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Obamacare / Affordable Care Act

Forums General Melanoma Community Obamacare / Affordable Care Act

  • Post
    jpfletchjr
    Participant

      I recently lamented the lack of coverage under the Affordable Care Act as a reply to an earlier post.  For us, we would not have access to an oncologist nor would Ipilimumab be a covered therapy in our exchange. I have started looking for coverage in other states where we have family and plan on moving our residence if I find a plan that will actually offer coverage with qualified doctors as well as for the appropriate therapy.  If anyone has experience with any "exchange" that provides such coverage I would love to read about your experience.

      This is not a political statement, as I believe several features of the ACA are laudable. I just don't see where the coverage being offered is of any use for those of us that will be forced into the new plans.

       

    Viewing 8 reply threads
    • Replies
        shanemcdonald99
        Participant

          Hi

          I am in NY and I would not be getting any teatment if it were not for the Affordable Care Act.

          Last summer, My employer bumped me from insurance because you had to work 6 days to be considered full time. Thats about 60 hours. I was very fatigued at the time and could only work 5 days.

          Anyway, when I got injured at work, and the radiologist found metastisis in my bones, I was able to get great insurance right away and everything has been covered and I am very grateful for it.

          Without that new law, I would have been denied coverage due to pre existing condition. I was literally one of the first beneficiaries of the law.

           

          Shane

            jpfletchjr
            Participant

              Shane,

              That is very encouraging to hear.  I am only starting my search for coverage and hope to find the type of policy that will afford my wife the doctors and meds that our plan here will not provide.  If we have to move to NY or some other state to get her the needed help I will do so.  Hopefully I will read about other success stories to guide us.

              All the best in your journey to recovery.

               

              John

              jpfletchjr
              Participant

                Shane,

                That is very encouraging to hear.  I am only starting my search for coverage and hope to find the type of policy that will afford my wife the doctors and meds that our plan here will not provide.  If we have to move to NY or some other state to get her the needed help I will do so.  Hopefully I will read about other success stories to guide us.

                All the best in your journey to recovery.

                 

                John

                jpfletchjr
                Participant

                  Shane,

                  That is very encouraging to hear.  I am only starting my search for coverage and hope to find the type of policy that will afford my wife the doctors and meds that our plan here will not provide.  If we have to move to NY or some other state to get her the needed help I will do so.  Hopefully I will read about other success stories to guide us.

                  All the best in your journey to recovery.

                   

                  John

                shanemcdonald99
                Participant

                  Hi

                  I am in NY and I would not be getting any teatment if it were not for the Affordable Care Act.

                  Last summer, My employer bumped me from insurance because you had to work 6 days to be considered full time. Thats about 60 hours. I was very fatigued at the time and could only work 5 days.

                  Anyway, when I got injured at work, and the radiologist found metastisis in my bones, I was able to get great insurance right away and everything has been covered and I am very grateful for it.

                  Without that new law, I would have been denied coverage due to pre existing condition. I was literally one of the first beneficiaries of the law.

                   

                  Shane

                  shanemcdonald99
                  Participant

                    Hi

                    I am in NY and I would not be getting any teatment if it were not for the Affordable Care Act.

                    Last summer, My employer bumped me from insurance because you had to work 6 days to be considered full time. Thats about 60 hours. I was very fatigued at the time and could only work 5 days.

                    Anyway, when I got injured at work, and the radiologist found metastisis in my bones, I was able to get great insurance right away and everything has been covered and I am very grateful for it.

                    Without that new law, I would have been denied coverage due to pre existing condition. I was literally one of the first beneficiaries of the law.

                     

                    Shane

                    Bubbles
                    Participant

                      The Affordable Care Act allows all of us with melanoma, or any other disease process, to purchase insurance or change insurance plans; something we could not do before due to our "pre-existing condition".  Plans offered range from Aetna to Blue Cross to Humana, etc. Some geographical areas offer limited choices due to the power of the insurance companies…something the ACA didn't go far enough to bring under control in my opinion. Additionally, the ACA act makes it illegal for ANY insurance company to refuse to cover the costs of participation in a clinical trial. A very important requirement for many on this forum. My husband had to wait to retire in order to keep me on his insurance, until the Act went into effect, due to my "pre-existing".  Despite having the money and working on my own, my diagnosis as a Stage IV melanoma patient prevented me from PURCHASING my own insurance. Since it has been enacted, I have been able to purchase a Blue Cross plan for myself and my children in TN, that was cheaper than the BCBS plan my husband was paying for, and it has continued to cover their needs and the fees related to my Nivo trial at Moffitt in Tampa.  Additionally, if you qualify, you can get assistance in paying for your plan thanks to Obama Care! Mine is not a political statement either! I provide medical care for children..living on both sides of this debate as it were…and see this as the best thing that has happened for all patients in a long time.  That being said…I hate insurance companies…equally and with a passion! Wishing you my best. Celeste

                      Bubbles
                      Participant

                        The Affordable Care Act allows all of us with melanoma, or any other disease process, to purchase insurance or change insurance plans; something we could not do before due to our "pre-existing condition".  Plans offered range from Aetna to Blue Cross to Humana, etc. Some geographical areas offer limited choices due to the power of the insurance companies…something the ACA didn't go far enough to bring under control in my opinion. Additionally, the ACA act makes it illegal for ANY insurance company to refuse to cover the costs of participation in a clinical trial. A very important requirement for many on this forum. My husband had to wait to retire in order to keep me on his insurance, until the Act went into effect, due to my "pre-existing".  Despite having the money and working on my own, my diagnosis as a Stage IV melanoma patient prevented me from PURCHASING my own insurance. Since it has been enacted, I have been able to purchase a Blue Cross plan for myself and my children in TN, that was cheaper than the BCBS plan my husband was paying for, and it has continued to cover their needs and the fees related to my Nivo trial at Moffitt in Tampa.  Additionally, if you qualify, you can get assistance in paying for your plan thanks to Obama Care! Mine is not a political statement either! I provide medical care for children..living on both sides of this debate as it were…and see this as the best thing that has happened for all patients in a long time.  That being said…I hate insurance companies…equally and with a passion! Wishing you my best. Celeste

