg as a treatment 3 pills every day for 5 days.

                                Please advice

                                Thanks

                                Ahmed

                                • September 10, 2014 at 9:29 pm
                                grandtulba
                                Participant

                                  Hi,

                                  Thanks for your reply, Today we got the Braf result, it's non braf , 

                                  im very disapointed also the doctor prescribed temodal 100 Mg as a treatment 3 pills every day for 5 days.

                                  Please advice

                                  Thanks

                                  Ahmed

                            Viewing 5 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics