› Forums › Caregiver Community › MPIP Chat Tues. thru Thurs. evening 7 PM EST til……????
- This topic has 3 replies, 1 voice, and was last updated 12 years, 3 months ago by
Charlie S.
- Post
-
- February 11, 2013 at 11:50 pm
The last person leaves. I have sent e-mails to other Old Timers from MPIP to ask them to meet in chat tomorrow night thru Thurs. at 7 PM EST. until the last one leaves. We have patients/caregivers from the East Coast as well as the WEst Coast so I am sure many of us will come and go. Most of the people who I think will be there are LONG TERM SURVIVORS with incredible stories of hope for those of you who would like to chat with us. Know many of us are there to help you during these difficult times. Hang in there.
Love and Light
Carole
The last person leaves. I have sent e-mails to other Old Timers from MPIP to ask them to meet in chat tomorrow night thru Thurs. at 7 PM EST. until the last one leaves. We have patients/caregivers from the East Coast as well as the WEst Coast so I am sure many of us will come and go. Most of the people who I think will be there are LONG TERM SURVIVORS with incredible stories of hope for those of you who would like to chat with us. Know many of us are there to help you during these difficult times. Hang in there.
Love and Light
Carole
- Replies
-
-
- February 12, 2013 at 3:22 am
It is welcome and refreshing that you have a re-newed interest in this forum Carole
Not that many know the origin of this website where our host and the participants had few avenues of accurate diagnosis, fewer pathways to second opinions, extremely limited cliical trials; and for the most part we were all dead people walking, but we all had a commond bond via MPIP of sharing of our then orpan disease.
That point of origin was well over a decade ago and though some online folks may say a decade ago has no relevance online today as a soltion, I would differ.
What Carole is offering is an invitation to share the benefit of experience. the benefit of sharing itself and an open hand that we ARE truly in this together.
Or not. (smirk)
But I am in for chat !
Cheers,
Charlie S
-
- February 12, 2013 at 3:22 am
It is welcome and refreshing that you have a re-newed interest in this forum Carole
Not that many know the origin of this website where our host and the participants had few avenues of accurate diagnosis, fewer pathways to second opinions, extremely limited cliical trials; and for the most part we were all dead people walking, but we all had a commond bond via MPIP of sharing of our then orpan disease.
That point of origin was well over a decade ago and though some online folks may say a decade ago has no relevance online today as a soltion, I would differ.
What Carole is offering is an invitation to share the benefit of experience. the benefit of sharing itself and an open hand that we ARE truly in this together.
Or not. (smirk)
But I am in for chat !
Cheers,
Charlie S
-
- February 12, 2013 at 3:22 am
It is welcome and refreshing that you have a re-newed interest in this forum Carole
Not that many know the origin of this website where our host and the participants had few avenues of accurate diagnosis, fewer pathways to second opinions, extremely limited cliical trials; and for the most part we were all dead people walking, but we all had a commond bond via MPIP of sharing of our then orpan disease.
That point of origin was well over a decade ago and though some online folks may say a decade ago has no relevance online today as a soltion, I would differ.
What Carole is offering is an invitation to share the benefit of experience. the benefit of sharing itself and an open hand that we ARE truly in this together.
Or not. (smirk)
But I am in for chat !
Cheers,
Charlie S
-
Tagged: caregiver
- You must be logged in to reply to this topic.