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Questions for the Oncologist
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Questions for the Oncologist

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  • Post
    • June 28, 2012 at 12:20 am
    Sharona19
    Participant
      I will see the Oncologist for the first time since diagnosis, WLE with full thinkness skin graft and SLNB of invasive nodular melanoma of the left foot. So far, margins are clear as are the nodes and I want to as aggressive as possible in keeping any recurrence at bay. Can anyone offer suggestions on questions I should ask about a treatment plan? Are there any Stage II folks receiving treatment? I would appreciate any advice or stories from anyone so I can make the best, most informed decision for my treatment.

      Thank you in advance for any help.

      Sharon

      I will see the Oncologist for the first time since diagnosis, WLE with full thinkness skin graft and SLNB of invasive nodular melanoma of the left foot. So far, margins are clear as are the nodes and I want to as aggressive as possible in keeping any recurrence at bay. Can anyone offer suggestions on questions I should ask about a treatment plan? Are there any Stage II folks receiving treatment? I would appreciate any advice or stories from anyone so I can make the best, most informed decision for my treatment.

      Thank you in advance for any help.

      Sharon

    Viewing 5 reply threads
    • Replies
        • June 28, 2012 at 1:47 am
        washoegal
        Participant

          There really still isn't much approved treatment for people that are currently NED (No Evidence of Deseise) except for Yervoy (aka Ippi).  Do a search under those two and you will find plenty of discussion.  It's a personal decision as whether or not to go this route. 

          Also discuss with him any questions you have regarding possible lyphedema, if you are having the slightest bit of inflammation.  Since you did not have all your lymph nodes removed this may never be an issue.

           

          Good Luck and lets us know how your visit goes,

          Mary

          Stage 3

            • June 28, 2012 at 4:42 am
            LynnLuc
            Participant

              There are several trials now for NED…look on cancer.gov for "resected melanoma". I was surgically resected and I am in a Anti PD 1 trial at Moffitt in Tampa. I am stage 4 and been NED for 2 years.

              • June 28, 2012 at 4:42 am
              LynnLuc
              Participant

                There are several trials now for NED…look on cancer.gov for "resected melanoma". I was surgically resected and I am in a Anti PD 1 trial at Moffitt in Tampa. I am stage 4 and been NED for 2 years.

                • June 28, 2012 at 4:42 am
                LynnLuc
                Participant

                  There are several trials now for NED…look on cancer.gov for "resected melanoma". I was surgically resected and I am in a Anti PD 1 trial at Moffitt in Tampa. I am stage 4 and been NED for 2 years.

                • June 28, 2012 at 1:47 am
                washoegal
                Participant

                  There really still isn't much approved treatment for people that are currently NED (No Evidence of Deseise) except for Yervoy (aka Ippi).  Do a search under those two and you will find plenty of discussion.  It's a personal decision as whether or not to go this route. 

                  Also discuss with him any questions you have regarding possible lyphedema, if you are having the slightest bit of inflammation.  Since you did not have all your lymph nodes removed this may never be an issue.

                   

                  Good Luck and lets us know how your visit goes,

                  Mary

                  Stage 3

                  • June 28, 2012 at 1:47 am
                  washoegal
                  Participant

                    There really still isn't much approved treatment for people that are currently NED (No Evidence of Deseise) except for Yervoy (aka Ippi).  Do a search under those two and you will find plenty of discussion.  It's a personal decision as whether or not to go this route. 

                    Also discuss with him any questions you have regarding possible lyphedema, if you are having the slightest bit of inflammation.  Since you did not have all your lymph nodes removed this may never be an issue.

                     

                    Good Luck and lets us know how your visit goes,

                    Mary

                    Stage 3

                    • June 28, 2012 at 2:04 am
                    washoegal
                    Participant

                      OOOPS!  Brain Dead.  Meant to say do a search here for Interferon.  Yervoy is a drug approved only for Stage 4.

                      Mary

                      • June 28, 2012 at 2:04 am
                      washoegal
                      Participant

                        OOOPS!  Brain Dead.  Meant to say do a search here for Interferon.  Yervoy is a drug approved only for Stage 4.

                        Mary

                          • June 28, 2012 at 3:44 am
                          Sharona19
                          Participant
                            Thanks for your reply. The only info I have found is on interferon and it’s controversial benefits.

                            Also, I see you live in Washoe Valley. I grew up in Reno and went to Wooster High : )

                            • June 28, 2012 at 3:44 am
                            Sharona19
                            Participant
                              Thanks for your reply. The only info I have found is on interferon and it’s controversial benefits.

                              Also, I see you live in Washoe Valley. I grew up in Reno and went to Wooster High : )

                              • June 28, 2012 at 3:44 am
                              Sharona19
                              Participant
                                Thanks for your reply. The only info I have found is on interferon and it’s controversial benefits.

                                Also, I see you live in Washoe Valley. I grew up in Reno and went to Wooster High : )

                              • June 28, 2012 at 2:04 am
                              washoegal
                              Participant

                                OOOPS!  Brain Dead.  Meant to say do a search here for Interferon.  Yervoy is a drug approved only for Stage 4.

                                Mary

                            Viewing 5 reply threads

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