MRF-Logo2019-Horizontal-RGB
One Year Mark. Still NED.
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

One Year Mark. Still NED.

› Forums › General Melanoma Community › One Year Mark. Still NED.

  • Post
    • January 14, 2013 at 10:35 pm
    Ronskidtexx
    Participant

      It has been about one year since diagnosis and surgery for my Stage IV Melanoma.  I had surgery to remove two tumors and radiation treatments to my neck. I had a radical neck dissection along with a flap of my chest.  My second tumor was removed from my ribcage area.   My quarterly scans are in:

       

      CT SCAN of Neck–Clean

      CT SCAN of Abdomen, Chest, and Pelvis–Clean

      Ultrasound of Neck–Clean

      MRI of Brain–Clean

       

      It has been about one year since diagnosis and surgery for my Stage IV Melanoma.  I had surgery to remove two tumors and radiation treatments to my neck. I had a radical neck dissection along with a flap of my chest.  My second tumor was removed from my ribcage area.   My quarterly scans are in:

       

      CT SCAN of Neck–Clean

      CT SCAN of Abdomen, Chest, and Pelvis–Clean

      Ultrasound of Neck–Clean

      MRI of Brain–Clean

       

      When initially told I may live a year, pre-surgery, miracles continue to happen.  Don't ever give up.  Don't read all the bad news on the internet.  Everyone's body is different.  I am currently on no meds.  I will continue the fight and I feel for everyone that is going through this horrible disease and experiencing much worse effects. 

       

      Ron

    Viewing 14 reply threads
    • Replies
        • January 15, 2013 at 2:24 am
        aldakota22
        Participant

           Way to go Ron.Love it when any of us change our name to NED.Keep fighting and posting.Beat the Beast. AL

          • January 15, 2013 at 2:24 am
          aldakota22
          Participant

             Way to go Ron.Love it when any of us change our name to NED.Keep fighting and posting.Beat the Beast. AL

            • January 15, 2013 at 2:24 am
            aldakota22
            Participant

               Way to go Ron.Love it when any of us change our name to NED.Keep fighting and posting.Beat the Beast. AL

              • January 15, 2013 at 3:02 am
              King
              Participant

                Ron,

                Congratulations!  We all need to read these good news stories.  It gives others hope.  I, too, am a Stage IV patient and have been NED for 4 1/2 years (except for a couple of new primaries that were not metastatic).

                Celebrate and live life to the fullest.

                 

                Stay Strong

                King

                Stage IV  7/05 Liver mets

                • January 15, 2013 at 3:02 am
                King
                Participant

                  Ron,

                  Congratulations!  We all need to read these good news stories.  It gives others hope.  I, too, am a Stage IV patient and have been NED for 4 1/2 years (except for a couple of new primaries that were not metastatic).

                  Celebrate and live life to the fullest.

                   

                  Stay Strong

                  King

                  Stage IV  7/05 Liver mets

                  • January 15, 2013 at 3:02 am
                  King
                  Participant

                    Ron,

                    Congratulations!  We all need to read these good news stories.  It gives others hope.  I, too, am a Stage IV patient and have been NED for 4 1/2 years (except for a couple of new primaries that were not metastatic).

                    Celebrate and live life to the fullest.

                     

                    Stay Strong

                    King

                    Stage IV  7/05 Liver mets

                    • January 15, 2013 at 4:01 am
                    bikerwife
                    Participant

                      Wonderful news. May God bless you with many more years of being NED.

                      • January 15, 2013 at 4:01 am
                      bikerwife
                      Participant

                        Wonderful news. May God bless you with many more years of being NED.

                          • January 16, 2013 at 2:37 am
                          NYKaren
                          Participant
                            Thanks for posting your great news. Yup, we would all gladly be named NED!
                            Congratulations and may you always remain NED.
                            Karen
                            • January 16, 2013 at 2:37 am
                            NYKaren
                            Participant
                              Thanks for posting your great news. Yup, we would all gladly be named NED!
                              Congratulations and may you always remain NED.
                              Karen
                              • January 16, 2013 at 2:37 am
                              NYKaren
                              Participant
                                Thanks for posting your great news. Yup, we would all gladly be named NED!
                                Congratulations and may you always remain NED.
                                Karen
                              • January 15, 2013 at 4:01 am
                              bikerwife
                              Participant

                                Wonderful news. May God bless you with many more years of being NED.

                                • January 16, 2013 at 5:11 am
                                JerryfromFauq
                                Participant

                                  Great news to hear!

                                  • January 16, 2013 at 5:11 am
                                  JerryfromFauq
                                  Participant

                                    Great news to hear!

                                    • January 16, 2013 at 5:11 am
                                    JerryfromFauq
                                    Participant

                                      Great news to hear!

                                      • January 17, 2013 at 4:27 am
                                      JakeinNY
                                      Participant

                                        Congratulations Ron!!!

                                        Keep up the good work and keep giving us your NED updates regularly.

                                        Best wishes for a long life.

                                        Jake

                                        • January 17, 2013 at 4:27 am
                                        JakeinNY
                                        Participant

                                          Congratulations Ron!!!

                                          Keep up the good work and keep giving us your NED updates regularly.

                                          Best wishes for a long life.

                                          Jake

                                          • January 17, 2013 at 4:27 am
                                          JakeinNY
                                          Participant

                                            Congratulations Ron!!!

                                            Keep up the good work and keep giving us your NED updates regularly.

                                            Best wishes for a long life.

                                            Jake

                                        Viewing 14 reply threads
                                        • You must be logged in to reply to this topic.
                                        About the MRF Patient Forum

                                        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                        Popular Topics