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Post Keytruda
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Post Keytruda

› Forums › Cutaneous Melanoma Community › Post Keytruda

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    • April 17, 2019 at 7:52 pm
    K_Todd2015
    Participant

      Hi, first time posting, but have been wondering if there are others who have been through a two year cycle of Keytruda and what their post treatment progress/symptoms have been.  

      I was diagnosed November 2015.  Tumor removed along with lymph nodes affected.  Stayed cancer free until February of 2017.  Melanoma came back in my right clavical/shoulder area (initial mole was on my right arm) and a lymph node in my neck on the right side and a lymph node in my neck on the left side.  Started Keytruda with minimal side effects (severe fatigue was the only thing I really struggled with).   At the end of my two year cycle still had a small tumor in my right clavical/shoulder.  I’m only about one month post Keytruda.  Still fighting the fatigue.  

      My main questions are if had symptoms when did you get some relief and what progress have you had in being NSD or relasp and timeframes.  For some reason I’m more scared now than I was when first diagnosed   Just wanted to see how my fellow fighters did.  Thanks, Kim

       

       

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        • April 17, 2019 at 8:45 pm
        Hukill
        Participant

          I did the ipi/nivo combo (5) then 52 doses of nivo and have been NED since August 2017, last dose August 2018. I have had 6 side effects that have not gone away with fatuige being the worse one. I also have insomnia and have been prescribed every sleep medication plus some anxiety meds and none work. So most times I am dead tired but lay in bed for hours and can't sleep. I have tried everything. I do fall asleep at my desk several times throughout the day at work. But to answer your question, my side effects still going strong and if my immune system is doing the same then so be it.

            • April 17, 2019 at 9:04 pm
            K_Todd2015
            Participant

              Thank you for sharing.  I’ll be anxious to see if there is some relief in sight for both of us, but like you said the side effects are better than the alternative. 

            • April 17, 2019 at 10:23 pm
            mandyjill
            Participant

              I also finished my treatements last August and am still experiencing severe fatique and muscle soreness.  I sleep really hard but get up in the mornings and feel like I haven't slept at all.  But I am NED, so I have a lot to be thankful for.

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