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Nasal cavity tumor?
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Nasal cavity tumor?

› Forums › Cutaneous Melanoma Community › Nasal cavity tumor?

  • Post
    • November 19, 2015 at 4:50 pm
    casagrayson
    Participant

      Has anyone ever had a metastasized melanoma that presented in the nasal passages?  And are all melanomas in the nasal passages considered mucosal, or are some cutaneous?  

      My husband still has his persistent cough.  Doctors ruled out reflux with an esophageal and stomach biopsies; chest CT showed one small nodule in each lung but radiologist was unconcerned.  Next stop was the ENT, who found what he said was a polyp (actually I heard him quietly say to his assistant "bleeding polyp", right side only) and he has scheduled a CT scan of the sinuses.  Everything I've read (medical journals) say that single-sided polyps and bleeding are concerning for malignancy.  So … what are the chances this is a spread from the melanoma?

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    • Replies
        • November 25, 2015 at 5:33 pm
        casagrayson
        Participant

          CT scan of the sinuses didn't show much — the polyp is there, but the ENT basically just blew it off.  

          I *hate* that my husband never saw a melanoma specialist whene he had the two primaries removed.  The one he had on his mandible would now be considered for sentinel node biopsy due to the mitotic rate, but because it was under 1cm the old guidelines didn't call for that.  

          So now he's got lung nodules (very small) and a polyp (which IMO should be biopsied but ENT says "no"), and a cough that hasn't gone away in 7 months.  Because chronic cough is a common complaint, he and I both feel we aren't being taken seriously.  If he had seen a melanoma specialist early on and had developed a relationship then I would feel much better that these symptoms were being looked at through a "melanoma lens".  

           

          • November 25, 2015 at 5:33 pm
          casagrayson
          Participant

            CT scan of the sinuses didn't show much — the polyp is there, but the ENT basically just blew it off.  

            I *hate* that my husband never saw a melanoma specialist whene he had the two primaries removed.  The one he had on his mandible would now be considered for sentinel node biopsy due to the mitotic rate, but because it was under 1cm the old guidelines didn't call for that.  

            So now he's got lung nodules (very small) and a polyp (which IMO should be biopsied but ENT says "no"), and a cough that hasn't gone away in 7 months.  Because chronic cough is a common complaint, he and I both feel we aren't being taken seriously.  If he had seen a melanoma specialist early on and had developed a relationship then I would feel much better that these symptoms were being looked at through a "melanoma lens".  

             

            • November 25, 2015 at 5:33 pm
            casagrayson
            Participant

              CT scan of the sinuses didn't show much — the polyp is there, but the ENT basically just blew it off.  

              I *hate* that my husband never saw a melanoma specialist whene he had the two primaries removed.  The one he had on his mandible would now be considered for sentinel node biopsy due to the mitotic rate, but because it was under 1cm the old guidelines didn't call for that.  

              So now he's got lung nodules (very small) and a polyp (which IMO should be biopsied but ENT says "no"), and a cough that hasn't gone away in 7 months.  Because chronic cough is a common complaint, he and I both feel we aren't being taken seriously.  If he had seen a melanoma specialist early on and had developed a relationship then I would feel much better that these symptoms were being looked at through a "melanoma lens".  

               

              • November 26, 2015 at 4:50 am
              kylez
              Participant

                Does your insurance allow him to seek his own specialists? Or is it an HMO where that's hard? What I think I hear you wanting is a second opinion.

                • November 26, 2015 at 4:50 am
                kylez
                Participant

                  Does your insurance allow him to seek his own specialists? Or is it an HMO where that's hard? What I think I hear you wanting is a second opinion.

                  • November 26, 2015 at 4:50 am
                  kylez
                  Participant

                    Does your insurance allow him to seek his own specialists? Or is it an HMO where that's hard? What I think I hear you wanting is a second opinion.

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