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pd1

› Forums › General Melanoma Community › pd1

  • Post
    • May 9, 2014 at 6:37 pm
    starletwoman2007
    Participant
      Hi I have been hearing all the good things about Pd1 but wondered whether any patients have found it successful and how they have found it x
    Viewing 2 reply threads
    • Replies
        • May 15, 2014 at 9:02 pm
        Jaryllane
        Participant

          I have been on the Merk anti PD-1 trial since July 2013.  At first scans i was NED and it continues to this date.  Some side effects in the first six months or so, but very few now.

          • May 15, 2014 at 9:02 pm
          Jaryllane
          Participant

            I have been on the Merk anti PD-1 trial since July 2013.  At first scans i was NED and it continues to this date.  Some side effects in the first six months or so, but very few now.

              • May 16, 2014 at 1:24 am
              Brendan
              Participant

                Hi,

                I had two mets (one in each lung) when I started a BMS Pd-1 trial in December.  As of my last scans (April) the smaller met in my left lung is gone and the larger met (right lung) shrunk by 78% and measured 1 sq. cm. I have a rash on my arms that does not itch, small spots of vitiligo (arms and neck), and fatigue (which is getting better).  My wife found the trial by going directly to centers' websites.

                Good luck!

                Brendan

                • May 16, 2014 at 1:24 am
                Brendan
                Participant

                  Hi,

                  I had two mets (one in each lung) when I started a BMS Pd-1 trial in December.  As of my last scans (April) the smaller met in my left lung is gone and the larger met (right lung) shrunk by 78% and measured 1 sq. cm. I have a rash on my arms that does not itch, small spots of vitiligo (arms and neck), and fatigue (which is getting better).  My wife found the trial by going directly to centers' websites.

                  Good luck!

                  Brendan

                  • May 16, 2014 at 1:24 am
                  Brendan
                  Participant

                    Hi,

                    I had two mets (one in each lung) when I started a BMS Pd-1 trial in December.  As of my last scans (April) the smaller met in my left lung is gone and the larger met (right lung) shrunk by 78% and measured 1 sq. cm. I have a rash on my arms that does not itch, small spots of vitiligo (arms and neck), and fatigue (which is getting better).  My wife found the trial by going directly to centers' websites.

                    Good luck!

                    Brendan

                  • May 15, 2014 at 9:02 pm
                  Jaryllane
                  Participant

                    I have been on the Merk anti PD-1 trial since July 2013.  At first scans i was NED and it continues to this date.  Some side effects in the first six months or so, but very few now.

                Viewing 2 reply threads
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