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Mucosal to cutaneous? Superficial spreading to nodular?

Forums Cutaneous Melanoma Community Mucosal to cutaneous? Superficial spreading to nodular?

  • Post
    CHD
    Participant

      What are the statistics/odds that someone with mucosal melanoma will develop a new primary that is cutaneous?  Does anyone know? 

      If you have superficial spreading melanoma, is it likely that you would develop nodular melanoma somewhere else, or more likely that you would develop the same type?

      Has anyone had experience with this?

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    • Replies
        Janner
        Participant

          I've not seen statistics, except most with ocular never get cutaneous.  And most with multiple primaries get the same type.  I think getting a primary of a different type would have a higher likelihood than mucosal to cutaneous.  I've had many eye surgeons unrelated to melanoma and all have said the same thing.  They've all diagnosed ocular melanoma and none of those patients had had cutaneous prior.  I think in all my years on these bulletin boards I remember only a couple of people with both types.  I think superficial spreading and nodular or Lentigo maligna is rare (since less than 10% ever have more than one primary) but ocular accounts for maybe 4%? Of all melanomas?  Don't know the exact figures but somewhere in that neighborhood.  So rare and rarer.

          Janner
          Participant

            I've not seen statistics, except most with ocular never get cutaneous.  And most with multiple primaries get the same type.  I think getting a primary of a different type would have a higher likelihood than mucosal to cutaneous.  I've had many eye surgeons unrelated to melanoma and all have said the same thing.  They've all diagnosed ocular melanoma and none of those patients had had cutaneous prior.  I think in all my years on these bulletin boards I remember only a couple of people with both types.  I think superficial spreading and nodular or Lentigo maligna is rare (since less than 10% ever have more than one primary) but ocular accounts for maybe 4%? Of all melanomas?  Don't know the exact figures but somewhere in that neighborhood.  So rare and rarer.

            Janner
            Participant

              I've not seen statistics, except most with ocular never get cutaneous.  And most with multiple primaries get the same type.  I think getting a primary of a different type would have a higher likelihood than mucosal to cutaneous.  I've had many eye surgeons unrelated to melanoma and all have said the same thing.  They've all diagnosed ocular melanoma and none of those patients had had cutaneous prior.  I think in all my years on these bulletin boards I remember only a couple of people with both types.  I think superficial spreading and nodular or Lentigo maligna is rare (since less than 10% ever have more than one primary) but ocular accounts for maybe 4%? Of all melanomas?  Don't know the exact figures but somewhere in that neighborhood.  So rare and rarer.

              JustMeInCA
              Participant

                When my father went in to have his primary nodular melanoma excised, the surgeon also removed two other suspicious spots, one of which turned out to be a superficial spreading melanoma. I know nothing about mucosal melanoma, though.

                JustMeInCA
                Participant

                  When my father went in to have his primary nodular melanoma excised, the surgeon also removed two other suspicious spots, one of which turned out to be a superficial spreading melanoma. I know nothing about mucosal melanoma, though.

                  JustMeInCA
                  Participant

                    When my father went in to have his primary nodular melanoma excised, the surgeon also removed two other suspicious spots, one of which turned out to be a superficial spreading melanoma. I know nothing about mucosal melanoma, though.

                    CHD
                    Participant

                      Thanks!  Interesting about the nodular to superficial spreading, and I agree that it just seems unlikely to go from mucosal to cutaneous since they are being described in the literature as such very different forms of melanoma.  But as with all things mucosal, it seems very difficult to find answers!

                       

                      Appreciate the insights!

                      CHD
                      Participant

                        Thanks!  Interesting about the nodular to superficial spreading, and I agree that it just seems unlikely to go from mucosal to cutaneous since they are being described in the literature as such very different forms of melanoma.  But as with all things mucosal, it seems very difficult to find answers!

                         

                        Appreciate the insights!

                        CHD
                        Participant

                          Thanks!  Interesting about the nodular to superficial spreading, and I agree that it just seems unlikely to go from mucosal to cutaneous since they are being described in the literature as such very different forms of melanoma.  But as with all things mucosal, it seems very difficult to find answers!

                           

                          Appreciate the insights!

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