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newly diagnosed

Forums General Melanoma Community newly diagnosed

  • Post
    kathy38
    Participant

      Hello, I was diagnosed on Friday, May 30th. The depth of my lesion was 4.2mm. I had a wide excision on my scalp and a sentinal lymph node biopsy done on Tues June 3rd followed by a PET scan on thur. The lymph node and PET both came back negative. Which is awsome! I am stage 2, and very confused and overwhelmed. I feel like I am a ticking time bomb, just waiting for it to show up somewhere else. Before I found the melanoma my husband and I were planning on moving to the south, Alabama/Georgia area. We live in WI now. I am hesitant to leave now, he thinks I am "cured" and we shouldn't change our plans for "what if" I also heard that health care isn't very good in the south, is there any truth to this?? I'm looking for advise on how to proceed with our future.

    Viewing 14 reply threads
    • Replies
        shanemcdonald99
        Participant

          hi

          I agree with your husband about moving on and living.

           

          I spent the past 2 winters in the south bringing my niece to Moffitt Cancer Research hospital in Tampa.

          They were amazing there and they are doing advanced research with access to all of the clinical trials for all types of cancer.

          I would feel completely comfortable in that area of the south. I am not sure about other areas.

          I am glad to hear your good news about the scans ! Thats wonderful !

          March onward !

          peace to you and many blessings.

           

          Shane

          shanemcdonald99
          Participant

            hi

            I agree with your husband about moving on and living.

             

            I spent the past 2 winters in the south bringing my niece to Moffitt Cancer Research hospital in Tampa.

            They were amazing there and they are doing advanced research with access to all of the clinical trials for all types of cancer.

            I would feel completely comfortable in that area of the south. I am not sure about other areas.

            I am glad to hear your good news about the scans ! Thats wonderful !

            March onward !

            peace to you and many blessings.

             

            Shane

            shanemcdonald99
            Participant

              hi

              I agree with your husband about moving on and living.

               

              I spent the past 2 winters in the south bringing my niece to Moffitt Cancer Research hospital in Tampa.

              They were amazing there and they are doing advanced research with access to all of the clinical trials for all types of cancer.

              I would feel completely comfortable in that area of the south. I am not sure about other areas.

              I am glad to hear your good news about the scans ! Thats wonderful !

              March onward !

              peace to you and many blessings.

               

              Shane

              jbronicki
              Participant

                Hi Kathy,

                Sorry you have to go through this.  My husband was diagnosed in February with a 19 mm melanoma on his shoulder/back.  Had the WLE and SNLB and scans all came back negative.  We are in the wait and see and it's difficult.  But I think the decision for healthcare isn't necessarily about geography.  We happened to move from Michigan to Houston last year so we were grateful to be right by MD Anderson which is top notch in melanoma and all cancer research.  And remember, you can always travel to a great facility.  Also, the south deals with a great deal of melanoma (much like Australia is right now) due to sun exposure.  I think good health care depends on getting to a specialist wherever you are and having a good dermatologist to scan you regularly.  Also, I'm guessing your follow-up includes scans every 3 months for the next two years so they will be on top of your condition.

                 

                Good luck!

                jbronicki
                Participant

                  Hi Kathy,

                  Sorry you have to go through this.  My husband was diagnosed in February with a 19 mm melanoma on his shoulder/back.  Had the WLE and SNLB and scans all came back negative.  We are in the wait and see and it's difficult.  But I think the decision for healthcare isn't necessarily about geography.  We happened to move from Michigan to Houston last year so we were grateful to be right by MD Anderson which is top notch in melanoma and all cancer research.  And remember, you can always travel to a great facility.  Also, the south deals with a great deal of melanoma (much like Australia is right now) due to sun exposure.  I think good health care depends on getting to a specialist wherever you are and having a good dermatologist to scan you regularly.  Also, I'm guessing your follow-up includes scans every 3 months for the next two years so they will be on top of your condition.

