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No Stage III – Radiation then ?? – 3 options given
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No Stage III – Radiation then ?? – 3 options given

› Forums › General Melanoma Community › No Stage III – Radiation then ?? – 3 options given

  • Post
    • November 3, 2016 at 12:16 am
    Toddmichael
    Participant

      Hello all – full node discection last week – 4 nodes malignant of 46 – Love Moffitt! – Radiation then 3 options… 1.  Interfuron 

      2. Pilimumab

      3. Trial – Keytruda – which right now, i'm leaning toward.

      Thanks for any opinions, input.

       

      Todd Guzy

       

    Viewing 11 reply threads
    • Replies
        • November 3, 2016 at 1:50 am
        SOLE
        Participant

          I would get Keytruda if you can get in the trial.

          • November 3, 2016 at 1:50 am
          SOLE
          Participant

            I would get Keytruda if you can get in the trial.

            • November 3, 2016 at 1:50 am
            SOLE
            Participant

              I would get Keytruda if you can get in the trial.

              • November 3, 2016 at 2:08 am
              jennunicorn
              Participant

                You are leaning toward a good option, of those I would choose the trial as well. Less toxicity than Ipi. Interferon shouldn't even be an option. Sounds like you're on the right track.

                • November 3, 2016 at 2:08 am
                jennunicorn
                Participant

                  You are leaning toward a good option, of those I would choose the trial as well. Less toxicity than Ipi. Interferon shouldn't even be an option. Sounds like you're on the right track.

                  • November 3, 2016 at 2:08 am
                  jennunicorn
                  Participant

                    You are leaning toward a good option, of those I would choose the trial as well. Less toxicity than Ipi. Interferon shouldn't even be an option. Sounds like you're on the right track.

                    • November 3, 2016 at 9:39 am
                    debwray
                    Participant

                      Hi,

                      Just said much the same on another post- Keytruda – less toxicity and better results than ipi on its own- can add ipi later if needed. Think you have three votes for Keytruda as treatment of choice.

                      Sorry you are having to deal with all of this. It is rough in so many ways.

                      best of luck for your treatment

                      Deb

                      • November 3, 2016 at 9:39 am
                      debwray
                      Participant

                        Hi,

                        Just said much the same on another post- Keytruda – less toxicity and better results than ipi on its own- can add ipi later if needed. Think you have three votes for Keytruda as treatment of choice.

                        Sorry you are having to deal with all of this. It is rough in so many ways.

                        best of luck for your treatment

                        Deb

                        • November 3, 2016 at 9:39 am
                        debwray
                        Participant

                          Hi,

                          Just said much the same on another post- Keytruda – less toxicity and better results than ipi on its own- can add ipi later if needed. Think you have three votes for Keytruda as treatment of choice.

                          Sorry you are having to deal with all of this. It is rough in so many ways.

                          best of luck for your treatment

                          Deb

                          • November 3, 2016 at 12:23 pm
                          Bubbles
                          Participant

                            Sorry you are going through this. I agree with the plan for Keytruda…WITH radiation! I agree with the others re Keytruda (an anti-PD1 product) for the same reasons. And while radiation alone  doesn't do much in melanoma…WITH….immunotherapy (which is the category of the drugs you are looking at) the results are better than any product alone. Here's a recent post I put up with several links within:

                            http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/one-more-timebetter-responses-when.html

                            On another note: I participated in an Opdivo (the other anti-PD1 product that is basically the same as Keytruda) trial out of Mofitt, making trips down there for 5 years! The nurses and staff are amazing.

                            I wish you well.  Celesye

                            • November 3, 2016 at 12:23 pm
                            Bubbles
                            Participant

                              Sorry you are going through this. I agree with the plan for Keytruda…WITH radiation! I agree with the others re Keytruda (an anti-PD1 product) for the same reasons. And while radiation alone  doesn't do much in melanoma…WITH….immunotherapy (which is the category of the drugs you are looking at) the results are better than any product alone. Here's a recent post I put up with several links within:

                              http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/one-more-timebetter-responses-when.html

                              On another note: I participated in an Opdivo (the other anti-PD1 product that is basically the same as Keytruda) trial out of Mofitt, making trips down there for 5 years! The nurses and staff are amazing.

                              I wish you well.  Celesye

                              • November 3, 2016 at 12:23 pm
                              Bubbles
                              Participant

                                Sorry you are going through this. I agree with the plan for Keytruda…WITH radiation! I agree with the others re Keytruda (an anti-PD1 product) for the same reasons. And while radiation alone  doesn't do much in melanoma…WITH….immunotherapy (which is the category of the drugs you are looking at) the results are better than any product alone. Here's a recent post I put up with several links within:

                                http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/one-more-timebetter-responses-when.html

                                On another note: I participated in an Opdivo (the other anti-PD1 product that is basically the same as Keytruda) trial out of Mofitt, making trips down there for 5 years! The nurses and staff are amazing.

                                I wish you well.  Celesye

                                  • November 4, 2016 at 1:26 pm
                                  Geoff Linschoten
                                  Participant

                                    I would pull for Keytruda as well…I'm stage III and in Canada it seems our only option now is Interfuron (which I am not doing). Best of luck on your decision (at least you have one) and your health.

                                    • November 4, 2016 at 1:26 pm
                                    Geoff Linschoten
                                    Participant

                                      I would pull for Keytruda as well…I'm stage III and in Canada it seems our only option now is Interfuron (which I am not doing). Best of luck on your decision (at least you have one) and your health.

                                      • November 4, 2016 at 1:26 pm
                                      Geoff Linschoten
                                      Participant

                                        I would pull for Keytruda as well…I'm stage III and in Canada it seems our only option now is Interfuron (which I am not doing). Best of luck on your decision (at least you have one) and your health.

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