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MPIP founded By Jeff Patterson before the MRF existed!
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MPIP founded By Jeff Patterson before the MRF existed!

› Forums › Caregiver Community › MPIP founded By Jeff Patterson before the MRF existed!

  • Post
    • September 10, 2013 at 6:14 am
    JerryfromFauq
    Participant

          We are the "MELANOMA PATIENTS INFORMATION PAGE" community.   The history of the MPIP predates the formation of the MRF.  The MPIP is a Memorial to Jeff Patterson and his wife's sister, Cindy.
           The MRF does a great job of fund raising and supporting research for the fight against melanoma.  The MPIP is not a fund raising entity, we are a group of fellow sufferer's trying to help each other on a personal, compassionate and informational level.  We need the MRF's help, and the fact that the MRF recently began supporting the MPIP should be a benefit in their fund-raising.  The first new format  seemed to have forgotten the personal approach of the MPIP and concentrated more on the commercial fund raising side of the MRF.  After complaints and requsts the MPIP history information was included in the MRF write up

              Cindy was diagnosed with melanoma approximately Nov 1995.  Jeff set out to find everything he could about this dreadful disease.  What he discovered was that there was a great deal of information available on the internet, but it took him hours and hours to find it. He decided to put everything he could find on one "page" so that Lori Paterson's family could access the information more easily.  Unfortunately Cindy passed away  in August, 1998.    Jeff's efforts continued. What now is known as the MPIP – complete with a bulletin: board and chat room – is the result of Jeff literally spending : thousands of hours writing computer programs and researching melanoma.   His labor, which has been helping tens of thousands of patients, caregivers and their friends worldwide, outgrew the ability of one person to support it properly and the MRF agreed to continue and enhance this fabulous site to assist patients on a personal level.

      Jeff Patterson's MEMORIAL SHOULD NOT BE PUSHED ASIDE AND MADE TO APPEAR AS A TRIBUTE TO AN Astronaut's WIFE.   
           Jeff allowed others involved in the struggle against melanoma to use his site and continued the site at his own expense and time for many years to be a chat room and social room and information site for melanoma individuals.

      Last year the MPIP history information was included in the MRF write up.  This was appreciated.  Now it has again been removed!  

                                                                                                               WHY?

    Viewing 5 reply threads
    • Replies
        • September 10, 2013 at 1:33 pm
        Tim–MRF
        Guest

          Jerry:

          Just seeing your post about Jeff.  I have not looked at the sections you mentioned and will track down what happened here.  

          I agree that Jeff's contributions should be recognized.  His initial efforts to create a clearing house of information for his family has grown into an amazing resource for the entire melanoma community.  I can assure you that preserving the tone and feel of MPIP was a major consideration as we went through the website re-design.  The challenges of slow posting were a major driving factor in our undergoing this huge effort.  

          We have now been "live" with the new site for just over 24 hours.  The feedback we have received so far had been very positive.  We are fortunate to have a number of people who are looking over the site with great care and are finding issues we need to fix.  Yesterday, for example, everyone's post was listed as "anonymous".  We were able to fix that within an hour or so.  We faced a few issues with the calendar function and also failed to have a clear link to Chat on the MPIP page.  These are now fixed.

          We know of some other issues that may take a bit longer, and this is to be expected.  I appreciate your feedback and hope you will continue to provide recommendations about things we need to improve or fix. I am trying to read this site fairly often for input, but anyone is welcome to email me directly at [email protected]; that will get to my attention fasted.

          Tim–MRF

            • September 10, 2013 at 5:17 pm
            JerryfromFauq
            Participant

              Tim, as you know, I greatly appreciate the work you do for the Melanoma patients.  Just on a seperate venue from the appreciation I have for Jeff founding the Patient to Patient site he founded and maintained for so many years.  As you know I do have thing for Jeff, his wife and sister. Many of the old Timers (from before 2009?- back through at least Jan 1996) have quite an emotional attachment to Jeff for his work and some actually are still staying in touch with him.   Allen posted earlier this year about a conversation he had just had with Jeff.

              P.S. Is there a way that we can  update the true date  of our joining the MPIP that an earlier revision refused to allow earlier dates than the program update?

              • September 10, 2013 at 5:17 pm
              JerryfromFauq
              Participant

                Tim, as you know, I greatly appreciate the work you do for the Melanoma patients.  Just on a seperate venue from the appreciation I have for Jeff founding the Patient to Patient site he founded and maintained for so many years.  As you know I do have thing for Jeff, his wife and sister. Many of the old Timers (from before 2009?- back through at least Jan 1996) have quite an emotional attachment to Jeff for his work and some actually are still staying in touch with him.   Allen posted earlier this year about a conversation he had just had with Jeff.

