› Forums › General Melanoma Community › New Diagnosis and SLN biopsy question
- This topic has 27 replies, 5 voices, and was last updated 11 years, 9 months ago by
mitchwendy.
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- December 3, 2013 at 8:36 pm
I am ok with my diagnosis, its pretty good. I am at a .80mm depth, 2 mitotic rate, and no ulcerations, so I was listed as Stage 1b. I am to have the margins removed later this month (hello paying deductible and copay the last month of a year! haha) BUT, what I dont understand is why my Dr gave me the choice of having a SLN biopsy done, or not….
I guess I am thankful for the choice, but what kind of choice is this? Do you do it and know for sure you are clear (told its an 8% or less chance its spread to the lymph nodes) or not do it because its a longer and more expensive procedure with more recovery? (are they both outpatient – with and without the SLN ? I know without is…)
Then, what if I didnt do it and should have?
Am I even making any sense with this???? I think I am leaning towards having it done just to be safe, but….. UGH
Thoughts?
ps- I know there are people on here with way worse cases, but I just needed a place to vent where people understood what I am thinking. thanks
- Replies
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- December 3, 2013 at 8:55 pm
Hello,
If I was in your shoes I am not sure what I would do either!… its a tough one. I believe the Dr. is advising you that you have the choice of having a SLNB as a precautionary measure (Given the fact there is a mitotic rate and the depth is approaching 1mm).
For what its worth…. I had a 1.65mm primary with ulceration and 5 mitosis per mm2. (Stage 2b) I was told you have a 15 to 20% chance that this will spread to lymph nodes so we recommend a SLNB. Sure enough, one of the lymph nodes was positive with microscopic melanoma deposits. It was a no brainer for me to have my SLNB done and I am so glad I did given the outcome.
In the end you will decide what is right for you 🙂
Let me know if you have any more questions
Samuel
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- December 3, 2013 at 8:55 pm
Hello,
If I was in your shoes I am not sure what I would do either!… its a tough one. I believe the Dr. is advising you that you have the choice of having a SLNB as a precautionary measure (Given the fact there is a mitotic rate and the depth is approaching 1mm).
For what its worth…. I had a 1.65mm primary with ulceration and 5 mitosis per mm2. (Stage 2b) I was told you have a 15 to 20% chance that this will spread to lymph nodes so we recommend a SLNB. Sure enough, one of the lymph nodes was positive with microscopic melanoma deposits. It was a no brainer for me to have my SLNB done and I am so glad I did given the outcome.
In the end you will decide what is right for you 🙂
Let me know if you have any more questions
Samuel
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- December 3, 2013 at 8:55 pm
Hello,
If I was in your shoes I am not sure what I would do either!… its a tough one. I believe the Dr. is advising you that you have the choice of having a SLNB as a precautionary measure (Given the fact there is a mitotic rate and the depth is approaching 1mm).
For what its worth…. I had a 1.65mm primary with ulceration and 5 mitosis per mm2. (Stage 2b) I was told you have a 15 to 20% chance that this will spread to lymph nodes so we recommend a SLNB. Sure enough, one of the lymph nodes was positive with microscopic melanoma deposits. It was a no brainer for me to have my SLNB done and I am so glad I did given the outcome.
In the end you will decide what is right for you 🙂
Let me know if you have any more questions
Samuel
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- December 3, 2013 at 9:32 pm
It used to be that a patient would not be offered a SLN unless the Breslow depth was > 0.76 mm. However, because positive SLN are so rare in thin melanomas, in recent years it has become more common not to offer an SLN unless the Breslow depth is >1.0 mm. In other words, if you had gone to another doctor, you might not have even been offered an SLN. So I guess the choice is up to you.
Just remember 2 things: 1) the SLN has to be done at the same time they do the WLE; it can't be done later, and 2) SLNs are not 100% accurate– even if your sentinel lymph nodes are negative there is a slight (<5%) possibility that the melanoma will recur some day. Negative nodes are reassuring but not a 100% guarantee. But if the sentinel nodes are positive, you for sure will be glad you got them out of there.
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- December 3, 2013 at 9:32 pm
It used to be that a patient would not be offered a SLN unless the Breslow depth was > 0.76 mm. However, because positive SLN are so rare in thin melanomas, in recent years it has become more common not to offer an SLN unless the Breslow depth is >1.0 mm. In other words, if you had gone to another doctor, you might not have even been offered an SLN. So I guess the choice is up to you.
Just remember 2 things: 1) the SLN has to be done at the same time they do the WLE; it can't be done later, and 2) SLNs are not 100% accurate– even if your sentinel lymph nodes are negative there is a slight (<5%) possibility that the melanoma will recur some day. Negative nodes are reassuring but not a 100% guarantee. But if the sentinel nodes are positive, you for sure will be glad you got them out of there.
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- December 3, 2013 at 9:50 pm
Thats what I am finding from what I am researching…
Too scared really to play the odds, but dont really see why I wouldnt go ahead and do it while we do the procedure in a few weeks…..
Guess its a good thing they offered it up…. better to be safe, I suppose….
