Mets in lower spinal cord
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Mets in lower spinal cord

› Forums › General Melanoma Community › Mets in lower spinal cord

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    • June 21, 2019 at 11:09 am
    AndyZ
    Participant
      My father has had mets in lungs and brain (in both sites very small, less than 2mm size). Dealt with mekinist and tafinlar combo and cyber knife. After some NED period he was unable to walk -without any pain. After some tests (Ct scans, MRi, bone morrow biopsy, ultrasound, etc) the doctors believe that a few cancerous cells are present in the fluid in the lower spinal cord. (not yet a definite answer-waiting for the biopsy report). Have you had any similar experience? any advice on what to expect? Is there any hope
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        • June 21, 2019 at 1:32 pm
        Bubbles
        Participant
          I am sorry for what you and your dad are going through, Andy. If there really are melanoma cells in the spinal fluid – that is considered “leptomeningeal disease”. And, that is a tough place to be. However, it is a condition NOT without HOPE! Here are several posts of articles on the topic: https://chaoticallypreciselifeloveandmelanoma.blogspot.com/search?q=leptomeningeal
          Meds directly injected into the spinal fluid (referred to as “intrathecal” or “IT” administration) has had some success. I know that it is being done at MD Anderson and probably other major melanoma centers as well. Not sure if your father continued his BRAF/MEK combo after his NED status….but some folks with LMD have had success with resuming that combo. Hope this helps. I wish you both my best. Celeste
            • June 21, 2019 at 10:54 pm
            AndyZ
            Participant
              Thank you Celeste! Yet again your help is invaluable.
              God bless you!
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