                   

                  Good luck!

                  jbronicki
                  Participant

                    Hi Kathy,

                    Sorry you have to go through this.  My husband was diagnosed in February with a 19 mm melanoma on his shoulder/back.  Had the WLE and SNLB and scans all came back negative.  We are in the wait and see and it's difficult.  But I think the decision for healthcare isn't necessarily about geography.  We happened to move from Michigan to Houston last year so we were grateful to be right by MD Anderson which is top notch in melanoma and all cancer research.  And remember, you can always travel to a great facility.  Also, the south deals with a great deal of melanoma (much like Australia is right now) due to sun exposure.  I think good health care depends on getting to a specialist wherever you are and having a good dermatologist to scan you regularly.  Also, I'm guessing your follow-up includes scans every 3 months for the next two years so they will be on top of your condition.

                     

                    Good luck!

                    kathy_brian
                    Participant

                      Hi Kathy, my husband was diagnosed with stage 3 melanoma in April. He had a large resection done on his back, sentinal nodes in both armpits came back positive. PET scan showed activity in both armpits so he had a bilateral axillary lymph node dissection two weeks ago. As of right now, all biopsy results have come back negative for melanoma in all the nodes they took!!!  My point is this…He retired from New York state government in January and moved here to Tennessee. We are quite close to Nasville and have been going to the Sarah Cannon Cancer Center. Vanderbilt Hospital is also in Nasville with a great cancer center. Don't hesitate to move south! 

                      Good luck to you!!

                      kathy_brian
                      Participant

                        Hi Kathy, my husband was diagnosed with stage 3 melanoma in April. He had a large resection done on his back, sentinal nodes in both armpits came back positive. PET scan showed activity in both armpits so he had a bilateral axillary lymph node dissection two weeks ago. As of right now, all biopsy results have come back negative for melanoma in all the nodes they took!!!  My point is this…He retired from New York state government in January and moved here to Tennessee. We are quite close to Nasville and have been going to the Sarah Cannon Cancer Center. Vanderbilt Hospital is also in Nasville with a great cancer center. Don't hesitate to move south! 

                        Good luck to you!!

                        kathy_brian
                        Participant

                          Hi Kathy, my husband was diagnosed with stage 3 melanoma in April. He had a large resection done on his back, sentinal nodes in both armpits came back positive. PET scan showed activity in both armpits so he had a bilateral axillary lymph node dissection two weeks ago. As of right now, all biopsy results have come back negative for melanoma in all the nodes they took!!!  My point is this…He retired from New York state government in January and moved here to Tennessee. We are quite close to Nasville and have been going to the Sarah Cannon Cancer Center. Vanderbilt Hospital is also in Nasville with a great cancer center. Don't hesitate to move south! 

                          Good luck to you!!

                          Tim–MRF
                          Guest

                            Kathy:

                            A depth of 4.2 mm is fairly deep. Do you know if it was ulcerated or not? That has an impact on how to follow you in the future.

                            Regarding treatment centers, with the advent of new and better drugs for treating metastatic melanoma, more doctors are working in the space. Even without that, you can find good melanoma centers scattered throughout the country. Jeff Sosman at Vanderbilt is a leader in the field. The team at Moffitt in Tampa are very good and have several thought leaders. Emory has a good program, as does UNC. A number of options–none of which, hopefully–you will ever need!

                            Tim–MRF

                            Tim–MRF
                            Guest

                              Kathy:

                              A depth of 4.2 mm is fairly deep. Do you know if it was ulcerated or not? That has an impact on how to follow you in the future.

                              Regarding treatment centers, with the advent of new and better drugs for treating metastatic melanoma, more doctors are working in the space. Even without that, you can find good melanoma centers scattered throughout the country. Jeff Sosman at Vanderbilt is a leader in the field. The team at Moffitt in Tampa are very good and have several thought leaders. Emory has a good program, as does UNC. A number of options–none of which, hopefully–you will ever need!

                              Tim–MRF

                              Tim–MRF
                              Guest

                                Kathy:

                                A depth of 4.2 mm is fairly deep. Do you know if it was ulcerated or not? That has an impact on how to follow you in the future.

