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Now they are switching my daughter to Yervoy-Obdivo – any input appreciated
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Now they are switching my daughter to Yervoy-Obdivo – any input appreciated

› Forums › General Melanoma Community › Now they are switching my daughter to Yervoy-Obdivo – any input appreciated

  • Post
    • October 30, 2015 at 3:42 pm
    Jacqueh27
    Participant

      My daughter has had Yervoy already and now has had 7 infusions of Keytruda. The Keytruda has kept it from spreading, but the tumor is not shrinking. She is BRAF positive but is being allowed to do this treatment. Has anybody had success with tumor shrinkage with this combo? How were the side effects?

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    • Replies
        • October 30, 2015 at 6:24 pm
        arthurjedi007
        Participant

          Wow. Sounds like they want to hit that large tumor hard. Not easy to get insurance to approve that combo especially for non treatment naive patients.

          That combo has the best response rate but some severe side affects. I don't have personal experience so I cant answer your questions but others do. Good luck.

          Artie

          • October 30, 2015 at 6:24 pm
          arthurjedi007
          Participant

            Wow. Sounds like they want to hit that large tumor hard. Not easy to get insurance to approve that combo especially for non treatment naive patients.

            That combo has the best response rate but some severe side affects. I don't have personal experience so I cant answer your questions but others do. Good luck.

            Artie

            • October 30, 2015 at 6:24 pm
            arthurjedi007
            Participant

              Wow. Sounds like they want to hit that large tumor hard. Not easy to get insurance to approve that combo especially for non treatment naive patients.

              That combo has the best response rate but some severe side affects. I don't have personal experience so I cant answer your questions but others do. Good luck.

              Artie

              • November 2, 2015 at 4:46 pm
              JuTMSY4
              Participant

                I have a similar response level as your daughter.  I would definitely consider the combo and my Doctor discussed it last time I saw her a few weeks ago.  

                Can't speak to the experience, but I would do it.  I have very mild side effects on both Keytruda and Ipi.  I've heard the side effects are worst with the combo though.  

                • November 2, 2015 at 4:46 pm
                JuTMSY4
                Participant

                  I have a similar response level as your daughter.  I would definitely consider the combo and my Doctor discussed it last time I saw her a few weeks ago.  

                  Can't speak to the experience, but I would do it.  I have very mild side effects on both Keytruda and Ipi.  I've heard the side effects are worst with the combo though.  

                  • November 2, 2015 at 4:46 pm
                  JuTMSY4
                  Participant

                    I have a similar response level as your daughter.  I would definitely consider the combo and my Doctor discussed it last time I saw her a few weeks ago.  

                    Can't speak to the experience, but I would do it.  I have very mild side effects on both Keytruda and Ipi.  I've heard the side effects are worst with the combo though.  

                    • November 7, 2015 at 1:45 pm
                    Jacqueh27
                    Participant

                      They are being aggressive as she is young and all of her blood levels are completely normal. She had her first three hour infusion of both on Monday. The first two days after, she felt fatigue and a little flu type symptoms, appetitie low but as of yesterday she felt completelfy normal again! The best thing, is our insurance is covering it!! She had Yervoy at the beginnning of year which shrunk the tumor by 6cm so we are hoping this is the perfect combo. She will have a PET after three more infusions to see if this is effective. I believe it will be. 

                      • November 7, 2015 at 1:45 pm
                      Jacqueh27
                      Participant

                        They are being aggressive as she is young and all of her blood levels are completely normal. She had her first three hour infusion of both on Monday. The first two days after, she felt fatigue and a little flu type symptoms, appetitie low but as of yesterday she felt completelfy normal again! The best thing, is our insurance is covering it!! She had Yervoy at the beginnning of year which shrunk the tumor by 6cm so we are hoping this is the perfect combo. She will have a PET after three more infusions to see if this is effective. I believe it will be. 

                        • November 7, 2015 at 1:45 pm
                        Jacqueh27
                        Participant

                          They are being aggressive as she is young and all of her blood levels are completely normal. She had her first three hour infusion of both on Monday. The first two days after, she felt fatigue and a little flu type symptoms, appetitie low but as of yesterday she felt completelfy normal again! The best thing, is our insurance is covering it!! She had Yervoy at the beginnning of year which shrunk the tumor by 6cm so we are hoping this is the perfect combo. She will have a PET after three more infusions to see if this is effective. I believe it will be. 

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