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Pediactric Melanoma
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Pediactric Melanoma

› Forums › General Melanoma Community › Pediactric Melanoma

  • Post
    • March 19, 2014 at 6:30 pm
    brandimhs
    Participant

      My 8 year old was diagnosed in December of 2012 with stage 3B melanoma. Has anyone else experienced melanoma in children?

    Viewing 2 reply threads
    • Replies
        • March 20, 2014 at 12:37 am
        Carole K
        Participant

          HI

          I am so sorry you are going through this.  There were two people who posted here quite some time ago who had children with Melanoma.  I do know both children were diagnosed when they were 2 and are doing well.

          One family started a non profit in Memphis near St. Jude's  It is called HABITAT FOR HOPE.  Their names are Mylissa and Mark Horrack.  There was another woman here named Claire.  I will see if I can get in touch with them.  Also, I just recently went to DC for Legislation Hill Day and met another woman who has a 9 year old with Melanoma. 

          If there is any way I can help please know I am here for you.  Hang in there .  There are a lot of people here who can help you through this.. 

          Love and Light

          Carole K.

          • March 20, 2014 at 12:37 am
          Carole K
          Participant

            HI

            I am so sorry you are going through this.  There were two people who posted here quite some time ago who had children with Melanoma.  I do know both children were diagnosed when they were 2 and are doing well.

            One family started a non profit in Memphis near St. Jude's  It is called HABITAT FOR HOPE.  Their names are Mylissa and Mark Horrack.  There was another woman here named Claire.  I will see if I can get in touch with them.  Also, I just recently went to DC for Legislation Hill Day and met another woman who has a 9 year old with Melanoma. 

            If there is any way I can help please know I am here for you.  Hang in there .  There are a lot of people here who can help you through this.. 

            Love and Light

            Carole K.

            • March 20, 2014 at 12:37 am
            Carole K
            Participant

              HI

              I am so sorry you are going through this.  There were two people who posted here quite some time ago who had children with Melanoma.  I do know both children were diagnosed when they were 2 and are doing well.

              One family started a non profit in Memphis near St. Jude's  It is called HABITAT FOR HOPE.  Their names are Mylissa and Mark Horrack.  There was another woman here named Claire.  I will see if I can get in touch with them.  Also, I just recently went to DC for Legislation Hill Day and met another woman who has a 9 year old with Melanoma. 

              If there is any way I can help please know I am here for you.  Hang in there .  There are a lot of people here who can help you through this.. 

              Love and Light

              Carole K.

                • March 21, 2014 at 12:02 pm
                tschmith
                Participant

                  I'm a patient at NIH and know one melanoma patient there is a four year old child.  That's really all I know but I'm wondering if NIH has anything to offer you.  It could be worth looking into.  I cannot say enough about how great the doctors are at NIH.

                  Terrie

                  • March 21, 2014 at 12:02 pm
                  tschmith
                  Participant

                    I'm a patient at NIH and know one melanoma patient there is a four year old child.  That's really all I know but I'm wondering if NIH has anything to offer you.  It could be worth looking into.  I cannot say enough about how great the doctors are at NIH.

                    Terrie

                    • March 21, 2014 at 12:02 pm
                    tschmith
                    Participant

                      I'm a patient at NIH and know one melanoma patient there is a four year old child.  That's really all I know but I'm wondering if NIH has anything to offer you.  It could be worth looking into.  I cannot say enough about how great the doctors are at NIH.

                      Terrie

                      • March 24, 2014 at 6:40 am
                      dnovak
                      Participant

                        Brandy I sent you a PM.  There's a group of pediatric melanoma parents online that may be helpful for you.  You can also learn more through Danielle Adams at her site http://littlestwarriorspot.com/.

                         

                         

                        • March 24, 2014 at 6:40 am
                        dnovak
                        Participant

                          Brandy I sent you a PM.  There's a group of pediatric melanoma parents online that may be helpful for you.  You can also learn more through Danielle Adams at her site http://littlestwarriorspot.com/.

                           

                           

                          • March 24, 2014 at 6:40 am
                          dnovak
                          Participant

                            Brandy I sent you a PM.  There's a group of pediatric melanoma parents online that may be helpful for you.  You can also learn more through Danielle Adams at her site http://littlestwarriorspot.com/.

                             

                             

                            • March 26, 2014 at 2:27 pm
                            brandimhs
                            Participant

                              thanks so much.. i send you a friend request

                              • March 26, 2014 at 2:27 pm
                              brandimhs
                              Participant

                                thanks so much.. i send you a friend request

                                • March 26, 2014 at 2:27 pm
                                brandimhs
                                Participant

                                  thanks so much.. i send you a friend request

                                  • May 19, 2014 at 5:35 am
                                  camping_mama
                                  Participant

                                    Hi.  My 7 year old daughter was recently diagnosed with melanoma.  T1b (under 1mm but mitotic rate was 1).  I am very intersted in finding online parent groups for pediactric melanoma.  Please, if anyone sees this who knows of an active group online, send me the information.  I have had little luck searching for groups. Thank you!

                                    • May 19, 2014 at 5:35 am
                                    camping_mama
                                    Participant

                                      Hi.  My 7 year old daughter was recently diagnosed with melanoma.  T1b (under 1mm but mitotic rate was 1).  I am very intersted in finding online parent groups for pediactric melanoma.  Please, if anyone sees this who knows of an active group online, send me the information.  I have had little luck searching for groups. Thank you!

                                      • May 19, 2014 at 5:35 am
                                      camping_mama
                                      Participant

                                        Hi.  My 7 year old daughter was recently diagnosed with melanoma.  T1b (under 1mm but mitotic rate was 1).  I am very intersted in finding online parent groups for pediactric melanoma.  Please, if anyone sees this who knows of an active group online, send me the information.  I have had little luck searching for groups. Thank you!

                                        • March 26, 2014 at 2:28 pm
                                        brandimhs
                                        Participant

                                          where is NIH  we are at st judes and it is a wonderful place as well

                                          • March 26, 2014 at 2:28 pm
                                          brandimhs
                                          Participant

                                            where is NIH  we are at st judes and it is a wonderful place as well

                                            • March 26, 2014 at 2:28 pm
                                            brandimhs
                                            Participant

                                              where is NIH  we are at st judes and it is a wonderful place as well

                                              • March 26, 2014 at 2:29 pm
                                              brandimhs
                                              Participant

                                                thanks so much i will look into that!!

                                                • March 26, 2014 at 2:29 pm
                                                brandimhs
                                                Participant

                                                  thanks so much i will look into that!!

                                                  • March 26, 2014 at 2:29 pm
                                                  brandimhs
                                                  Participant

                                                    thanks so much i will look into that!!

                                              Viewing 2 reply threads
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