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PET Scan results
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PET Scan results

› Forums › General Melanoma Community › PET Scan results

  • Post
    • August 15, 2012 at 1:23 am
    Roxy1453
    Participant
      I had the last 3 months off! No appointments, no problems! I went in today for another scan.

      I have no new spots!! But, the spot I have had behind my knee is still there. It has gotten a little smaller, but not enough. We talked, In the past, about surgery to remove it but it could cause me to have drop foot. Today we are back talking about surgery. Dr. Is going to talk to surgeon to see if it is still risky. I won’t know until Thurs.

      He did talk about the anti pd1 being available in the next 3 or 4 months. He also said I could just wait 8 weeks and have another scan to see if it changes.

      Any good ideas for me?

      Thanks,

      Nancy

    Viewing 2 reply threads
    • Replies
        • August 15, 2012 at 2:03 am
        JC
        Participant

          Hi

          May I ask you what Breslow did you have in your initial diagnosis? 

            • August 15, 2012 at 3:04 am
            Roxy1453
            Participant
              Insitu
              • August 15, 2012 at 9:14 am
              JC
              Participant

                In situ that spread??  I thought in situ was incapable of spreading?  Did it have regression, so maybe it was deeper at one time?  I don't know what to believe anymore.  All the scientific literature says in situ is essentially 100% curable if caught that early – noninvasive, nontumorigenic.

                • August 15, 2012 at 1:38 pm
                Roxy1453
                Participant
                  I thought so too! The first time it was removed they said all margins were clear. I thought I was done. But it came back 3 years later in the same spot. The chances of this happening are very low. If this is what you have, I wouldn’t be too concerned about it. But if you think it has come back, insist that they check it. I went to 3 different Drs and told them I thought it was back and they ALL told me no. finally it was scabbing and not healing and they checked it. And I’ve been through Hell and back since then.
                  • August 15, 2012 at 1:38 pm
                  Roxy1453
                  Participant
                    I thought so too! The first time it was removed they said all margins were clear. I thought I was done. But it came back 3 years later in the same spot. The chances of this happening are very low. If this is what you have, I wouldn’t be too concerned about it. But if you think it has come back, insist that they check it. I went to 3 different Drs and told them I thought it was back and they ALL told me no. finally it was scabbing and not healing and they checked it. And I’ve been through Hell and back since then.
                    • August 15, 2012 at 1:38 pm
                    Roxy1453
                    Participant
                      I thought so too! The first time it was removed they said all margins were clear. I thought I was done. But it came back 3 years later in the same spot. The chances of this happening are very low. If this is what you have, I wouldn’t be too concerned about it. But if you think it has come back, insist that they check it. I went to 3 different Drs and told them I thought it was back and they ALL told me no. finally it was scabbing and not healing and they checked it. And I’ve been through Hell and back since then.
                      • August 15, 2012 at 1:39 pm
                      Janner
                      Participant

                        A lesion on the nose could have easily been Lentigo Maligna.  That type of melanoma has a very high local recurrence rate.  Given the area, it is also harder to get good margins. 

                        You have to take this site with a grain of salt.  You DON'T see the 90+% of people who never deal with melanoma again.  You see the exceptions.  So if you are looking for comfort, it's unlikely you'll find it here if you're an early stager.  Asking everyone for their primary particulars will not change anything about your own melanoma prognosis.  This site will add anxiety, not relieve it (speaking from experience).  If you are a stage 0/1 warrior and want to join an email list of others in that same situation, email me.  Most of the people on the list had to walk away from this site because it only added to their anxiety, not alleviated it.

                        Janner

                        Stage I since 1992, 3 MM primaries

                        • August 15, 2012 at 1:39 pm
                        Janner
                        Participant

                          A lesion on the nose could have easily been Lentigo Maligna.  That type of melanoma has a very high local recurrence rate.  Given the area, it is also harder to get good margins. 

                          You have to take this site with a grain of salt.  You DON'T see the 90+% of people who never deal with melanoma again.  You see the exceptions.  So if you are looking for comfort, it's unlikely you'll find it here if you're an early stager.  Asking everyone for their primary particulars will not change anything about your own melanoma prognosis.  This site will add anxiety, not relieve it (speaking from experience).  If you are a stage 0/1 warrior and want to join an email list of others in that same situation, email me.  Most of the people on the list had to walk away from this site because it only added to their anxiety, not alleviated it.

                          Janner

                          Stage I since 1992, 3 MM primaries

                          • August 15, 2012 at 1:39 pm
                          Janner
                          Participant

                            A lesion on the nose could have easily been Lentigo Maligna.  That type of melanoma has a very high local recurrence rate.  Given the area, it is also harder to get good margins. 

                            You have to take this site with a grain of salt.  You DON'T see the 90+% of people who never deal with melanoma again.  You see the exceptions.  So if you are looking for comfort, it's unlikely you'll find it here if you're an early stager.  Asking everyone for their primary particulars will not change anything about your own melanoma prognosis.  This site will add anxiety, not relieve it (speaking from experience).  If you are a stage 0/1 warrior and want to join an email list of others in that same situation, email me.  Most of the people on the list had to walk away from this site because it only added to their anxiety, not alleviated it.

                            Janner

                            Stage I since 1992, 3 MM primaries

                            • August 15, 2012 at 9:14 am
                            JC
                            Participant

                              In situ that spread??  I thought in situ was incapable of spreading?  Did it have regression, so maybe it was deeper at one time?  I don't know what to believe anymore.  All the scientific literature says in situ is essentially 100% curable if caught that early – noninvasive, nontumorigenic.

                              • August 15, 2012 at 9:14 am
                              JC
                              Participant

                                In situ that spread??  I thought in situ was incapable of spreading?  Did it have regression, so maybe it was deeper at one time?  I don't know what to believe anymore.  All the scientific literature says in situ is essentially 100% curable if caught that early – noninvasive, nontumorigenic.

                                • August 15, 2012 at 3:04 am
                                Roxy1453
                                Participant
                                  Insitu
                                  • August 15, 2012 at 3:04 am
                                  Roxy1453
                                  Participant
                                    Insitu
                                  • August 15, 2012 at 2:03 am
                                  JC
                                  Participant

                                    Hi

                                    May I ask you what Breslow did you have in your initial diagnosis? 

                                    • August 15, 2012 at 2:03 am
                                    JC
                                    Participant

                                      Hi

                                      May I ask you what Breslow did you have in your initial diagnosis? 

                                  Viewing 2 reply threads
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