The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

New Diagnosis and SLN biopsy question

Forums General Melanoma Community New Diagnosis and SLN biopsy question

  • Post
    mitchwendy
    Participant

      I am ok with my diagnosis, its pretty good. I am at a .80mm depth, 2 mitotic rate, and no ulcerations, so I was listed as Stage 1b. I am to have the margins removed later this month (hello paying deductible and copay the last month of a year! haha) BUT, what I dont understand is why my Dr gave me the choice of having a SLN biopsy done, or not….
       

      I guess I am thankful for the choice, but what kind of choice is this? Do you do it and know for sure you are clear (told its an 8% or less chance its spread to the lymph nodes) or not do it because its a longer and more expensive procedure with more recovery?  (are they both outpatient – with and without the SLN ? I know without is…)

      Then, what if I didnt do it and should have?

      Am I even making any sense with this???? I think I am leaning towards having it done just to be safe, but….. UGH

       

      Thoughts?

       

      ps- I know there are people on here with way worse cases, but I just needed a place to vent where people understood what I am thinking. thanks

    Viewing 11 reply threads
    • Replies
        sbrooks90
        Participant

          Hello,

          If I was in your shoes I am not sure what I would do either!… its a tough one. I believe the Dr. is advising you that you have the choice of having a SLNB as a precautionary measure (Given the fact there is a mitotic rate and the depth is approaching 1mm).

           

          For what its worth…. I had a 1.65mm primary with ulceration and 5 mitosis per mm2. (Stage 2b) I was told you have a 15 to 20% chance that this will spread to lymph nodes so we recommend a SLNB. Sure enough, one of the lymph nodes was positive with microscopic melanoma deposits. It was a no brainer for me to have my SLNB done and I am so glad I did given the outcome.

          In the end you will decide what is right for you 🙂

          Let me know if you have any more questions

           

          Samuel

          sbrooks90
          Participant

            Hello,

            If I was in your shoes I am not sure what I would do either!… its a tough one. I believe the Dr. is advising you that you have the choice of having a SLNB as a precautionary measure (Given the fact there is a mitotic rate and the depth is approaching 1mm).

             

            For what its worth…. I had a 1.65mm primary with ulceration and 5 mitosis per mm2. (Stage 2b) I was told you have a 15 to 20% chance that this will spread to lymph nodes so we recommend a SLNB. Sure enough, one of the lymph nodes was positive with microscopic melanoma deposits. It was a no brainer for me to have my SLNB done and I am so glad I did given the outcome.

            In the end you will decide what is right for you 🙂

            Let me know if you have any more questions

             

            Samuel

            sbrooks90
            Participant

              Hello,

              If I was in your shoes I am not sure what I would do either!… its a tough one. I believe the Dr. is advising you that you have the choice of having a SLNB as a precautionary measure (Given the fact there is a mitotic rate and the depth is approaching 1mm).

               

              For what its worth…. I had a 1.65mm primary with ulceration and 5 mitosis per mm2. (Stage 2b) I was told you have a 15 to 20% chance that this will spread to lymph nodes so we recommend a SLNB. Sure enough, one of the lymph nodes was positive with microscopic melanoma deposits. It was a no brainer for me to have my SLNB done and I am so glad I did given the outcome.

              In the end you will decide what is right for you 🙂

              Let me know if you have any more questions

               

              Samuel

              POW
              Participant

                It used to be that a patient would not be offered a SLN unless the Breslow depth was > 0.76 mm. However, because positive SLN are so rare in thin melanomas, in recent years it has become more common not to offer an SLN unless the Breslow depth is >1.0 mm. In other words, if you had gone to another doctor, you might not have even been offered an SLN. So I guess the choice is up to you. 

                Just remember 2 things: 1) the SLN has to be done at the same time they do the WLE; it can't be done later, and 2) SLNs are not 100% accurate– even if your sentinel lymph nodes are negative there is a slight (<5%) possibility that the melanoma will recur some day. Negative nodes are reassuring but not a 100% guarantee. But if the sentinel nodes are positive, you for sure will be glad you got them out of there.

