Nodule or scar tissue

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Nodule or scar tissue

This topic has 4 replies, 2 voices, and was last updated 7 years, 8 months ago by uccio2014.

Post

- October 30, 2016 at 3:46 pm
- Quote
Bruce Davis
Participant
Just felt I had to share my experience as I read a simular one about a year ago or so that gave me inspiration. I've had it easier than a lot of stage 4 people. Interleukin 2 wasn't much fun and either was the "6 months to a year " to live diagnosis from 3 sets of Oncologists in 2011. No primary location was ever found. A nodule appeared in the left arm pit after "leaning" on crutches for 6 weeks following a hip resurfacing.The 6 cm nodule along with the remaining lymph nodes were removed and radiation followed.About 2 months later nodules presented in the lungs. The largest being 5 cm. Being BRAF+ I started Zelboraf in September of 2011. After a few months the CT scan showed the nodules shrinking. After 4 years and 9 months of Zelboraf, the Oncologist let me stop taking it. A 3 month follow-up CT scan showed no progression of disease. The CT images might be mimicking small nodules but could represent scar tissue. I heard the protocol now is to stop Zelboraf after 2 years.

Being off the Zelboraf for 3 months most of the side effects are gone and I'm getting back to normal. I realize melanoma could resurface at any time, but I'm very thankful for every day! Hope this information helps.

Bruce

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Replies

- - October 31, 2016 at 4:03 pm
  - Quote
  SOLE
  Participant
  Thank you Bruce for this hindsight.
  
  I havent crossed stage 4 (fingers crossed) but knowing about your response to that combo gives me hope.
  
  When would you be considered a complete responder? In a year? or else?
  
  Take good care
- - October 31, 2016 at 4:03 pm
  - Quote
  SOLE
  Participant
  Thank you Bruce for this hindsight.
  
  I havent crossed stage 4 (fingers crossed) but knowing about your response to that combo gives me hope.
  
  When would you be considered a complete responder? In a year? or else?
  
  Take good care
- - October 31, 2016 at 4:03 pm
  - Quote
  SOLE
  Participant
  Thank you Bruce for this hindsight.
  
  I havent crossed stage 4 (fingers crossed) but knowing about your response to that combo gives me hope.
  
  When would you be considered a complete responder? In a year? or else?
  
  Take good care
- - September 21, 2017 at 3:56 pm
  - Quote
  uccio2014
  Participant
  In Italy there was a test on NED from zelboraf trying to stop it . It have no success with illness return. Fortunatelly starting again z restart the cure effect. At least it was what my wife oncologist told us 2 years ago

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