                        Bubbles
                        Participant

                          The Affordable Care Act allows all of us with melanoma, or any other disease process, to purchase insurance or change insurance plans; something we could not do before due to our "pre-existing condition".  Plans offered range from Aetna to Blue Cross to Humana, etc. Some geographical areas offer limited choices due to the power of the insurance companies…something the ACA didn't go far enough to bring under control in my opinion. Additionally, the ACA act makes it illegal for ANY insurance company to refuse to cover the costs of participation in a clinical trial. A very important requirement for many on this forum. My husband had to wait to retire in order to keep me on his insurance, until the Act went into effect, due to my "pre-existing".  Despite having the money and working on my own, my diagnosis as a Stage IV melanoma patient prevented me from PURCHASING my own insurance. Since it has been enacted, I have been able to purchase a Blue Cross plan for myself and my children in TN, that was cheaper than the BCBS plan my husband was paying for, and it has continued to cover their needs and the fees related to my Nivo trial at Moffitt in Tampa.  Additionally, if you qualify, you can get assistance in paying for your plan thanks to Obama Care! Mine is not a political statement either! I provide medical care for children..living on both sides of this debate as it were…and see this as the best thing that has happened for all patients in a long time.  That being said…I hate insurance companies…equally and with a passion! Wishing you my best. Celeste

                          ecc26
                          Participant

                            There are a lot of good things about the law, but the implementation is still VERY variable by state with a lot of  states refusing to embrace it, leaving its citizens with fewer and often less attractive options. The inequity is very unfortunate, but is the reality. Many of them even refused the medicaid expansion on the grounds of budgetary concerns even thought the federal gvt was covering the cost of the expansion, not the state. In states where the expansion was accepted and enacted and where the states set up their own insurance exchanges the law is working very well and helping a lot of people. in states that refused the expansion and did not set up their own exchanges the law is far more restrictive and many people are still struggling. Do you have a local or regional "navigator" who can help you with the law and what's available to you? Or a local or regional cancer resource center with people who may be able to help? I feel quite lucky that the town I live in has a volunteer cancer resource center that is excellent- they have helped me with insurance issues, finding ways to reduce travel costs (via state, local, and federal programs or funds), and more recently helping to coordinate free flights through programs like Corporate Angels, etc as I have to travel out of state every 3 weeks for treatment. They have so much more information than I ever would have been able to find on my own. Even if all you need is better/more information, it's worth looking into- there's nothing wrong with accepting a little help now and then when you need it. 

                            ecc26
                            Participant

                              There are a lot of good things about the law, but the implementation is still VERY variable by state with a lot of  states refusing to embrace it, leaving its citizens with fewer and often less attractive options. The inequity is very unfortunate, but is the reality. Many of them even refused the medicaid expansion on the grounds of budgetary concerns even thought the federal gvt was covering the cost of the expansion, not the state. In states where the expansion was accepted and enacted and where the states set up their own insurance exchanges the law is working very well and helping a lot of people. in states that refused the expansion and did not set up their own exchanges the law is far more restrictive and many people are still struggling. Do you have a local or regional "navigator" who can help you with the law and what's available to you? Or a local or regional cancer resource center with people who may be able to help? I feel quite lucky that the town I live in has a volunteer cancer resource center that is excellent- they have helped me with insurance issues, finding ways to reduce travel costs (via state, local, and federal programs or funds), and more recently helping to coordinate free flights through programs like Corporate Angels, etc as I have to travel out of state every 3 weeks for treatment. They have so much more information than I ever would have been able to find on my own. Even if all you need is better/more information, it's worth looking into- there's nothing wrong with accepting a little help now and then when you need it. 

                                mbaelaporte
                                Participant

                                  Volunteer Cancer Resource Center

                                  what a wonderful idea

                                  please tell us your hometown

                                  this is an idea that needs to grow

                                  mbaelaporte
                                  Participant

                                    Volunteer Cancer Resource Center

                                    what a wonderful idea

                                    please tell us your hometown

                                    this is an idea that needs to grow

                                    mbaelaporte
                                    Participant

                                      Volunteer Cancer Resource Center

                                      what a wonderful idea

                                      please tell us your hometown

                                      this is an idea that needs to grow

                                    ecc26
                                    Participant

                                      There are a lot of good things about the law, but the implementation is still VERY variable by state with a lot of  states refusing to embrace it, leaving its citizens with fewer and often less attractive options. The inequity is very unfortunate, but is the reality. Many of them even refused the medicaid expansion on the grounds of budgetary concerns even thought the federal gvt was covering the cost of the expansion, not the state. In states where the expansion was accepted and enacted and where the states set up their own insurance exchanges the law is working very well and helping a lot of people. in states that refused the expansion and did not set up their own exchanges the law is far more restrictive and many people are still struggling. Do you have a local or regional "navigator" who can help you with the law and what's available to you? Or a local or regional cancer resource center with people who may be able to help? I feel quite lucky that the town I live in has a volunteer cancer resource center that is excellent- they have helped me with insurance issues, finding ways to reduce travel costs (via state, local, and federal programs or funds), and more recently helping to coordinate free flights through programs like Corporate Angels, etc as I have to travel out of state every 3 weeks for treatment. They have so much more information than I ever would have been able to find on my own. Even if all you need is better/more information, it's worth looking into- there's nothing wrong with accepting a little help now and then when you need it. 

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