                POW
                Participant

                  It used to be that a patient would not be offered a SLN unless the Breslow depth was > 0.76 mm. However, because positive SLN are so rare in thin melanomas, in recent years it has become more common not to offer an SLN unless the Breslow depth is >1.0 mm. In other words, if you had gone to another doctor, you might not have even been offered an SLN. So I guess the choice is up to you. 

                  Just remember 2 things: 1) the SLN has to be done at the same time they do the WLE; it can't be done later, and 2) SLNs are not 100% accurate– even if your sentinel lymph nodes are negative there is a slight (<5%) possibility that the melanoma will recur some day. Negative nodes are reassuring but not a 100% guarantee. But if the sentinel nodes are positive, you for sure will be glad you got them out of there.

                    mitchwendy
                    Participant

                      Thats what I am finding from what I am researching…

                      Too scared really to play the odds, but dont really see why I wouldnt go ahead and do it while we do the procedure in a few weeks…..

                      Guess its a good thing they offered it up…. better to be safe, I suppose….

                      mitchwendy
                      Participant

                        Thats what I am finding from what I am researching…

                        Too scared really to play the odds, but dont really see why I wouldnt go ahead and do it while we do the procedure in a few weeks…..

                        Guess its a good thing they offered it up…. better to be safe, I suppose….

                        mitchwendy
                        Participant

                          Thats what I am finding from what I am researching…

                          Too scared really to play the odds, but dont really see why I wouldnt go ahead and do it while we do the procedure in a few weeks…..

                          Guess its a good thing they offered it up…. better to be safe, I suppose….

                        POW
                        Participant

                          It used to be that a patient would not be offered a SLN unless the Breslow depth was > 0.76 mm. However, because positive SLN are so rare in thin melanomas, in recent years it has become more common not to offer an SLN unless the Breslow depth is >1.0 mm. In other words, if you had gone to another doctor, you might not have even been offered an SLN. So I guess the choice is up to you. 

                          Just remember 2 things: 1) the SLN has to be done at the same time they do the WLE; it can't be done later, and 2) SLNs are not 100% accurate– even if your sentinel lymph nodes are negative there is a slight (<5%) possibility that the melanoma will recur some day. Negative nodes are reassuring but not a 100% guarantee. But if the sentinel nodes are positive, you for sure will be glad you got them out of there.

                          jloz
                          Participant

                            This past summer I had a WLE and SLNB (which came back negative) on a 1.2mm deep melanoma on my back with no ulceration, 0 mitosis, mild lymphocytes present, and no regression.  Before the procedure, I was told that there was a ~12% chance that the mel had spread and was advised to get the SLNB done by my derm and my oncologist (my derm could have actually just done the WLE in his office if I didn't want the SLNB).

                            Looking back, I'm glad that I went through it for two reasons:

                            1) To get a more precise diagnosis and receive the most logical form of care moving forwards AND

                            2) To help curb my anxiety surrounding a possible recurrence now.  I didn't realize it then but its taken a while for my anxiety levels to gradually go down and having a negative SLNB has certainly helped me vs not knowing.  As others have stated, the negative SLNB doesn't definitively prove that it won't ever recur but if I hadn't had the SLNB done I'd be dealing with more "what ifs" in my mind right now.

                            For me, it was an outpatient procedure though it took me a week to get back to 85% (the SLNs were found under my arm, the mel was on my lower back, and I also had a WLE done on a severely atypical mole on my stomach at the same time so I was recovering from incisions on three sides of my body).  My WLE scars are still a little sore and itchy though my SLNB scar and site healed much faster.

                            Please let me know if you have any questions.

                              mitchwendy
                              Participant

                                I need to ask what my recovery would be with the nodes, the mole was on my butt, so they think the nodes would be in the groin…. 

                                mitchwendy
                                Participant

                                  I need to ask what my recovery would be with the nodes, the mole was on my butt, so they think the nodes would be in the groin…. 

