OM stage 4, any experience with ipi (Yervoy)?
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OM stage 4, any experience with ipi (Yervoy)?

› Forums › General Melanoma Community › OM stage 4, any experience with ipi (Yervoy)?

  • Post
    • January 11, 2014 at 7:54 am
    jmccay
    Participant

      Hi Team,

      My mother is meeting with Docs next week (Jan 17) with the option to start ipi / Yervoy.

      She had her eye out last Feb 2013 but the melanoma has spread to long bones and liver too.  She is 73 so this treatment is the only option.

      We would love to hear from anyone – especially OM – with ipi experiences.

      Much Appreciated & Best of Luck!
      James

    Viewing 5 reply threads
    • Replies
        • January 11, 2014 at 3:59 pm
        Janner
        Participant

          You might want to post this question on the OM bulletin board.  This board has plenty of people who have done ipi, but most are cutaneous melanoma patients.  They may be able to help with any questions you have.  However, the OM board is here:  http://www.melanoma.org/find-support/patient-community/cure-om-forum

          • January 11, 2014 at 3:59 pm
          Janner
          Participant

            You might want to post this question on the OM bulletin board.  This board has plenty of people who have done ipi, but most are cutaneous melanoma patients.  They may be able to help with any questions you have.  However, the OM board is here:  http://www.melanoma.org/find-support/patient-community/cure-om-forum

            • January 11, 2014 at 3:59 pm
            Janner
            Participant

              You might want to post this question on the OM bulletin board.  This board has plenty of people who have done ipi, but most are cutaneous melanoma patients.  They may be able to help with any questions you have.  However, the OM board is here:  http://www.melanoma.org/find-support/patient-community/cure-om-forum

              • January 11, 2014 at 4:28 pm
              POW
              Participant

                As Janner said, few patients on this forum have ocular melanoma. However, the organization that  hosts this forum (the Melanoma Research Foundation) just recently started a major initiative to provide support for ocular melanoma patients. In addition to the OM forum that Janner mentioned, I suggest that you email your question directly to the MRF director, Tim Trunham at [email protected]

                • January 11, 2014 at 4:28 pm
                POW
                Participant

                  As Janner said, few patients on this forum have ocular melanoma. However, the organization that  hosts this forum (the Melanoma Research Foundation) just recently started a major initiative to provide support for ocular melanoma patients. In addition to the OM forum that Janner mentioned, I suggest that you email your question directly to the MRF director, Tim Trunham at [email protected]

                  • January 11, 2014 at 4:28 pm
                  POW
                  Participant

                    As Janner said, few patients on this forum have ocular melanoma. However, the organization that  hosts this forum (the Melanoma Research Foundation) just recently started a major initiative to provide support for ocular melanoma patients. In addition to the OM forum that Janner mentioned, I suggest that you email your question directly to the MRF director, Tim Trunham at [email protected]

                      • January 15, 2014 at 9:18 am
                      jmccay
                      Participant

                        Thank you you awesome folks!!!   Please follow the other forum to see what transpires if of interest.  
                        Thank you Janner and POW!

                        • January 15, 2014 at 9:18 am
                        jmccay
                        Participant

                          Thank you you awesome folks!!!   Please follow the other forum to see what transpires if of interest.  
                          Thank you Janner and POW!

                          • January 15, 2014 at 12:36 pm
                          POW
                          Participant

                            You can search for posts about ipi specifically on the OM forum by using the Google Advanced search function.

                            Go to: http://www.google.com/advanced_search

                            Use the "Search for any words" field and enter ipi and Yervoy

                            In the "Domain" field enter the URL for the OM forum: http://www.melanoma.org/find-support/patient-community/cure-om-forum

                            Then hit "Search"

                            You will see a number of posts related to OM and ipi. From what I can tell, there is nothing all that different between the OM folks and the cutaneous melanoma folks who take ipi. 

                            • January 15, 2014 at 12:36 pm
                            POW
                            Participant

                              You can search for posts about ipi specifically on the OM forum by using the Google Advanced search function.

                              Go to: http://www.google.com/advanced_search

                              Use the "Search for any words" field and enter ipi and Yervoy

                              In the "Domain" field enter the URL for the OM forum: http://www.melanoma.org/find-support/patient-community/cure-om-forum

                              Then hit "Search"

                              You will see a number of posts related to OM and ipi. From what I can tell, there is nothing all that different between the OM folks and the cutaneous melanoma folks who take ipi. 

                              • January 15, 2014 at 12:36 pm
                              POW
                              Participant

                                You can search for posts about ipi specifically on the OM forum by using the Google Advanced search function.

                                Go to: http://www.google.com/advanced_search

                                Use the "Search for any words" field and enter ipi and Yervoy

                                In the "Domain" field enter the URL for the OM forum: http://www.melanoma.org/find-support/patient-community/cure-om-forum

                                Then hit "Search"

                                You will see a number of posts related to OM and ipi. From what I can tell, there is nothing all that different between the OM folks and the cutaneous melanoma folks who take ipi. 

                                • January 15, 2014 at 9:18 am
                                jmccay
                                Participant

                                  Thank you you awesome folks!!!   Please follow the other forum to see what transpires if of interest.  
                                  Thank you Janner and POW!

                            Viewing 5 reply threads
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