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  • Post
    windy
    Participant

      My name is Windy, 43 years old and I have been diagnosed as stage 4 met in stomach.

      The story begins in 2009. I found a mole on my back and was sent to a derm, who sent me to a surgeon. It was found to be melanoma but completlely contained (it had not broken through into my epidural and had clear margins) fast forward to February of this year. I did not feel like myself, very tired, didn't feel well and run down.

      My name is Windy, 43 years old and I have been diagnosed as stage 4 met in stomach.

      The story begins in 2009. I found a mole on my back and was sent to a derm, who sent me to a surgeon. It was found to be melanoma but completlely contained (it had not broken through into my epidural and had clear margins) fast forward to February of this year. I did not feel like myself, very tired, didn't feel well and run down.

      Found my first two tumors on my head in May and was told it was an infection. This happened 2 more times (dx of infection) so I made an appointment with an oncologist (July). Within 7 days she had me diagnosed with sate 4 melanoma contained in the soft tissue and lymph nodes.. Our first attempt at treatment was Silatron. After 5 treatments more and more tumors had appeared. My Oncologist sent me to get an upper endoscopy and found that the cancer had met in my stomach.

      I was sent to MD Anderson for treatment. Biochemical treatment was started with IL2 / Interferon / and 4 chemo drugs. I went into the hospital and stayed for 6 days while the medicine was administered. I made it though 2 treatments and found out that I am BRAF positive.(Nov) I will start the drug tonight before bed. 4 pills in the morning and 4 pills at bed (12 hrs apart).

      Problems that I encountered during bichemical treatment…..

      Dry mouth – used biotene, works great.

      Adverse response to drinking water – vomitting; started drinking flavored water.

      Dehydration – after my first treatment I ended up in the hospital with dehydration. After the second dose my doctor had fluids delivered to my house for 5 days along with a pump. This was EXTREMELY helpful. Eating soups helped also.

      Unquenchable thirst – try eating something sour or salty, sounds stupid but it really works. I used vinegar and salt chips.

       I have lost 40 lbs and most of my muscle tone. I wish that I had forced myself to walk more often during the earlier treatments. The road I have ahead of me is still long, but I can see the light.

      Hope that this was helpful.

       

    Viewing 2 reply threads
    • Replies
        gabsound
        Participant

          Hi Windy,

          Welcome to the bulletin board. I'm so sorry you have to join us here, but there are so many knowledgeable people on here and theyare very supportive.

          I agree with you on the dry mouth-I'm pretty sure the interferon does that for me. Mouth gets so dry I can barely talk-have water with me constantly. Sucking on a hard candy or Lozenge also helps me.

          I'm kicking my self in the pants too about all the things I should have been doing.

          I need to get on it.

          Good luck to you

          Julie in Las Vegas

          gabsound
          Participant

            Hi Windy,

            Welcome to the bulletin board. I'm so sorry you have to join us here, but there are so many knowledgeable people on here and theyare very supportive.

            I agree with you on the dry mouth-I'm pretty sure the interferon does that for me. Mouth gets so dry I can barely talk-have water with me constantly. Sucking on a hard candy or Lozenge also helps me.

            I'm kicking my self in the pants too about all the things I should have been doing.

            I need to get on it.

            Good luck to you

            Julie in Las Vegas

              Laurie from maine
              Participant

                hi,

                I am on braf drug so if you run into ques please post and we can help.  I hope/think you will find its side effects are less harsh.  Except for the people who seem to have the foot pain.  Good luck and let us know how you make out.  THe first week or two I did have nauseau and did qickly start to grow warts.  BEWARE of the sun the sun sensitivity is really bad in some people.

                let us know how you do.

                laurie from maine

                Laurie from maine
                Participant

                  hi,

                  I am on braf drug so if you run into ques please post and we can help.  I hope/think you will find its side effects are less harsh.  Except for the people who seem to have the foot pain.  Good luck and let us know how you make out.  THe first week or two I did have nauseau and did qickly start to grow warts.  BEWARE of the sun the sun sensitivity is really bad in some people.

                  let us know how you do.

                  laurie from maine

                  Laurie from maine
                  Participant

                    hi,

                    I am on braf drug so if you run into ques please post and we can help.  I hope/think you will find its side effects are less harsh.  Except for the people who seem to have the foot pain.  Good luck and let us know how you make out.  THe first week or two I did have nauseau and did qickly start to grow warts.  BEWARE of the sun the sun sensitivity is really bad in some people.

                    let us know how you do.

                    laurie from maine

                  gabsound
                  Participant

                    Hi Windy,

                    Welcome to the bulletin board. I'm so sorry you have to join us here, but there are so many knowledgeable people on here and theyare very supportive.

                    I agree with you on the dry mouth-I'm pretty sure the interferon does that for me. Mouth gets so dry I can barely talk-have water with me constantly. Sucking on a hard candy or Lozenge also helps me.

                    I'm kicking my self in the pants too about all the things I should have been doing.

                    I need to get on it.

                    Good luck to you

                    Julie in Las Vegas

                Viewing 2 reply threads
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