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On the way to LA
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On the way to LA

› Forums › General Melanoma Community › On the way to LA

  • Post
    • January 15, 2017 at 5:34 am
    _Paul_
    Participant

      Hey everybody,

      Just checking in. My daughter and I and are en-route to LA and should be there tomorrow.  My appointment is for Monday at noon. My daughter is happy about driving the Tesla.

      I finaΔΊy got the relief bracelet that Linny suggested and while it is not 100%, I can feel it working when I use it. I am nauseous every day and the amount of spewing has been greatly reduced by the bracelet. Thanks for the great tip Linny.

      I am just making it by with 37.5mcg of fentanyl and 12mg of dilaudid every 4 hours. There is a hard limit at 72mg/day of dilaudid but it's OK if I bank it when I am able to go longer than 4 hours. Right now I have 40 minutes banked which means if I wake up in pain I can take a dose up to 40 minutes early. 

      There was no time to obtain all my medical records in advance and in electronic format, so I am showing up with a big Tupper ware tub with all my records for the last 4 years,  discs and all.

      Hopefully we will run into Jen and her dad there on Monday.

      So far it's been a pretty good road trip.

      – Paul

    Viewing 50 reply threads
    • Replies
        • January 15, 2017 at 5:45 am
        jennunicorn
        Participant

          Enjoy the ride Paul, driving a Tesla is pretty fun πŸ™‚

          Hope you have a good appointment on Monday.

          • January 15, 2017 at 5:45 am
          jennunicorn
          Participant

            Enjoy the ride Paul, driving a Tesla is pretty fun πŸ™‚

            Hope you have a good appointment on Monday.

            • January 15, 2017 at 5:45 am
            jennunicorn
            Participant

              Enjoy the ride Paul, driving a Tesla is pretty fun πŸ™‚

              Hope you have a good appointment on Monday.

              • January 15, 2017 at 6:04 am
              Cindyco
              Participant

                Good luck on Monday Paul– everyone will be thinking of you! Keep us posted!

                • January 15, 2017 at 6:04 am
                Cindyco
                Participant

                  Good luck on Monday Paul– everyone will be thinking of you! Keep us posted!

                  • January 15, 2017 at 6:04 am
                  Cindyco
                  Participant

                    Good luck on Monday Paul– everyone will be thinking of you! Keep us posted!

                      • January 15, 2017 at 7:32 am
                      Casitas1
                      Participant
                        Hey Paul, you will be in my neck of the woods! I get treatment in Santa Monica and if you guys need anything let me know. We would be happy to help. Best, the other Paul
                        • January 15, 2017 at 7:32 am
                        Casitas1
                        Participant
                          Hey Paul, you will be in my neck of the woods! I get treatment in Santa Monica and if you guys need anything let me know. We would be happy to help. Best, the other Paul
                          • January 15, 2017 at 7:32 am
                          Casitas1
                          Participant
                            Hey Paul, you will be in my neck of the woods! I get treatment in Santa Monica and if you guys need anything let me know. We would be happy to help. Best, the other Paul
                          • January 15, 2017 at 8:03 am
                          Scooby123
                          Participant

                            Good luck with your appointment Paul , hope all goes well for you . Take care

                            scooby

                            • January 15, 2017 at 8:03 am
                            Scooby123
                            Participant

                              Good luck with your appointment Paul , hope all goes well for you . Take care

                              scooby

                              • January 15, 2017 at 8:03 am
                              Scooby123
                              Participant

                                Good luck with your appointment Paul , hope all goes well for you . Take care

                                scooby

                                • January 15, 2017 at 8:03 am
                                Scooby123
                                Participant

                                  Good luck with your appointment Paul , hope all goes well for you . Take care

                                  scooby

                                  • January 15, 2017 at 8:03 am
                                  Scooby123
                                  Participant

                                    Good luck with your appointment Paul , hope all goes well for you . Take care

                                    scooby

                                    • January 15, 2017 at 8:03 am
                                    Scooby123
                                    Participant

                                      Good luck with your appointment Paul , hope all goes well for you . Take care

                                      scooby

                                      • January 15, 2017 at 11:52 am
                                      Patrisa
                                      Participant

                                        Good luck Paul!!!!

                                        Love,

                                        Patrisa

                                        • January 15, 2017 at 11:52 am
                                        Patrisa
                                        Participant

                                          Good luck Paul!!!!

                                          Love,

                                          Patrisa

                                          • January 15, 2017 at 11:52 am
                                          Patrisa
                                          Participant

                                            Good luck Paul!!!!

                                            Love,

                                            Patrisa

                                            • January 15, 2017 at 3:25 pm
                                            vickiaa0529
                                            Participant

                                              Good Luck Paul if Dr Ribas contacts me soon, I may see you there 

                                              cheers 

                                              Vicki 

                                              • January 15, 2017 at 3:25 pm
                                              vickiaa0529
                                              Participant

                                                Good Luck Paul if Dr Ribas contacts me soon, I may see you there 

                                                cheers 

                                                Vicki 

                                                • January 15, 2017 at 3:25 pm
                                                vickiaa0529
                                                Participant

                                                  Good Luck Paul if Dr Ribas contacts me soon, I may see you there 

                                                  cheers 

                                                  Vicki 

                                                  • January 15, 2017 at 3:48 pm
                                                  keepthefaith11
                                                  Participant
                                                    Good luck Paul. Cheering for you!

