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Newly diagnosed – “early stage”

Forums Cutaneous Melanoma Community Newly diagnosed – “early stage”

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    waluso
    Participant

      I was recently diagnosed and have a few questions. I went to a local dermatologist to get an "age spot" taken off my face and a mole check while I was at it. She did a punch biopsy of the spot on my face as well as a mole on my back (it's fairly large – maybe 3/4" wide) on 3/15. I've had a few mole checks in the past (I have LOTS of moles, fair skin, too many burns in the past) and this was the most cursory check I've had. Anyway, she said she was on vacation this past week so would get back to me when she returned unless something came up (which was not expected). So I get a call Wednesday and the nurse tells me the mole on my back is "early stage" melanoma. I was a bit shocked and at work and didn't think to ask more than what stage. The nurse said there was no stage because it was early and the dr would just cut it out and I'd come back for more regular checks after that. Made an appointment for a week later to see the dr. I googled after that and learned more about what to ask. Called the next day and she said the pathology report said "invasive melanoma", 0.3MM, and no ulceration. Overall I know this is good (maybe stage 1A?). Nurse scheduled surgery for 4/17 because that was the earliest they could get me in. I'm not feeling very comfortable about this because (1) I wasn't that thrilled with the check in the first place, (2) the nurse didn't seem to know what she was talking about and was minimizing my concerns/questions, and (3) the dr contradicted herself on how to address the other mole, which I won't go into here. Should I just have this dr take it off and be done with it, or find a new dr?  This one is local and convenient but my confidence is low. On the other hand, if it's really not a big deal maybe it doens't matter? Also, is 3-4 weeks too long to wait? I'm also going to Hawaii next week on vacation with my kids. I have no idea how much to be concerned about sun exposure while there.

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        Janner
        Participant

          Stage 1a, yes.  Wait is not a problem.  Go have fun in Hawaii and deal with this when you get home.  Goal is to keep from getting color so wear sun protection clothing or sunscreen.   That's pretty much standard for anyone whether or not you've had melanoma.  Damage is already done – watch your kids!  I've found that nurses are not always the best source of info when it comes to melanoma.  Their job really isn't to interpret pathology reports for you.  Since you don't go into more details about the doctor, hard to comment.  The wide excision is the next step and you need someone to take it off.  You get to decide if you want to look around or stick with the same doc.  I will say one thing, I had a rocky start with my current derm.  Didn't take off I lesion I wanted.  6 months later, I insisted.  Did a shave because he was certain it wasn't melanoma.  Ate his words.  But since then, he has not trusted his own opinion, asks mine, works with me and has become a great advocate.  I fight to keep him because his patients are offloaded to others as he does mostly surgery now.  Just my experience, your mileage may vary.

           

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