                                  mitchwendy
                                  Participant

                                    I need to ask what my recovery would be with the nodes, the mole was on my butt, so they think the nodes would be in the groin…. 

                                  jloz
                                  Participant

                                    This past summer I had a WLE and SLNB (which came back negative) on a 1.2mm deep melanoma on my back with no ulceration, 0 mitosis, mild lymphocytes present, and no regression.  Before the procedure, I was told that there was a ~12% chance that the mel had spread and was advised to get the SLNB done by my derm and my oncologist (my derm could have actually just done the WLE in his office if I didn't want the SLNB).

                                    Looking back, I'm glad that I went through it for two reasons:

                                    1) To get a more precise diagnosis and receive the most logical form of care moving forwards AND

                                    2) To help curb my anxiety surrounding a possible recurrence now.  I didn't realize it then but its taken a while for my anxiety levels to gradually go down and having a negative SLNB has certainly helped me vs not knowing.  As others have stated, the negative SLNB doesn't definitively prove that it won't ever recur but if I hadn't had the SLNB done I'd be dealing with more "what ifs" in my mind right now.

                                    For me, it was an outpatient procedure though it took me a week to get back to 85% (the SLNs were found under my arm, the mel was on my lower back, and I also had a WLE done on a severely atypical mole on my stomach at the same time so I was recovering from incisions on three sides of my body).  My WLE scars are still a little sore and itchy though my SLNB scar and site healed much faster.

                                    Please let me know if you have any questions.

                                    jloz
                                    Participant

                                      This past summer I had a WLE and SLNB (which came back negative) on a 1.2mm deep melanoma on my back with no ulceration, 0 mitosis, mild lymphocytes present, and no regression.  Before the procedure, I was told that there was a ~12% chance that the mel had spread and was advised to get the SLNB done by my derm and my oncologist (my derm could have actually just done the WLE in his office if I didn't want the SLNB).

                                      Looking back, I'm glad that I went through it for two reasons:

                                      1) To get a more precise diagnosis and receive the most logical form of care moving forwards AND

                                      2) To help curb my anxiety surrounding a possible recurrence now.  I didn't realize it then but its taken a while for my anxiety levels to gradually go down and having a negative SLNB has certainly helped me vs not knowing.  As others have stated, the negative SLNB doesn't definitively prove that it won't ever recur but if I hadn't had the SLNB done I'd be dealing with more "what ifs" in my mind right now.

                                      For me, it was an outpatient procedure though it took me a week to get back to 85% (the SLNs were found under my arm, the mel was on my lower back, and I also had a WLE done on a severely atypical mole on my stomach at the same time so I was recovering from incisions on three sides of my body).  My WLE scars are still a little sore and itchy though my SLNB scar and site healed much faster.

                                      Please let me know if you have any questions.

                                      Janner
                                      Participant

                                        In years past, you probably wouldn't have even been offered the option.  I had a .88mm (1 mitosis) lesion 11 years ago and wasn't offered the SNB.  Still here, no recurrence.   SNB is surgery, requires general anesthesia and can have complications.  WLE for most only requires local anesthesia.   For me, I was not sorry I didn't have it done – either then or now.  Be aware it is only a diagnostic tool has no clinical benefit.  In the end, it matters not what answers you get for or against – it's all about what you can live with.  YOU are the only important one in this scenario so do what makes YOU comfortable.

                                          mitchwendy
                                          Participant

                                            I think I would be ok not having it done, but we have such a history of various cancer in my family, they REALLY want me to have it done…. I'm on the fence…. It's a low risk….. But still a risk…. 

                                            the benefit would be IF they found it spread, then it could potentially save my life though, vs a wait and see attitude….

                                            but I don't want to do more than necessary…. 

                                             

                                            So conflicted, but hearing these stories is helping….thanks! 

                                            Janner
                                            Participant

                                              THEY are not you!  You are the patient.  You make the decisions.  THEY get to live with the decisions YOU make.   There isn't a right or wrong, one answer isn't better than the other.  There is no medical benefit to this to justify THEIR anxiety.  This cancer isn't the same as any other cancer and you can't base your decisions about melanoma from other cancers.  Good luck!