                                                    Annie

                                                    • January 15, 2017 at 3:48 pm
                                                    keepthefaith11
                                                    Participant
                                                      Good luck Paul. Cheering for you!

                                                      Annie

                                                      • January 15, 2017 at 3:48 pm
                                                      keepthefaith11
                                                      Participant
                                                        Good luck Paul. Cheering for you!

                                                        Annie

                                                        • January 15, 2017 at 4:15 pm
                                                        debwray
                                                        Participant

                                                          Good luck and hope all the mechanics of the trip run smoothly and may you be forever in credit balance on those painkiller…

                                                          Deb

                                                          • January 15, 2017 at 4:15 pm
                                                          debwray
                                                          Participant

                                                            Good luck and hope all the mechanics of the trip run smoothly and may you be forever in credit balance on those painkiller…

                                                            Deb

                                                            • January 15, 2017 at 4:15 pm
                                                            debwray
                                                            Participant

                                                              Good luck and hope all the mechanics of the trip run smoothly and may you be forever in credit balance on those painkiller…

                                                              Deb

                                                              • January 15, 2017 at 5:32 pm
                                                              JoshF
                                                              Participant

                                                                All my best Paul! Hope you're feeling well.

                                                                • January 15, 2017 at 5:32 pm
                                                                JoshF
                                                                Participant

                                                                  All my best Paul! Hope you're feeling well.

                                                                  • January 15, 2017 at 5:32 pm
                                                                  JoshF
                                                                  Participant

                                                                    All my best Paul! Hope you're feeling well.

                                                                    • January 15, 2017 at 6:51 pm
                                                                    Bubbles
                                                                    Participant

                                                                      Tesla, huh?  Well, if you need another driver, just let me know!!!  Wishing you good things on your visit!!!  Hang in there.  Love, c

                                                                      • January 15, 2017 at 6:51 pm
                                                                      Bubbles
                                                                      Participant

                                                                        Tesla, huh?  Well, if you need another driver, just let me know!!!  Wishing you good things on your visit!!!  Hang in there.  Love, c

                                                                        • January 15, 2017 at 6:51 pm
                                                                        Bubbles
                                                                        Participant

                                                                          Tesla, huh?  Well, if you need another driver, just let me know!!!  Wishing you good things on your visit!!!  Hang in there.  Love, c

                                                                          • January 15, 2017 at 7:28 pm
                                                                          snow white
                                                                          Participant

                                                                            Safe travels to you and your daughter!  Hoping we cross paths tomorrow, our appointment is at 2pm.  Hang in there!!!!!!

                                                                            xo Jen

                                                                            • January 15, 2017 at 7:28 pm
                                                                            snow white
                                                                            Participant

                                                                              Safe travels to you and your daughter!  Hoping we cross paths tomorrow, our appointment is at 2pm.  Hang in there!!!!!!

                                                                              xo Jen

                                                                              • January 15, 2017 at 7:28 pm
                                                                              snow white
                                                                              Participant

                                                                                Safe travels to you and your daughter!  Hoping we cross paths tomorrow, our appointment is at 2pm.  Hang in there!!!!!!

                                                                                xo Jen

                                                                                • January 16, 2017 at 12:42 am
                                                                                casagrayson
                                                                                Participant

                                                                                  Ah, DH would *love* a Tesla — I keep telling him to go for it.  After battling melanoma twice, and now NED, I think he deserves it.  Glad you spoiled yourself!  All my best wishes and good karma for a great appointment, and keeping the pain at bay!

                                                                                  • January 16, 2017 at 12:42 am
                                                                                  casagrayson
                                                                                  Participant

                                                                                    Ah, DH would *love* a Tesla — I keep telling him to go for it.  After battling melanoma twice, and now NED, I think he deserves it.  Glad you spoiled yourself!  All my best wishes and good karma for a great appointment, and keeping the pain at bay!

                                                                                    • January 16, 2017 at 12:42 am
                                                                                    casagrayson
                                                                                    Participant

                                                                                      Ah, DH would *love* a Tesla — I keep telling him to go for it.  After battling melanoma twice, and now NED, I think he deserves it.  Glad you spoiled yourself!  All my best wishes and good karma for a great appointment, and keeping the pain at bay!

                                                                                      • January 16, 2017 at 1:47 am
                                                                                      Linny
                                                                                      Participant

                                                                                        Hi Paul!

                                                                                        I am happy the bracelet is working for you and has reduced any heaving. As you've already figured out, it has to be positioned just right to be the most effective. Sometimes the tendons on my wrist throw it off and I have to jiggle it a bit. But it's been a godsend for me.

                                                                                        Good luck in LA! I'll be thinking of you. 

                                                                                        • January 16, 2017 at 1:47 am
                                                                                        Linny
                                                                                        Participant

                                                                                          Hi Paul!

