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Peripheral Neuropathy as a side effect
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Peripheral Neuropathy as a side effect

› Forums › General Melanoma Community › Peripheral Neuropathy as a side effect

  • Post
    • May 5, 2015 at 1:54 am
    Wheels1994
    Participant

      I've had many side effects come and go.  However, this Peripheral Neuropathy that I've had for the last 5 months has been ridiculously annoying.  Constant numbness and tingling of the feet and numbness of the finger tips.

      Took all of the neurology tests to rule things out.  The theory is that the when I had 3 treatments of CVT following my Yervoy failure, the 3 Cisplatin doses caused a slow, progressing case of peripheral neuropathy that took about 3 months to get where it is today.  The docs seem to think it will get better with time and possibly subside completely.  There's also thought that it could be permanent to a degree.

      I'm thankful that this is the only thing I'm dealing with right now at stage 4.  Just wondering if anyone else has had this experience with peripheral neuropathy:

      How long did it last?  What was your experience?  What drug caused it?  Did it progress slowly then level out?  Duration?

       

      Thanks in advance for a recount of your experience!

      Matt

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    • Replies
        • May 5, 2015 at 3:50 am
        Jubes
        Participant

          My side effects are strange unusual and annoying too.!! My dr just shrugs and says we have no idea which I am grateful for as he is honest and we both know that at stage 4 these wonder drugs are just too new to know all the weird side effects that can happen. We are trail Blazers and hopefully can help others with our experiences 

          anne-Louise 

          • May 5, 2015 at 3:50 am
          Jubes
          Participant

            My side effects are strange unusual and annoying too.!! My dr just shrugs and says we have no idea which I am grateful for as he is honest and we both know that at stage 4 these wonder drugs are just too new to know all the weird side effects that can happen. We are trail Blazers and hopefully can help others with our experiences 

            anne-Louise 

            • May 5, 2015 at 3:50 am
            Jubes
            Participant

              My side effects are strange unusual and annoying too.!! My dr just shrugs and says we have no idea which I am grateful for as he is honest and we both know that at stage 4 these wonder drugs are just too new to know all the weird side effects that can happen. We are trail Blazers and hopefully can help others with our experiences 

              anne-Louise 

              • May 5, 2015 at 6:32 pm
              arthurjedi007
              Participant

                I think mine in my left foot was the radiation instead of keytruda. I looked for non med treatments which have helped a lot. Like the moist heating pad you put in the microwave. Walking. massaging it the best I can although that's hard with my shoulder and spine tumors. Spraying solar Cain on it gave quick temporary relief but I've since quit that.

                Artie

                • May 5, 2015 at 6:32 pm
                arthurjedi007
                Participant

                  I think mine in my left foot was the radiation instead of keytruda. I looked for non med treatments which have helped a lot. Like the moist heating pad you put in the microwave. Walking. massaging it the best I can although that's hard with my shoulder and spine tumors. Spraying solar Cain on it gave quick temporary relief but I've since quit that.

                  Artie

                    • May 5, 2015 at 7:02 pm
                    Wheels1994
                    Participant

                      Thanks, Artie.  I'll try the heating pad for sure.  Walking helps, but then the feet bark at you when you then sit for a while afterwards.  Best of luck to you.  Matt

                      • May 5, 2015 at 7:02 pm
                      Wheels1994
                      Participant

                        Thanks, Artie.  I'll try the heating pad for sure.  Walking helps, but then the feet bark at you when you then sit for a while afterwards.  Best of luck to you.  Matt

                        • May 5, 2015 at 7:02 pm
                        Wheels1994
                        Participant

                          Thanks, Artie.  I'll try the heating pad for sure.  Walking helps, but then the feet bark at you when you then sit for a while afterwards.  Best of luck to you.  Matt

                        • May 5, 2015 at 6:32 pm
                        arthurjedi007
                        Participant

                          I think mine in my left foot was the radiation instead of keytruda. I looked for non med treatments which have helped a lot. Like the moist heating pad you put in the microwave. Walking. massaging it the best I can although that's hard with my shoulder and spine tumors. Spraying solar Cain on it gave quick temporary relief but I've since quit that.

                          Artie

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