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- December 3, 2013 at 9:50 pm
Thats what I am finding from what I am researching…
Too scared really to play the odds, but dont really see why I wouldnt go ahead and do it while we do the procedure in a few weeks…..
Guess its a good thing they offered it up…. better to be safe, I suppose….
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- December 3, 2013 at 9:50 pm
Thats what I am finding from what I am researching…
Too scared really to play the odds, but dont really see why I wouldnt go ahead and do it while we do the procedure in a few weeks…..
Guess its a good thing they offered it up…. better to be safe, I suppose….
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- December 3, 2013 at 9:32 pm
It used to be that a patient would not be offered a SLN unless the Breslow depth was > 0.76 mm. However, because positive SLN are so rare in thin melanomas, in recent years it has become more common not to offer an SLN unless the Breslow depth is >1.0 mm. In other words, if you had gone to another doctor, you might not have even been offered an SLN. So I guess the choice is up to you.
Just remember 2 things: 1) the SLN has to be done at the same time they do the WLE; it can't be done later, and 2) SLNs are not 100% accurate– even if your sentinel lymph nodes are negative there is a slight (<5%) possibility that the melanoma will recur some day. Negative nodes are reassuring but not a 100% guarantee. But if the sentinel nodes are positive, you for sure will be glad you got them out of there.
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- December 3, 2013 at 10:33 pm
This past summer I had a WLE and SLNB (which came back negative) on a 1.2mm deep melanoma on my back with no ulceration, 0 mitosis, mild lymphocytes present, and no regression. Before the procedure, I was told that there was a ~12% chance that the mel had spread and was advised to get the SLNB done by my derm and my oncologist (my derm could have actually just done the WLE in his office if I didn't want the SLNB).
Looking back, I'm glad that I went through it for two reasons:
1) To get a more precise diagnosis and receive the most logical form of care moving forwards AND
2) To help curb my anxiety surrounding a possible recurrence now. I didn't realize it then but its taken a while for my anxiety levels to gradually go down and having a negative SLNB has certainly helped me vs not knowing. As others have stated, the negative SLNB doesn't definitively prove that it won't ever recur but if I hadn't had the SLNB done I'd be dealing with more "what ifs" in my mind right now.
For me, it was an outpatient procedure though it took me a week to get back to 85% (the SLNs were found under my arm, the mel was on my lower back, and I also had a WLE done on a severely atypical mole on my stomach at the same time so I was recovering from incisions on three sides of my body). My WLE scars are still a little sore and itchy though my SLNB scar and site healed much faster.
Please let me know if you have any questions.
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- December 3, 2013 at 11:58 pm
I need to ask what my recovery would be with the nodes, the mole was on my butt, so they think the nodes would be in the groin….
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- December 3, 2013 at 11:58 pm
I need to ask what my recovery would be with the nodes, the mole was on my butt, so they think the nodes would be in the groin….
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- December 3, 2013 at 11:58 pm
I need to ask what my recovery would be with the nodes, the mole was on my butt, so they think the nodes would be in the groin….
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- December 3, 2013 at 10:33 pm
This past summer I had a WLE and SLNB (which came back negative) on a 1.2mm deep melanoma on my back with no ulceration, 0 mitosis, mild lymphocytes present, and no regression. Before the procedure, I was told that there was a ~12% chance that the mel had spread and was advised to get the SLNB done by my derm and my oncologist (my derm could have actually just done the WLE in his office if I didn't want the SLNB).
Looking back, I'm glad that I went through it for two reasons:
1) To get a more precise diagnosis and receive the most logical form of care moving forwards AND
2) To help curb my anxiety surrounding a possible recurrence now. I didn't realize it then but its taken a while for my anxiety levels to gradually go down and having a negative SLNB has certainly helped me vs not knowing. As others have stated, the negative SLNB doesn't definitively prove that it won't ever recur but if I hadn't had the SLNB done I'd be dealing with more "what ifs" in my mind right now.
For me, it was an outpatient procedure though it took me a week to get back to 85% (the SLNs were found under my arm, the mel was on my lower back, and I also had a WLE done on a severely atypical mole on my stomach at the same time so I was recovering from incisions on three sides of my body). My WLE scars are still a little sore and itchy though my SLNB scar and site healed much faster.
Please let me know if you have any questions.
-
- December 3, 2013 at 10:33 pm
This past summer I had a WLE and SLNB (which came back negative) on a 1.2mm deep melanoma on my back with no ulceration, 0 mitosis, mild lymphocytes present, and no regression. Before the procedure, I was told that there was a ~12% chance that the mel had spread and was advised to get the SLNB done by my derm and my oncologist (my derm could have actually just done the WLE in his office if I didn't want the SLNB).
Looking back, I'm glad that I went through it for two reasons:
1) To get a more precise diagnosis and receive the most logical form of care moving forwards AND
2) To help curb my anxiety surrounding a possible recurrence now. I didn't realize it then but its taken a while for my anxiety levels to gradually go down and having a negative SLNB has certainly helped me vs not knowing. As others have stated, the negative SLNB doesn't definitively prove that it won't ever recur but if I hadn't had the SLNB done I'd be dealing with more "what ifs" in my mind right now.
