› Forums › General Melanoma Community › NOT ENOUGH MATERIAL to test? Has anyone had this problem?
- This topic has 6 replies, 2 voices, and was last updated 12 years, 8 months ago by
Harry in Fair Oaks.
- Post
-
- September 6, 2012 at 9:05 pm
My SIL has been diagnosed with Stage IV – melanoma – they did a bone (marrow?) biopsy last Thursday. They FINALLY called her today and told her they didn't have enough of a sample to definitively say it was melanoma in her spine (this is where they saw the 'areas of concern') They were willing to say it was malignant, but what does THAT mean? I know that means cancer….
My SIL has been diagnosed with Stage IV – melanoma – they did a bone (marrow?) biopsy last Thursday. They FINALLY called her today and told her they didn't have enough of a sample to definitively say it was melanoma in her spine (this is where they saw the 'areas of concern') They were willing to say it was malignant, but what does THAT mean? I know that means cancer….
So now they want her to have ANOTHER bone biopsy. Seriously???? My brother was told there would be a technician there at the time of the procedure to ensure they had what they needed. Also, they don't seem to be in any hurry to schedule her, although until all these results come in, she can't start any type of trial or treatment. I am SURE other people have encountered this, but am wondering how others have dealt with this? It is at the low end frustrating…… I want to scream to these people! She needs to start SOME type of treatment. She last had radiation on the original site in June, and was supposed to start a trial in August, but found out about the spine and was told that she could not be part of the trial. There are several other trials at Moffit, but she can't start them until the results are in. Is there a HURRY UP button to push somewhere? This is a matter of life and death (in my opinion)
- Replies
-
-
- September 7, 2012 at 12:58 am
I would think the best "hurry up button" would be he oncologist. Be the squeaky wheel there and if he/she wants to get it done it will be done.
So sorry she's facing thing this.I hate it when they treat people like this.
Good Luck,
Mary
Stage 3
-
- September 7, 2012 at 12:58 am
I would think the best "hurry up button" would be he oncologist. Be the squeaky wheel there and if he/she wants to get it done it will be done.
So sorry she's facing thing this.I hate it when they treat people like this.
Good Luck,
Mary
Stage 3
-
- September 7, 2012 at 12:58 am
I would think the best "hurry up button" would be he oncologist. Be the squeaky wheel there and if he/she wants to get it done it will be done.
So sorry she's facing thing this.I hate it when they treat people like this.
Good Luck,
Mary
Stage 3
-
- September 7, 2012 at 4:12 am
It can be hard to take enough "good" material from bone mets. Did your SIL have a CT guided biopsy? It should be done by a skilled intervention radiologist (an MD), not a tech.
I had such a biopsy (CT guided, performed by a MD radiologist) done last year on my clavicle. It was basically a core sample of bone mixed with tumor, and it was not an optimal sample. As it happened, I grew a nice fat soft tissue tumor in my cheek within a couple of weeks – it was much easier to biopsy.
I hope the next biopsy of your SIL yields a much better sample. I know this is frustrating – she must keep at them to get it done. The one thing I've learned from this journey is that the patient must always advocate for himself/herself.
Best wishes,
Harry
-
- September 7, 2012 at 4:12 am
It can be hard to take enough "good" material from bone mets. Did your SIL have a CT guided biopsy? It should be done by a skilled intervention radiologist (an MD), not a tech.
I had such a biopsy (CT guided, performed by a MD radiologist) done last year on my clavicle. It was basically a core sample of bone mixed with tumor, and it was not an optimal sample. As it happened, I grew a nice fat soft tissue tumor in my cheek within a couple of weeks – it was much easier to biopsy.
I hope the next biopsy of your SIL yields a much better sample. I know this is frustrating – she must keep at them to get it done. The one thing I've learned from this journey is that the patient must always advocate for himself/herself.
Best wishes,
Harry
-
- September 7, 2012 at 4:12 am
It can be hard to take enough "good" material from bone mets. Did your SIL have a CT guided biopsy? It should be done by a skilled intervention radiologist (an MD), not a tech.
I had such a biopsy (CT guided, performed by a MD radiologist) done last year on my clavicle. It was basically a core sample of bone mixed with tumor, and it was not an optimal sample. As it happened, I grew a nice fat soft tissue tumor in my cheek within a couple of weeks – it was much easier to biopsy.
I hope the next biopsy of your SIL yields a much better sample. I know this is frustrating – she must keep at them to get it done. The one thing I've learned from this journey is that the patient must always advocate for himself/herself.
Best wishes,
Harry
-
- You must be logged in to reply to this topic.