                P.S. Is there a way that we can  update the true date  of our joining the MPIP that an earlier revision refused to allow earlier dates than the program update?

                • September 10, 2013 at 5:17 pm
                JerryfromFauq
                Participant

                  Tim, as you know, I greatly appreciate the work you do for the Melanoma patients.  Just on a seperate venue from the appreciation I have for Jeff founding the Patient to Patient site he founded and maintained for so many years.  As you know I do have thing for Jeff, his wife and sister. Many of the old Timers (from before 2009?- back through at least Jan 1996) have quite an emotional attachment to Jeff for his work and some actually are still staying in touch with him.   Allen posted earlier this year about a conversation he had just had with Jeff.

                  P.S. Is there a way that we can  update the true date  of our joining the MPIP that an earlier revision refused to allow earlier dates than the program update?

                • September 10, 2013 at 1:33 pm
                Tim–MRF
                Guest

                  Jerry:

                  Just seeing your post about Jeff.  I have not looked at the sections you mentioned and will track down what happened here.  

                  I agree that Jeff's contributions should be recognized.  His initial efforts to create a clearing house of information for his family has grown into an amazing resource for the entire melanoma community.  I can assure you that preserving the tone and feel of MPIP was a major consideration as we went through the website re-design.  The challenges of slow posting were a major driving factor in our undergoing this huge effort.  

                  We have now been "live" with the new site for just over 24 hours.  The feedback we have received so far had been very positive.  We are fortunate to have a number of people who are looking over the site with great care and are finding issues we need to fix.  Yesterday, for example, everyone's post was listed as "anonymous".  We were able to fix that within an hour or so.  We faced a few issues with the calendar function and also failed to have a clear link to Chat on the MPIP page.  These are now fixed.

                  We know of some other issues that may take a bit longer, and this is to be expected.  I appreciate your feedback and hope you will continue to provide recommendations about things we need to improve or fix. I am trying to read this site fairly often for input, but anyone is welcome to email me directly at [email protected]; that will get to my attention fasted.

                  Tim–MRF

                  • September 10, 2013 at 1:33 pm
                  Tim–MRF
                  Guest

                    Jerry:

                    Just seeing your post about Jeff.  I have not looked at the sections you mentioned and will track down what happened here.  

                    I agree that Jeff's contributions should be recognized.  His initial efforts to create a clearing house of information for his family has grown into an amazing resource for the entire melanoma community.  I can assure you that preserving the tone and feel of MPIP was a major consideration as we went through the website re-design.  The challenges of slow posting were a major driving factor in our undergoing this huge effort.  

                    We have now been "live" with the new site for just over 24 hours.  The feedback we have received so far had been very positive.  We are fortunate to have a number of people who are looking over the site with great care and are finding issues we need to fix.  Yesterday, for example, everyone's post was listed as "anonymous".  We were able to fix that within an hour or so.  We faced a few issues with the calendar function and also failed to have a clear link to Chat on the MPIP page.  These are now fixed.

                    We know of some other issues that may take a bit longer, and this is to be expected.  I appreciate your feedback and hope you will continue to provide recommendations about things we need to improve or fix. I am trying to read this site fairly often for input, but anyone is welcome to email me directly at [email protected]; that will get to my attention fasted.

                    Tim–MRF

                    • September 18, 2013 at 5:32 pm
                    lsmith – MRF
                    Keymaster

                      Hi Jerry,

                      Thank you for bringing this to our attention.  The History of MPIP is now back! You can find it on the menu (at the top of the screen, under Find Support) as well as on the MPIP page in a side bar to the right of the discussion board.

                      Best,

                      Lauren – MRF

                      • September 18, 2013 at 5:32 pm
                      lsmith – MRF
                      Keymaster

                        Hi Jerry,

                        Thank you for bringing this to our attention.  The History of MPIP is now back! You can find it on the menu (at the top of the screen, under Find Support) as well as on the MPIP page in a side bar to the right of the discussion board.

                        Best,

                        Lauren – MRF

                        • September 18, 2013 at 5:32 pm
                        lsmith – MRF
                        Keymaster

                          Hi Jerry,

                          Thank you for bringing this to our attention.  The History of MPIP is now back! You can find it on the menu (at the top of the screen, under Find Support) as well as on the MPIP page in a side bar to the right of the discussion board.

                          Best,

                          Lauren – MRF

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