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  • Post
    • June 15, 2019 at 2:44 pm
    Melody55
    Participant
      I’m new to the forum. Diagnosed in Dec 2018. Had surgery in Jan 2019. Started Opdivo in March. My melanoma was at the base of my fourth toe. My surgery resulted in the amputation if 3 toes. Currently my scans are good. I’m scheduled for -2 treatments -1 every 4 weeks. I’ve had some side effects but have managed. I’m just so glad to find this forum. It’s hard to find someone to talk to
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    • Replies
        • June 15, 2019 at 4:41 pm
        Gene_S
        Participant
          Welcome to the group everyone wishes they didn’t have to visit but there are many knowledgeable people on this board that can offer help and answer questions. Unfortunately on weekends there are fewer visiting this site.
          • June 15, 2019 at 6:54 pm
          Julie in SoCal
          Participant
            Welcome Melody!

            Sorry you have to have found us, but I’m so glad that you’re here. I trust Opdivo will do the trick for you and you and Mel will never raise its ugly head again.

            This board is slow on the weekends, but it is a wonderful resource for questions and encouragement. We understand that it’s hard to find people to talk with about Mel so talk away!!

            Shalom,
            Julie

            • June 15, 2019 at 6:58 pm
            ed williams
            Participant
              Hi Melody55, I see on your bio that you are at MD Anderson in Houston, which is great news having access to world class experts!!! Good luck with treatment!!!Ed
              • June 15, 2019 at 10:21 pm
              lkb
              Participant
                Melody, I’m glad your Nivo/Opdivo side effects have been manageable. I often use the search box to learn about other people’s side effects and solutions. Welcome to the forum.
                Lisa
                • June 17, 2019 at 6:50 pm
                jbronicki
                Participant
                  Hi Melody,

                  so sorry you had to join this group, facing something like this can be challenging and the first few months or year can be pretty overwhelming. This group is great for information and support! And they will share all their treatment and research experiences. If you ever need to speak to someone in person, don’t hesitate to contact me at [email protected] We live about 15 minutes from MD Anderson in a suburb of Houston. I work at home so am almost always available to run up to MD anderson for cup of coffee or support. My husband had surgery at MD anderson and he sees Dr. Amaria in the melanoma oncology group.

                  My husband had a pretty large breslow depth as well, was 22 mm but they aren’t sure whether it was the primary or metastasized from unknown primary since it had no overlying skin component.

                  Many hugs,
                  Jackie

                  • June 18, 2019 at 9:24 pm
                  MelanomaMike
                  Participant
                    Welcome to Club MRF Melody55, we dont have jackets or a secret hand shake but we do have a wonderful bunch of folks JUST LIKE YOU! so yer not alone!! So your now a Two toed Human ay? 2 toed folks make great friends, a buddy of mine, an Iraq War soldier, had his foot blown to pieces, saved his Big toe (thank god, balance purposes) and toe #4 (counting from big toe down)…
                    But anyways, stick with your scans and treatment, most likely they got ALL the Mel cells and gave you a clean area (margin as its called)….take it easy..
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