                                              mitchwendy
                                              Participant

                                                true! very true!

                                                so much to think on. 

                                                i got a call from the hospital about scheduling this – guess this is really happening, huh? LOL

                                                 

                                                I know, so many more people are worse off than me, but…………….

                                                 

                                                Thanks again, this does help!

                                                mitchwendy
                                                Participant

                                                  true! very true!

                                                  so much to think on. 

                                                  i got a call from the hospital about scheduling this – guess this is really happening, huh? LOL

                                                   

                                                  I know, so many more people are worse off than me, but…………….

                                                   

                                                  Thanks again, this does help!

                                                  mitchwendy
                                                  Participant

                                                    true! very true!

                                                    so much to think on. 

                                                    i got a call from the hospital about scheduling this – guess this is really happening, huh? LOL

                                                     

                                                    I know, so many more people are worse off than me, but…………….

                                                     

                                                    Thanks again, this does help!

                                                    Janner
                                                    Participant

                                                      THEY are not you!  You are the patient.  You make the decisions.  THEY get to live with the decisions YOU make.   There isn't a right or wrong, one answer isn't better than the other.  There is no medical benefit to this to justify THEIR anxiety.  This cancer isn't the same as any other cancer and you can't base your decisions about melanoma from other cancers.  Good luck!

                                                      Janner
                                                      Participant

                                                        THEY are not you!  You are the patient.  You make the decisions.  THEY get to live with the decisions YOU make.   There isn't a right or wrong, one answer isn't better than the other.  There is no medical benefit to this to justify THEIR anxiety.  This cancer isn't the same as any other cancer and you can't base your decisions about melanoma from other cancers.  Good luck!

                                                        mitchwendy
                                                        Participant

                                                          I think I would be ok not having it done, but we have such a history of various cancer in my family, they REALLY want me to have it done…. I'm on the fence…. It's a low risk….. But still a risk…. 

                                                          the benefit would be IF they found it spread, then it could potentially save my life though, vs a wait and see attitude….

                                                          but I don't want to do more than necessary…. 

                                                           

                                                          So conflicted, but hearing these stories is helping….thanks! 

                                                          mitchwendy
                                                          Participant

                                                            I think I would be ok not having it done, but we have such a history of various cancer in my family, they REALLY want me to have it done…. I'm on the fence…. It's a low risk….. But still a risk…. 

                                                            the benefit would be IF they found it spread, then it could potentially save my life though, vs a wait and see attitude….

                                                            but I don't want to do more than necessary…. 

                                                             

                                                            So conflicted, but hearing these stories is helping….thanks! 

                                                          Janner
                                                          Participant

                                                            In years past, you probably wouldn't have even been offered the option.  I had a .88mm (1 mitosis) lesion 11 years ago and wasn't offered the SNB.  Still here, no recurrence.   SNB is surgery, requires general anesthesia and can have complications.  WLE for most only requires local anesthesia.   For me, I was not sorry I didn't have it done – either then or now.  Be aware it is only a diagnostic tool has no clinical benefit.  In the end, it matters not what answers you get for or against – it's all about what you can live with.  YOU are the only important one in this scenario so do what makes YOU comfortable.

                                                            Janner
                                                            Participant

                                                              In years past, you probably wouldn't have even been offered the option.  I had a .88mm (1 mitosis) lesion 11 years ago and wasn't offered the SNB.  Still here, no recurrence.   SNB is surgery, requires general anesthesia and can have complications.  WLE for most only requires local anesthesia.   For me, I was not sorry I didn't have it done – either then or now.  Be aware it is only a diagnostic tool has no clinical benefit.  In the end, it matters not what answers you get for or against – it's all about what you can live with.  YOU are the only important one in this scenario so do what makes YOU comfortable.

                                                          Viewing 11 reply threads
                                                          • You must be logged in to reply to this topic.
                                                          About the MRF Patient Forum

                                                          The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                          The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.