Question Regarding Mis-Diagnosis 2 years ago
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Question Regarding Mis-Diagnosis 2 years ago

› Forums › General Melanoma Community › Question Regarding Mis-Diagnosis 2 years ago

  • Post
    • December 4, 2014 at 10:30 pm
    StephyD83
    Participant

      Hi Everyone-

      I wanted to get everyones opinion on this. How likely is it that I can have matestis since the Shave biopsy that was done in November 2012 was said to be Severly Atypical and never removed any further when in fact it was Stage 1A .4mm with occasional mitotic figures & peripheral margins involved. It wasnt until March 2014 that I had the re-excision and it was found to be a Scar with residual Melaonma In Situ extending to within 1 mm of the peripheral margin and it says that the dermis is alteres by a moderate degree of solar elastosis.

      So now it has been 2 years & I still do not have the propert 1 cm margins as of yet.

      Any advise is welcomed.

      Thanks!
      Stephanie

    Viewing 2 reply threads
    • Replies
        • December 5, 2014 at 2:05 am
        Janner
        Participant

          There is no way to know.  Most superficial spreading melanoma (most common type) is quite slow growing.  But whether that is lots of years or a few years or a year — no one can know.  All you can do is go from here and move on.  Spending time dwelling on the mistakes won't help you at all.  Just move forward and deal with the now.

            • December 5, 2014 at 2:56 am
            StephyD83
            Participant

              Thank you for your reply. I am not trying to dwell on it I just wanted to know how likely it would be as I cant seem to find anything on the net as most are removed straight away….I hope to have mopre info on Tuesday when I meet with my Oncologiest.

              Thanks!
              Stephanie

              • December 5, 2014 at 4:12 am
              Janner
              Participant

                You're really not going to find any information like that.  If you find any cases, they will be "one of's" – just like yours.  And there is just no way to make any assumptions.  You will have to have additional margins taken and see what that tells you.  Are they going to do a SNB as well?

                • December 5, 2014 at 4:31 pm
                StephyD83
                Participant

                  I think I will as I have enlarged lymph nodes along my lawline on the same side as the melanoma was (on my forehead) that they have been monitering prior to this news. The Dr. from UCSF emailed me back I asked her what the chances are that it did spread & she said there is no way to know that because a melanoma can spread even if it was removed rapidly. We don't know how fast mels spread and depends on many other factors. Right now lets make sure you get the best margins you can get and the best surveillance possible…I am very nervous about this whole thing. 

                  Stephanie

                  • December 5, 2014 at 4:31 pm
                  StephyD83
                  Participant

                    I think I will as I have enlarged lymph nodes along my lawline on the same side as the melanoma was (on my forehead) that they have been monitering prior to this news. The Dr. from UCSF emailed me back I asked her what the chances are that it did spread & she said there is no way to know that because a melanoma can spread even if it was removed rapidly. We don't know how fast mels spread and depends on many other factors. Right now lets make sure you get the best margins you can get and the best surveillance possible…I am very nervous about this whole thing. 

                    Stephanie

                    • December 5, 2014 at 4:31 pm
                    StephyD83
                    Participant

                      I think I will as I have enlarged lymph nodes along my lawline on the same side as the melanoma was (on my forehead) that they have been monitering prior to this news. The Dr. from UCSF emailed me back I asked her what the chances are that it did spread & she said there is no way to know that because a melanoma can spread even if it was removed rapidly. We don't know how fast mels spread and depends on many other factors. Right now lets make sure you get the best margins you can get and the best surveillance possible…I am very nervous about this whole thing. 

                      Stephanie

                      • December 5, 2014 at 4:12 am
                      Janner
                      Participant

                        You're really not going to find any information like that.  If you find any cases, they will be "one of's" – just like yours.  And there is just no way to make any assumptions.  You will have to have additional margins taken and see what that tells you.  Are they going to do a SNB as well?

                        • December 5, 2014 at 4:12 am
                        Janner
                        Participant

                          You're really not going to find any information like that.  If you find any cases, they will be "one of's" – just like yours.  And there is just no way to make any assumptions.  You will have to have additional margins taken and see what that tells you.  Are they going to do a SNB as well?

                          • December 5, 2014 at 2:56 am
                          StephyD83
                          Participant

                            Thank you for your reply. I am not trying to dwell on it I just wanted to know how likely it would be as I cant seem to find anything on the net as most are removed straight away….I hope to have mopre info on Tuesday when I meet with my Oncologiest.

                            Thanks!
                            Stephanie

                            • December 5, 2014 at 2:56 am
                            StephyD83
                            Participant

                              Thank you for your reply. I am not trying to dwell on it I just wanted to know how likely it would be as I cant seem to find anything on the net as most are removed straight away….I hope to have mopre info on Tuesday when I meet with my Oncologiest.

                              Thanks!
                              Stephanie

                            • December 5, 2014 at 2:05 am
                            Janner
                            Participant

                              There is no way to know.  Most superficial spreading melanoma (most common type) is quite slow growing.  But whether that is lots of years or a few years or a year — no one can know.  All you can do is go from here and move on.  Spending time dwelling on the mistakes won't help you at all.  Just move forward and deal with the now.

                              • December 5, 2014 at 2:05 am
                              Janner
                              Participant

                                There is no way to know.  Most superficial spreading melanoma (most common type) is quite slow growing.  But whether that is lots of years or a few years or a year — no one can know.  All you can do is go from here and move on.  Spending time dwelling on the mistakes won't help you at all.  Just move forward and deal with the now.

                            Viewing 2 reply threads
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