For me, it was an outpatient procedure though it took me a week to get back to 85% (the SLNs were found under my arm, the mel was on my lower back, and I also had a WLE done on a severely atypical mole on my stomach at the same time so I was recovering from incisions on three sides of my body). My WLE scars are still a little sore and itchy though my SLNB scar and site healed much faster.
Please let me know if you have any questions.
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- December 3, 2013 at 10:44 pm
In years past, you probably wouldn't have even been offered the option. I had a .88mm (1 mitosis) lesion 11 years ago and wasn't offered the SNB. Still here, no recurrence. SNB is surgery, requires general anesthesia and can have complications. WLE for most only requires local anesthesia. For me, I was not sorry I didn't have it done – either then or now. Be aware it is only a diagnostic tool has no clinical benefit. In the end, it matters not what answers you get for or against – it's all about what you can live with. YOU are the only important one in this scenario so do what makes YOU comfortable.
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- December 3, 2013 at 11:56 pm
I think I would be ok not having it done, but we have such a history of various cancer in my family, they REALLY want me to have it done…. I'm on the fence…. It's a low risk….. But still a risk….
the benefit would be IF they found it spread, then it could potentially save my life though, vs a wait and see attitude….
but I don't want to do more than necessary….
So conflicted, but hearing these stories is helping….thanks!
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- December 4, 2013 at 12:11 am
THEY are not you! You are the patient. You make the decisions. THEY get to live with the decisions YOU make. There isn't a right or wrong, one answer isn't better than the other. There is no medical benefit to this to justify THEIR anxiety. This cancer isn't the same as any other cancer and you can't base your decisions about melanoma from other cancers. Good luck!
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- December 4, 2013 at 9:19 pm
true! very true!
so much to think on.
i got a call from the hospital about scheduling this – guess this is really happening, huh? LOL
I know, so many more people are worse off than me, but…………….
Thanks again, this does help!
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- December 4, 2013 at 9:19 pm
true! very true!
so much to think on.
i got a call from the hospital about scheduling this – guess this is really happening, huh? LOL
I know, so many more people are worse off than me, but…………….
Thanks again, this does help!
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- December 4, 2013 at 9:19 pm
true! very true!
so much to think on.
i got a call from the hospital about scheduling this – guess this is really happening, huh? LOL
I know, so many more people are worse off than me, but…………….
Thanks again, this does help!
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- December 4, 2013 at 12:11 am
THEY are not you! You are the patient. You make the decisions. THEY get to live with the decisions YOU make. There isn't a right or wrong, one answer isn't better than the other. There is no medical benefit to this to justify THEIR anxiety. This cancer isn't the same as any other cancer and you can't base your decisions about melanoma from other cancers. Good luck!
-
- December 4, 2013 at 12:11 am
THEY are not you! You are the patient. You make the decisions. THEY get to live with the decisions YOU make. There isn't a right or wrong, one answer isn't better than the other. There is no medical benefit to this to justify THEIR anxiety. This cancer isn't the same as any other cancer and you can't base your decisions about melanoma from other cancers. Good luck!
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- December 3, 2013 at 11:56 pm
I think I would be ok not having it done, but we have such a history of various cancer in my family, they REALLY want me to have it done…. I'm on the fence…. It's a low risk….. But still a risk….
the benefit would be IF they found it spread, then it could potentially save my life though, vs a wait and see attitude….
but I don't want to do more than necessary….
So conflicted, but hearing these stories is helping….thanks!
-
- December 3, 2013 at 11:56 pm
I think I would be ok not having it done, but we have such a history of various cancer in my family, they REALLY want me to have it done…. I'm on the fence…. It's a low risk….. But still a risk….
the benefit would be IF they found it spread, then it could potentially save my life though, vs a wait and see attitude….
but I don't want to do more than necessary….
So conflicted, but hearing these stories is helping….thanks!
-
- December 3, 2013 at 10:44 pm
In years past, you probably wouldn't have even been offered the option. I had a .88mm (1 mitosis) lesion 11 years ago and wasn't offered the SNB. Still here, no recurrence. SNB is surgery, requires general anesthesia and can have complications. WLE for most only requires local anesthesia. For me, I was not sorry I didn't have it done – either then or now. Be aware it is only a diagnostic tool has no clinical benefit. In the end, it matters not what answers you get for or against – it's all about what you can live with. YOU are the only important one in this scenario so do what makes YOU comfortable.
-
- December 3, 2013 at 10:44 pm
In years past, you probably wouldn't have even been offered the option. I had a .88mm (1 mitosis) lesion 11 years ago and wasn't offered the SNB. Still here, no recurrence. SNB is surgery, requires general anesthesia and can have complications. WLE for most only requires local anesthesia. For me, I was not sorry I didn't have it done – either then or now. Be aware it is only a diagnostic tool has no clinical benefit. In the end, it matters not what answers you get for or against – it's all about what you can live with. YOU are the only important one in this scenario so do what makes YOU comfortable.
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