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PET scan help

This topic has 2 replies, 2 voices, and was last updated 6 years, 10 months ago by Dreaf01.

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- October 29, 2018 at 1:38 am
- Quote
Dreaf01
Participant
I hope you all are kicking some major melanoma a**. I hoped when I started visiting this group 2 years ago that it was a temporary thing, but in August I was diagnosed with a deep 2.5 cm modular recurrence in the original melanoma site. I had a PET scan with an Oncologist in August prior to my WLE of the recurrence and at that time this was the only thing that showed of any concern per the report. I have since had the WLE and confirmed the diagnosis. I have transferred my care to Moffitt. I am scheduled to start Opdivo tomorrow and had a second PET scan Friday. This PET scan showed the following: Thorax: tiny non avid stable upper lobe nodule as well as multiple right groin nodes with SUV max of 2.7. My question is this, how do they know the lung module is stable if my last PET was negative? Also, would a CLND be offered along with the Opdivo? I feel like I have been anxious and stressed for 2 years. Any advice would be extremely appreciated. Prayers to you all ❤️.

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- - October 29, 2018 at 4:06 pm
  - Quote
  marta010
  Participant
  HI – when different radiologists view scans, each may see/comment on different things. If the lung nodule is tiny, it may have been missed by the first radiologist. It is extremely frustrating when subsequent scans mention – or omit – issues that were on previous scans. I can't answer your question about the CLND – myhusband had an unknown primary so we did not have a WLE or CLND. I hope your opdivo infusion and treatment are issue free! Take care.
  
  Ann
  - October 30, 2018 at 2:12 am
    
    Quote
    Dreaf01
    Participant
    
    Thank you ! Oncologist said there was no hyperactivity seen in the tiny lung nodule and it was on the images of the previous pet scan, just not noted on the report. He said it’s not of concern for now. He believes the groin nodes are reactive to the recent infection in my WLE upper thigh site? Nonetheless he said treatment would be the same if they did contain melanoma? So true, these were done in two totally different places. Opdivo was quick and painless. I’m trusting him as much as possible. I’ve been told Moffitt is one of the best places I can be. Hope I can slide through this year as uneventfully as possible. Prayers for you alwYs ❤️

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