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MPIP Chat Tues. thru Thurs. evening 7 PM EST til……????

Forums Caregiver Community MPIP Chat Tues. thru Thurs. evening 7 PM EST til……????

  • Post
    Carole K
    Participant

      The last person leaves.  I have sent e-mails to other Old Timers from MPIP to ask them to meet in chat tomorrow night thru Thurs.  at 7 PM EST. until the last one leaves. We have patients/caregivers from the East Coast as well as the WEst Coast so I am sure many of us will come and go.  Most of the people who I think will be there are LONG TERM SURVIVORS with incredible stories of hope for those of you who would like to chat with us.  Know many of us are there to help you during these difficult times.  Hang in there.

      Love and Light

      Carole

      The last person leaves.  I have sent e-mails to other Old Timers from MPIP to ask them to meet in chat tomorrow night thru Thurs.  at 7 PM EST. until the last one leaves. We have patients/caregivers from the East Coast as well as the WEst Coast so I am sure many of us will come and go.  Most of the people who I think will be there are LONG TERM SURVIVORS with incredible stories of hope for those of you who would like to chat with us.  Know many of us are there to help you during these difficult times.  Hang in there.

      Love and Light

      Carole

    Viewing 2 reply threads
    • Replies
        Charlie S
        Participant

          It is welcome and refreshing that you have a re-newed interest in this forum Carole 

          Not that many  know the origin of this website where our host and the participants had few avenues of accurate diagnosis, fewer pathways to second opinions, extremely limited cliical trials; and for the most part we were all dead people walking, but we all had a commond bond via MPIP of sharing of our then orpan disease. 

          That point of origin was well over a decade ago and though some online folks may say a decade ago has no relevance online today as a soltion, I would differ.

          What Carole is offering is an invitation to share the benefit of experience. the benefit of sharing  itself  and an open hand that we ARE truly in this together.

          Or not. (smirk)

          But I am in for chat !

           

          Cheers,

          Charlie S 

          Charlie S
          Participant

            It is welcome and refreshing that you have a re-newed interest in this forum Carole 

            Not that many  know the origin of this website where our host and the participants had few avenues of accurate diagnosis, fewer pathways to second opinions, extremely limited cliical trials; and for the most part we were all dead people walking, but we all had a commond bond via MPIP of sharing of our then orpan disease. 

            That point of origin was well over a decade ago and though some online folks may say a decade ago has no relevance online today as a soltion, I would differ.

            What Carole is offering is an invitation to share the benefit of experience. the benefit of sharing  itself  and an open hand that we ARE truly in this together.

            Or not. (smirk)

            But I am in for chat !

             

            Cheers,

            Charlie S 

            Charlie S
            Participant

              It is welcome and refreshing that you have a re-newed interest in this forum Carole 

              Not that many  know the origin of this website where our host and the participants had few avenues of accurate diagnosis, fewer pathways to second opinions, extremely limited cliical trials; and for the most part we were all dead people walking, but we all had a commond bond via MPIP of sharing of our then orpan disease. 

              That point of origin was well over a decade ago and though some online folks may say a decade ago has no relevance online today as a soltion, I would differ.

              What Carole is offering is an invitation to share the benefit of experience. the benefit of sharing  itself  and an open hand that we ARE truly in this together.

              Or not. (smirk)

              But I am in for chat !

               

              Cheers,

              Charlie S 

          Viewing 2 reply threads

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