need stage IV melanoma advice

I have no way of knowing how much of this is a direct effect of the drugs and radiation, but chronic loss of appetite and weight loss in cancer CAN be due to cachexia. This is a disruption of the metabolism caused by the release of a large number of inflammatory cytokines from the tumor, by the body's immune system, and by the breakdown of healthy tissue.

This is a dangerous condition and it's important to get the body back to a normal state. Some foods/supplements that have been tried with come success are:

– Omega-3 fatty acids

– EGCG and theophylline, both nutrients found in green tea

– Ketogenic diet

– CoRN protocol, a combination of coenzyme Q10, riboflavin and niacon

– NSAIDs such as Celebrex

– Curcumin

I have no way of knowing how much of this is a direct effect of the drugs and radiation, but chronic loss of appetite and weight loss in cancer CAN be due to cachexia. This is a disruption of the metabolism caused by the release of a large number of inflammatory cytokines from the tumor, by the body's immune system, and by the breakdown of healthy tissue.

This is a dangerous condition and it's important to get the body back to a normal state. Some foods/supplements that have been tried with come success are:

– Omega-3 fatty acids

– EGCG and theophylline, both nutrients found in green tea

– Ketogenic diet

– CoRN protocol, a combination of coenzyme Q10, riboflavin and niacon

– NSAIDs such as Celebrex

– Curcumin

I have no way of knowing how much of this is a direct effect of the drugs and radiation, but chronic loss of appetite and weight loss in cancer CAN be due to cachexia. This is a disruption of the metabolism caused by the release of a large number of inflammatory cytokines from the tumor, by the body's immune system, and by the breakdown of healthy tissue.

This is a dangerous condition and it's important to get the body back to a normal state. Some foods/supplements that have been tried with come success are:

– Omega-3 fatty acids

– EGCG and theophylline, both nutrients found in green tea

– Ketogenic diet

– CoRN protocol, a combination of coenzyme Q10, riboflavin and niacon

– NSAIDs such as Celebrex

– Curcumin

Hass71,

Is your wife on any steroids (Dexamethasone)? If so, an increase may help with appetite and energy. Also, how is her red blood cell count? If low, she may be anemic. Possibly a blood transfusion and/or Iron IV could help. 

My question to you is how long after completing Yervoy did they start Keytruda treatment?  My beautiful wife is currently going through a very similiar situation as yours with the diiference of completing Yervoy and now waiting for scans to determine PD-1.  

I truly feel what you are going through and we can only be positive do everything we can for them. Take care of yourself and your wife. I will look for your reply ~Nick

Hass71,

Is your wife on any steroids (Dexamethasone)? If so, an increase may help with appetite and energy. Also, how is her red blood cell count? If low, she may be anemic. Possibly a blood transfusion and/or Iron IV could help. 

My question to you is how long after completing Yervoy did they start Keytruda treatment?  My beautiful wife is currently going through a very similiar situation as yours with the diiference of completing Yervoy and now waiting for scans to determine PD-1.  

I truly feel what you are going through and we can only be positive do everything we can for them. Take care of yourself and your wife. I will look for your reply ~Nick

Hass71,

Is your wife on any steroids (Dexamethasone)? If so, an increase may help with appetite and energy. Also, how is her red blood cell count? If low, she may be anemic. Possibly a blood transfusion and/or Iron IV could help. 

My question to you is how long after completing Yervoy did they start Keytruda treatment?  My beautiful wife is currently going through a very similiar situation as yours with the diiference of completing Yervoy and now waiting for scans to determine PD-1.  

I truly feel what you are going through and we can only be positive do everything we can for them. Take care of yourself and your wife. I will look for your reply ~Nick

In America there is a group of cancer places called cancer center treatments of America. Normally I dont care for them. However they do advertise a wholistic approach to cancer. This includes nutrition. The reason I bring it up there was a lady whose daughter had pancreatic cancer 5 years ago and is fine now. But she got her treatment elsewhere. Then went there to get her health back including lots of weight loss and everything. They provided all the food, exercise and everything specifically for her. Dunno if you have such a place but it sounds like your wife needs lots of proper nutrition and things to get her back. The cancer chemo and radiation takes a lot out of a person. I'm going through that again with radiation. I have not experienced that with keytruda though and I've had dose 14. Actually quite the opposite. Usually I feel a little stronger after a dose for a few hours to a couple days.

Artie

In America there is a group of cancer places called cancer center treatments of America. Normally I dont care for them. However they do advertise a wholistic approach to cancer. This includes nutrition. The reason I bring it up there was a lady whose daughter had pancreatic cancer 5 years ago and is fine now. But she got her treatment elsewhere. Then went there to get her health back including lots of weight loss and everything. They provided all the food, exercise and everything specifically for her. Dunno if you have such a place but it sounds like your wife needs lots of proper nutrition and things to get her back. The cancer chemo and radiation takes a lot out of a person. I'm going through that again with radiation. I have not experienced that with keytruda though and I've had dose 14. Actually quite the opposite. Usually I feel a little stronger after a dose for a few hours to a couple days.

Artie

In America there is a group of cancer places called cancer center treatments of America. Normally I dont care for them. However they do advertise a wholistic approach to cancer. This includes nutrition. The reason I bring it up there was a lady whose daughter had pancreatic cancer 5 years ago and is fine now. But she got her treatment elsewhere. Then went there to get her health back including lots of weight loss and everything. They provided all the food, exercise and everything specifically for her. Dunno if you have such a place but it sounds like your wife needs lots of proper nutrition and things to get her back. The cancer chemo and radiation takes a lot out of a person. I'm going through that again with radiation. I have not experienced that with keytruda though and I've had dose 14. Actually quite the opposite. Usually I feel a little stronger after a dose for a few hours to a couple days.

Artie