                                                                                          I am happy the bracelet is working for you and has reduced any heaving. As you've already figured out, it has to be positioned just right to be the most effective. Sometimes the tendons on my wrist throw it off and I have to jiggle it a bit. But it's been a godsend for me.

                                                                                          Good luck in LA! I'll be thinking of you. 

                                                                                          • January 16, 2017 at 1:47 am
                                                                                          Linny
                                                                                          Participant

                                                                                            Hi Paul!

                                                                                            I am happy the bracelet is working for you and has reduced any heaving. As you've already figured out, it has to be positioned just right to be the most effective. Sometimes the tendons on my wrist throw it off and I have to jiggle it a bit. But it's been a godsend for me.

                                                                                            Good luck in LA! I'll be thinking of you. 

                                                                                            • January 16, 2017 at 4:20 am
                                                                                            Mark_DC
                                                                                            Participant

                                                                                              Paul, if the Tesla does not cut it, I have a 1993 Camry (beige) that you might be interested in πŸ™‚

                                                                                              Good luck in LA

                                                                                              Mark

                                                                                              • January 16, 2017 at 4:20 am
                                                                                              Mark_DC
                                                                                              Participant

                                                                                                Paul, if the Tesla does not cut it, I have a 1993 Camry (beige) that you might be interested in πŸ™‚

                                                                                                Good luck in LA

                                                                                                Mark

                                                                                                • January 16, 2017 at 4:20 am
                                                                                                Mark_DC
                                                                                                Participant

                                                                                                  Paul, if the Tesla does not cut it, I have a 1993 Camry (beige) that you might be interested in πŸ™‚

                                                                                                  Good luck in LA

                                                                                                  Mark

                                                                                                  • January 16, 2017 at 12:57 pm
                                                                                                  maperny
                                                                                                  Participant

                                                                                                    Hope the appointment goes well, Paul.  Thinking of you today and hoping Dr Hamid has some great options.

                                                                                                    Maria

                                                                                                    • January 16, 2017 at 12:57 pm
                                                                                                    maperny
                                                                                                    Participant

                                                                                                      Hope the appointment goes well, Paul.  Thinking of you today and hoping Dr Hamid has some great options.

                                                                                                      Maria

                                                                                                      • January 16, 2017 at 12:57 pm
                                                                                                      maperny
                                                                                                      Participant

                                                                                                        Hope the appointment goes well, Paul.  Thinking of you today and hoping Dr Hamid has some great options.

                                                                                                        Maria

                                                                                                        • January 16, 2017 at 6:43 pm
                                                                                                        jbronicki
                                                                                                        Participant

                                                                                                          Hey Paul,

                                                                                                          Hoping for the very best today!  I didn't know what all the fuss was about Tesla until I got the chance to ride in one last summer……..now I get it!   

                                                                                                          many prayers today πŸ™‚

                                                                                                          • January 16, 2017 at 6:43 pm
                                                                                                          jbronicki
                                                                                                          Participant

                                                                                                            Hey Paul,

                                                                                                            Hoping for the very best today!  I didn't know what all the fuss was about Tesla until I got the chance to ride in one last summer……..now I get it!   

                                                                                                            many prayers today πŸ™‚

                                                                                                            • January 16, 2017 at 6:43 pm
                                                                                                            jbronicki
                                                                                                            Participant

                                                                                                              Hey Paul,

                                                                                                              Hoping for the very best today!  I didn't know what all the fuss was about Tesla until I got the chance to ride in one last summer……..now I get it!   

                                                                                                              many prayers today πŸ™‚

                                                                                                              • January 16, 2017 at 6:43 pm
                                                                                                              jenny22
                                                                                                              Participant

                                                                                                                Hi Paul- as i write this I'll assume yhou are already in the midst of your appt.  I hope the rest of your trip went well, and your pain level is sometwhat under control.

                                                                                                                I hope your tupperware tub gives the folks at MDA all the info they need to find your magic bullet.

                                                                                                                Will be looking for your udpate POST appt.

                                                                                                                 

                                                                                                                Best,

                                                                                                                jenny

                                                                                                                • January 16, 2017 at 6:43 pm
                                                                                                                jenny22
                                                                                                                Participant

                                                                                                                  Hi Paul- as i write this I'll assume yhou are already in the midst of your appt.  I hope the rest of your trip went well, and your pain level is sometwhat under control.

                                                                                                                  I hope your tupperware tub gives the folks at MDA all the info they need to find your magic bullet.

                                                                                                                  Will be looking for your udpate POST appt.

                                                                                                                   

                                                                                                                  Best,

                                                                                                                  jenny

                                                                                                                  • January 16, 2017 at 6:43 pm
                                                                                                                  jenny22
                                                                                                                  Participant

                                                                                                                    Hi Paul- as i write this I'll assume yhou are already in the midst of your appt.  I hope the rest of your trip went well, and your pain level is sometwhat under control.

                                                                                                                    I hope your tupperware tub gives the folks at MDA all the info they need to find your magic bullet.

                                                                                                                    Will be looking for your udpate POST appt.

                                                                                                                     

                                                                                                                    Best,

                                                                                                                    jenny

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