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Question on margins

Forums Cutaneous Melanoma Community Question on margins

  • Post
    Marie with 4 boys
    Participant
      I am recently diagnosed with melanoma in situ, and go to see the surgeon tomorrow to discuss treatment. I’m wondering if anyone has experience with having surgery, and then finding that they didn’t take enough after the pathology report comes back. I think I’m more scared of this than anything else (other than wanting this cancer off my skin before it spreads). My biopsy reported that it extended to the margins of the shave, and it is in the middle of a large (8 in by 5 in) congenital nevus/freckle area. Since it’s not like a “normal” nevus of small size, I’m a bit worried about this. I’d appreciate any thoughts on the matter of determining margins.

      Thanks.

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    • Replies
        Janner
        Participant

          I can understand your angst, but it is going to be hard to comment.  Extremely rare to have a nevus of that size although congenital nevus do have a higher risk of becoming melanoma.  If the rest of the nevus is not melanoma, they will just be evaluating margins based on what they see as more normal melanocytes versus those of melanoma.  I think in your situation, it is very possible they will have to go back in to get more.  That happens even on normal size moles or lesions too – especially lentigo maligna types.  I think I would ask them to take larger margins to begin with in hopes of getting rid of whatever is problematic.  5mm is standard for melanoma in situ but I have read a study where they think 9mm is actually a better number.  Stage I have 1cm margins.   Your surgeon will obviously have thoughts on this, too, and will hopefully have a strategy for this.  Good luck and let us know what happens.

          Janner
          Participant

            I can understand your angst, but it is going to be hard to comment.  Extremely rare to have a nevus of that size although congenital nevus do have a higher risk of becoming melanoma.  If the rest of the nevus is not melanoma, they will just be evaluating margins based on what they see as more normal melanocytes versus those of melanoma.  I think in your situation, it is very possible they will have to go back in to get more.  That happens even on normal size moles or lesions too – especially lentigo maligna types.  I think I would ask them to take larger margins to begin with in hopes of getting rid of whatever is problematic.  5mm is standard for melanoma in situ but I have read a study where they think 9mm is actually a better number.  Stage I have 1cm margins.   Your surgeon will obviously have thoughts on this, too, and will hopefully have a strategy for this.  Good luck and let us know what happens.

            Janner
            Participant

              I can understand your angst, but it is going to be hard to comment.  Extremely rare to have a nevus of that size although congenital nevus do have a higher risk of becoming melanoma.  If the rest of the nevus is not melanoma, they will just be evaluating margins based on what they see as more normal melanocytes versus those of melanoma.  I think in your situation, it is very possible they will have to go back in to get more.  That happens even on normal size moles or lesions too – especially lentigo maligna types.  I think I would ask them to take larger margins to begin with in hopes of getting rid of whatever is problematic.  5mm is standard for melanoma in situ but I have read a study where they think 9mm is actually a better number.  Stage I have 1cm margins.   Your surgeon will obviously have thoughts on this, too, and will hopefully have a strategy for this.  Good luck and let us know what happens.

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