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Need advise on staging
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Need advise on staging

› Forums › General Melanoma Community › Need advise on staging

  • Post
    • April 14, 2016 at 8:09 am
    Tamlin
    Participant

      Hi 

      can anyone on here tell me what stage my melanoma is? I asked my consultant but he swept over it and changed the subject. 

      I had my toe amputated due to an ulcerated melanoma 4mm thick, 10 years ago. 

      I now have a rather large swollen lymph node in my right groin which has proven to be melanoma. I will be having all my numbers des in right groin next week, but I would just like to know staging etc. Not knowing is worse, I think xxx 

       

      thanks 

    Viewing 8 reply threads
    • Replies
        • April 14, 2016 at 8:12 am
        Tamlin
        Participant

          Sorry that's meant to read "all my nodes removed" not number lol xxx 

          • April 14, 2016 at 8:12 am
          Tamlin
          Participant

            Sorry that's meant to read "all my nodes removed" not number lol xxx 

            • April 14, 2016 at 8:12 am
            Tamlin
            Participant

              Sorry that's meant to read "all my nodes removed" not number lol xxx 

              • April 14, 2016 at 9:10 am
              stars
              Participant

                Hi – I'm no expert but I think spread to the nodes is stage 3, beyond the nodes (e.g. if a PET or CT revealed distant mets) is stage 4. So to me, you are stage 3.

                https://www.melanoma.org.au/understanding-melanoma/stages-of-melanoma/

                I hope I'm not speaking out of turn, but get a new consultant. Sweeping over staging is inexcusable – staging is all important in understanding your diagnosis, coming to terms with it and planning your treatment etc.

                Just to reframe this: you are a melanoma patient with a worrying recurrence in regional lymph nodes. Staging is THE ONLY thing you really need to know. Everything hangs off this staging. For your consultant not to clearly discuss staging – or at the very least explain that they can't stage you yet because you still need to undergo certain investigations – is pretty slack.

                • April 14, 2016 at 9:10 am
                stars
                Participant

                  Hi – I'm no expert but I think spread to the nodes is stage 3, beyond the nodes (e.g. if a PET or CT revealed distant mets) is stage 4. So to me, you are stage 3.

                  https://www.melanoma.org.au/understanding-melanoma/stages-of-melanoma/

                  I hope I'm not speaking out of turn, but get a new consultant. Sweeping over staging is inexcusable – staging is all important in understanding your diagnosis, coming to terms with it and planning your treatment etc.

                  Just to reframe this: you are a melanoma patient with a worrying recurrence in regional lymph nodes. Staging is THE ONLY thing you really need to know. Everything hangs off this staging. For your consultant not to clearly discuss staging – or at the very least explain that they can't stage you yet because you still need to undergo certain investigations – is pretty slack.

                  • April 14, 2016 at 9:10 am
                  stars
                  Participant

                    Hi – I'm no expert but I think spread to the nodes is stage 3, beyond the nodes (e.g. if a PET or CT revealed distant mets) is stage 4. So to me, you are stage 3.

                    https://www.melanoma.org.au/understanding-melanoma/stages-of-melanoma/

                    I hope I'm not speaking out of turn, but get a new consultant. Sweeping over staging is inexcusable – staging is all important in understanding your diagnosis, coming to terms with it and planning your treatment etc.

                    Just to reframe this: you are a melanoma patient with a worrying recurrence in regional lymph nodes. Staging is THE ONLY thing you really need to know. Everything hangs off this staging. For your consultant not to clearly discuss staging – or at the very least explain that they can't stage you yet because you still need to undergo certain investigations – is pretty slack.

                    • April 14, 2016 at 12:25 pm
                    Janner
                    Participant

                      Staging will depend on the number of nodes positive.  Right now, the best your doc could say is at least stage 3.  But until you get the path report on the lymph node dissection, the more detailed staging can't be stated.

                      • April 14, 2016 at 12:25 pm
                      Janner
                      Participant

                        Staging will depend on the number of nodes positive.  Right now, the best your doc could say is at least stage 3.  But until you get the path report on the lymph node dissection, the more detailed staging can't be stated.

                        • April 14, 2016 at 12:25 pm
                        Janner
                        Participant

                          Staging will depend on the number of nodes positive.  Right now, the best your doc could say is at least stage 3.  But until you get the path report on the lymph node dissection, the more detailed staging can't be stated.

                            • April 17, 2016 at 2:14 am
                            Tamlin
                            Participant

                              Thank you xx

                              • April 17, 2016 at 2:14 am
                              Tamlin
                              Participant

                                Thank you xx

                                • April 17, 2016 at 2:14 am
                                Tamlin
                                Participant

                                  Thank you xx

                            Viewing 8 reply threads
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