                                Regarding treatment centers, with the advent of new and better drugs for treating metastatic melanoma, more doctors are working in the space. Even without that, you can find good melanoma centers scattered throughout the country. Jeff Sosman at Vanderbilt is a leader in the field. The team at Moffitt in Tampa are very good and have several thought leaders. Emory has a good program, as does UNC. A number of options–none of which, hopefully–you will ever need!

                                Tim–MRF

                                POW
                                Participant

                                  Kathy-

                                  If it were me, I would go ahead and move to someplace congenial. You have to go ahead and live your life with joy and optimism even if you do worry about a possible cancer recurrence. However, I would make sure that wherever I moved was within easy driving distance of a top-notch melanoma center "just in case".

                                  We live in Atlanta. I would say that the best melanoma center in the southeast is Moffitt in Tampa. Duke, UNC and Wake Forest (all in North Carolina) are also good. Sarah Cannon Cancer Center in Nashville is good. Emory– not so good in my opinion (I tend to look carefully at what melanoma clinical trials a facility offers and where their doctors publish. To me, Emory is second string.) UAB is a good cancer center but I don't know if melanoma is one of their specialities.

                                  I suggest that you look for NCI designated "Comprehensive Cancer Centers" on the NCI web site http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-center and then read up about any that interest you. Ask for input from the people here, too.

                                   

                                   

                                   

                                    kathy38
                                    Participant

                                      Thank you everyone for all of the information and opinions. As you all know this is all very overwhelming. Tim, my lesion was not ulcerated and didn't have any dermal spread. My doctors are very happy with all of the results so far. It is very encouraging to hear that there are many good cancer centers where we will most likely be relocating.

                                      kathy38
                                      Participant

                                        Thank you everyone for all of the information and opinions. As you all know this is all very overwhelming. Tim, my lesion was not ulcerated and didn't have any dermal spread. My doctors are very happy with all of the results so far. It is very encouraging to hear that there are many good cancer centers where we will most likely be relocating.

                                        kathy38
                                        Participant

                                          Thank you everyone for all of the information and opinions. As you all know this is all very overwhelming. Tim, my lesion was not ulcerated and didn't have any dermal spread. My doctors are very happy with all of the results so far. It is very encouraging to hear that there are many good cancer centers where we will most likely be relocating.

                                        POW
                                        Participant

                                          Kathy-

                                          If it were me, I would go ahead and move to someplace congenial. You have to go ahead and live your life with joy and optimism even if you do worry about a possible cancer recurrence. However, I would make sure that wherever I moved was within easy driving distance of a top-notch melanoma center "just in case".

                                          We live in Atlanta. I would say that the best melanoma center in the southeast is Moffitt in Tampa. Duke, UNC and Wake Forest (all in North Carolina) are also good. Sarah Cannon Cancer Center in Nashville is good. Emory– not so good in my opinion (I tend to look carefully at what melanoma clinical trials a facility offers and where their doctors publish. To me, Emory is second string.) UAB is a good cancer center but I don't know if melanoma is one of their specialities.

                                          I suggest that you look for NCI designated "Comprehensive Cancer Centers" on the NCI web site http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-center and then read up about any that interest you. Ask for input from the people here, too.

                                           

                                           

                                           

                                          POW
                                          Participant

                                            Kathy-

                                            If it were me, I would go ahead and move to someplace congenial. You have to go ahead and live your life with joy and optimism even if you do worry about a possible cancer recurrence. However, I would make sure that wherever I moved was within easy driving distance of a top-notch melanoma center "just in case".

                                            We live in Atlanta. I would say that the best melanoma center in the southeast is Moffitt in Tampa. Duke, UNC and Wake Forest (all in North Carolina) are also good. Sarah Cannon Cancer Center in Nashville is good. Emory– not so good in my opinion (I tend to look carefully at what melanoma clinical trials a facility offers and where their doctors publish. To me, Emory is second string.) UAB is a good cancer center but I don't know if melanoma is one of their specialities.

                                            I suggest that you look for NCI designated "Comprehensive Cancer Centers" on the NCI web site http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-center and then read up about any that interest you. Ask for input from the people here, too.

                                             

                                             

                                             

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