Mum’s situation

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Mum’s situation

This topic has 6 replies, 3 voices, and was last updated 7 years, 7 months ago by thinkingofu.

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- October 21, 2017 at 7:49 am
- Quote
thinkingofu
Participant
Hello lovelies

Hope you are all well today

My mum has completed her 10 sessions of SRS and 2 infusions of Yervoy+Opdivo (out of 4)

She is still on Dexamethasone (10 mg) once a day

Hydrocortisol (also 10) x 2 day

Thyroxine (100 mg)

Her face got bigger (like a bit swollen), but her legs and arms are much smaller than they used to be. After SRS – her hands shake to the point it is difficult to hold a spoon. She is craving sweets all the time

Also, yesterday, when she missed a dose of dexamethasone she long consciousness. She is OK now after taking it.

From your experience, guys, does is sound like normal side effects? I am worried sick. Also, after which dose of Yervoy+Opdivo did you doctors ordered scans to check on progress?

Thank you xxx

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Replies

- - October 21, 2017 at 8:58 am
  - Quote
  thinkingofu
  Participant
  Also, justt wanted to add, her knees are hurting a lot. That is partly ther eason for the fall she said
  - October 21, 2017 at 9:05 am
    
    Quote
    thinkingofu
    Participant
    
    …and if it is side effect, what can we do, in your experience, to make it better, please?
- - October 21, 2017 at 5:08 pm
  - Quote
  MovingOn
  Participant
  Definitely watch the blood test results. They should be doing boood tests before each infusion. The results will tell you if there are known side effects occurring. For example, it sounds like she has experienced hypophisitis because I see she is being prescribed thyroid and cortisol (hydrocortisone). The fainting sounds like her cortisol got too low.
  
  Scans typically tell us about disease regression whereas the blood work tells us about overall health and side effects.
  
  I’m sure others will chime in. Hopefully this is helpful.
  - October 21, 2017 at 9:23 pm
    
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    thinkingofu
    Participant
    
    Thank you for replying! xxx
- - October 21, 2017 at 7:30 pm
  - Quote
  jennunicorn
  Participant
  The first scan after starting treatment usually happens a few weeks after the main doses are done, so it should be after her 4th infusion.
  - October 21, 2017 at 9:24 pm
    
    Quote
    thinkingofu
    Participant
    
    Thank you! We shall wait until then xxx

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