PET CT Scan Post Surgery
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PET CT Scan Post Surgery

› Forums › General Melanoma Community › PET CT Scan Post Surgery

  • Post
    • November 19, 2013 at 11:16 pm
    MattF
    Participant

      I got a PET CT (as a pre test for clinical trial) 6 weeks after surgery, a parotidectomy and right neck dissection.

      PET CT report is in and it absolutely confirms to hypermetobolic nodes.

      I sent it to my surgeon at City Of Hope and she called directly to my cell today with a plan to get me in next week to start to prep for surgery.

      My melenoma onc is at the conf and I will try to talk to him this week to make sure this is the plan to have surgery.

      Report, both PET and CT both showed a sclerotic focus on my right humerus. not sure what to think about that.

       

      Matt

    Viewing 14 reply threads
    • Replies
        • November 20, 2013 at 1:13 am
        Fen
        Participant

          Thanks for the update, Matt.  I'm glad your drs are moving fast on this.  Take one thing at a time – and deep breaths.  Keeping you in my prayers.    Fen

          • November 20, 2013 at 1:13 am
          Fen
          Participant

            Thanks for the update, Matt.  I'm glad your drs are moving fast on this.  Take one thing at a time – and deep breaths.  Keeping you in my prayers.    Fen

            • November 20, 2013 at 1:13 am
            Fen
            Participant

              Thanks for the update, Matt.  I'm glad your drs are moving fast on this.  Take one thing at a time – and deep breaths.  Keeping you in my prayers.    Fen

              • November 20, 2013 at 1:35 am
              JoshF
              Participant

                Sorry brother…I know you've been through a lot…glad you're in top of it.

                Josh 

                • November 20, 2013 at 1:35 am
                JoshF
                Participant

                  Sorry brother…I know you've been through a lot…glad you're in top of it.

                  Josh 

                  • November 20, 2013 at 1:35 am
                  JoshF
                  Participant

                    Sorry brother…I know you've been through a lot…glad you're in top of it.

                    Josh 

                    • November 20, 2013 at 2:50 am
                    POW
                    Participant

                      I'm sorry for this distressing news, Mat. I'm sure it must have felt like a real kick in the stomach to you. But if you possibly have lymph node involvement, thank God that the PET CT found it so early and that you and your doctors already have a plan for getting those nodes out of there. Then you can get back to preparing for the clinical trial. Try no to be too bummed out– you're winning these skirmishes!

                      • November 20, 2013 at 2:50 am
                      POW
                      Participant

                        I'm sorry for this distressing news, Mat. I'm sure it must have felt like a real kick in the stomach to you. But if you possibly have lymph node involvement, thank God that the PET CT found it so early and that you and your doctors already have a plan for getting those nodes out of there. Then you can get back to preparing for the clinical trial. Try no to be too bummed out– you're winning these skirmishes!

                        • November 20, 2013 at 2:50 am
                        POW
                        Participant

                          I'm sorry for this distressing news, Mat. I'm sure it must have felt like a real kick in the stomach to you. But if you possibly have lymph node involvement, thank God that the PET CT found it so early and that you and your doctors already have a plan for getting those nodes out of there. Then you can get back to preparing for the clinical trial. Try no to be too bummed out– you're winning these skirmishes!

                          • November 20, 2013 at 4:00 am
                          UrsulaZ
                          Participant

                            re: the sclerotic focus — I know I had some of this on a PET scan last year, which turned out to be bone turnover after a fall I'd had the year prior. Nothing to do with the melanoma. So I hope for something similar for you. 

                            Nothing like more surgery after you've just recovered from surgery 🙁 

                            All the best. 

                              • November 20, 2013 at 2:30 pm
                              Maureen038
                              Participant

                                I'm sorry Matt. I'm hoping and praying that since its so early that they can treat it right away and everything will be fine. Sending positive vibes your way!! Take care.

                                maureen

                                • November 20, 2013 at 2:30 pm
                                Maureen038
                                Participant

                                  I'm sorry Matt. I'm hoping and praying that since its so early that they can treat it right away and everything will be fine. Sending positive vibes your way!! Take care.

                                  maureen

                                  • November 20, 2013 at 2:30 pm
                                  Maureen038
                                  Participant

                                    I'm sorry Matt. I'm hoping and praying that since its so early that they can treat it right away and everything will be fine. Sending positive vibes your way!! Take care.

                                    maureen

                                  • November 20, 2013 at 4:00 am
                                  UrsulaZ
                                  Participant

                                    re: the sclerotic focus — I know I had some of this on a PET scan last year, which turned out to be bone turnover after a fall I'd had the year prior. Nothing to do with the melanoma. So I hope for something similar for you. 

                                    Nothing like more surgery after you've just recovered from surgery 🙁 

                                    All the best. 

                                    • November 20, 2013 at 4:00 am
                                    UrsulaZ
                                    Participant

                                      re: the sclerotic focus — I know I had some of this on a PET scan last year, which turned out to be bone turnover after a fall I'd had the year prior. Nothing to do with the melanoma. So I hope for something similar for you. 

                                      Nothing like more surgery after you've just recovered from surgery 🙁 

                                      All the best. 

                                      • November 20, 2013 at 5:06 pm
                                      Tina D
                                      Participant

                                        Shoot. I was so hoping that was just from surgical inflammation and such. Glad it has been spotted right away and is being dealt with so very quickly. I am very sorry, and can only imagine how disappointing and frustrating at the cusp of trial entrance– BUT, the good news is that the trials will await you once this has been removed, so you can move forward with that. One step at a time.One step.

                                        Take Care and keep us posted!

                                        Tina

                                        • November 20, 2013 at 5:06 pm
                                        Tina D
                                        Participant

                                          Shoot. I was so hoping that was just from surgical inflammation and such. Glad it has been spotted right away and is being dealt with so very quickly. I am very sorry, and can only imagine how disappointing and frustrating at the cusp of trial entrance– BUT, the good news is that the trials will await you once this has been removed, so you can move forward with that. One step at a time.One step.

                                          Take Care and keep us posted!

                                          Tina

                                          • November 20, 2013 at 5:06 pm
                                          Tina D
                                          Participant

                                            Shoot. I was so hoping that was just from surgical inflammation and such. Glad it has been spotted right away and is being dealt with so very quickly. I am very sorry, and can only imagine how disappointing and frustrating at the cusp of trial entrance– BUT, the good news is that the trials will await you once this has been removed, so you can move forward with that. One step at a time.One step.

                                            Take Care and keep us posted!

                                            Tina

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