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Radiation in stage 3?

Forums General Melanoma Community Radiation in stage 3?

  • Post
    jackson22
    Participant

      The doctors are recommending radiation post surgical resection for stage 3.  Of course, there's the option to wait and see but it sounds like the recommendation is pretty strong for radiation (esp since melanoma has come back once locally).  Wondering what other people in our shoes have done?  And if you've done radiation, what have the short term/long term side effects been for you?  We are likely going to be doing  Keytruda/ study as well but need to decide on radiation first….and quickly:) 

      Thank you so much for sharing!  Also just wanted to say what a blessing this site has been for us.  It's nice to know there are others out there going through this and we're not alone.  The support and information provided by the people on this site has been unbelievable.  Thank you!

    Viewing 5 reply threads
    • Replies
        arthurjedi007
        Participant

          I've had a lot of radiation. A lot depends on the dose which they call gray and the number of treatments which they call fractions. What my radiation doc calls low dose is 30 gray in 10 fractions. High dose is 30 gray in 5 fractions. I would be very Leary if they are wanting to do higher doses than that. Those higher doses can really cause more problems than they are worth in my opinion. Also the location of the radiation is important. If the beams have to pass through sensitive things to get to the spot that can be rough.

          Also if you can get a dose or two of keytruda in then start radiation while on keytruda there is some anecdotal evidence the two sometimes work better together than by themselves.

          As far as side affects the first time was a very queszy stomach. The last time last winter it knocked the stuffins out of me. Was very weak and frail. You have to keep strong by eating good, exercise and rest. But the side affects really depend on location. The radiation tries to tear you down but you have to keep building yourself back up. So far to my knowledge the only long term affect I've had is some minor neuropathy in my leg.

          Hope that helps.

          Artie

          arthurjedi007
          Participant

            I've had a lot of radiation. A lot depends on the dose which they call gray and the number of treatments which they call fractions. What my radiation doc calls low dose is 30 gray in 10 fractions. High dose is 30 gray in 5 fractions. I would be very Leary if they are wanting to do higher doses than that. Those higher doses can really cause more problems than they are worth in my opinion. Also the location of the radiation is important. If the beams have to pass through sensitive things to get to the spot that can be rough.

            Also if you can get a dose or two of keytruda in then start radiation while on keytruda there is some anecdotal evidence the two sometimes work better together than by themselves.

            As far as side affects the first time was a very queszy stomach. The last time last winter it knocked the stuffins out of me. Was very weak and frail. You have to keep strong by eating good, exercise and rest. But the side affects really depend on location. The radiation tries to tear you down but you have to keep building yourself back up. So far to my knowledge the only long term affect I've had is some minor neuropathy in my leg.

            Hope that helps.

            Artie

            arthurjedi007
            Participant

              I've had a lot of radiation. A lot depends on the dose which they call gray and the number of treatments which they call fractions. What my radiation doc calls low dose is 30 gray in 10 fractions. High dose is 30 gray in 5 fractions. I would be very Leary if they are wanting to do higher doses than that. Those higher doses can really cause more problems than they are worth in my opinion. Also the location of the radiation is important. If the beams have to pass through sensitive things to get to the spot that can be rough.

              Also if you can get a dose or two of keytruda in then start radiation while on keytruda there is some anecdotal evidence the two sometimes work better together than by themselves.

              As far as side affects the first time was a very queszy stomach. The last time last winter it knocked the stuffins out of me. Was very weak and frail. You have to keep strong by eating good, exercise and rest. But the side affects really depend on location. The radiation tries to tear you down but you have to keep building yourself back up. So far to my knowledge the only long term affect I've had is some minor neuropathy in my leg.

              Hope that helps.

              Artie

              273c
              Participant

                First, I just accidently hit the report button instead of the reply button.  I don't think it went through but I will appologize just in case it did.  

                 

                I will agree with much of what Artie said.  

                My husband started the Opnivo, and after a couple months did the radiation along with.  The theory being the surgery won't get all the little cells floating around in the area and you really don't want to have to operate twice in the same area.  

                 

                Supporting this theory, my husband had a large tumor in his lymph node, no primary melanoma site.  When they did the biopsy they were pretty sure it was lymphoma so in they went, took the biopsy, pulled the tool/needle back out and didn't think much of it.  Two weeks later, no not lymphoma it is melanoma.  A month later the surgeon removed the tumor and he also removed the tissue surrounding the puncture site from the biopsy and sure enough there were melanoma cells in there.  As the biopsy tool had been dragged across the healthy tissue, little melanoma cells had been deposited and were taking hold. 

                 

                My husband is finishing up localized radiation and it hasn't been too bad.  Fatigue, a bit of nausea here and there, just generally feeling crummy.  But we know why and we know it will get better.

                 

                Kathy

                273c
                Participant

                  First, I just accidently hit the report button instead of the reply button.  I don't think it went through but I will appologize just in case it did.  

                   

                  I will agree with much of what Artie said.  

                  My husband started the Opnivo, and after a couple months did the radiation along with.  The theory being the surgery won't get all the little cells floating around in the area and you really don't want to have to operate twice in the same area.  

                   

                  Supporting this theory, my husband had a large tumor in his lymph node, no primary melanoma site.  When they did the biopsy they were pretty sure it was lymphoma so in they went, took the biopsy, pulled the tool/needle back out and didn't think much of it.  Two weeks later, no not lymphoma it is melanoma.  A month later the surgeon removed the tumor and he also removed the tissue surrounding the puncture site from the biopsy and sure enough there were melanoma cells in there.  As the biopsy tool had been dragged across the healthy tissue, little melanoma cells had been deposited and were taking hold. 

                   

                  My husband is finishing up localized radiation and it hasn't been too bad.  Fatigue, a bit of nausea here and there, just generally feeling crummy.  But we know why and we know it will get better.

                   

                  Kathy

                  273c
                  Participant

                    First, I just accidently hit the report button instead of the reply button.  I don't think it went through but I will appologize just in case it did.  

                     

                    I will agree with much of what Artie said.  

                    My husband started the Opnivo, and after a couple months did the radiation along with.  The theory being the surgery won't get all the little cells floating around in the area and you really don't want to have to operate twice in the same area.  

                     

                    Supporting this theory, my husband had a large tumor in his lymph node, no primary melanoma site.  When they did the biopsy they were pretty sure it was lymphoma so in they went, took the biopsy, pulled the tool/needle back out and didn't think much of it.  Two weeks later, no not lymphoma it is melanoma.  A month later the surgeon removed the tumor and he also removed the tissue surrounding the puncture site from the biopsy and sure enough there were melanoma cells in there.  As the biopsy tool had been dragged across the healthy tissue, little melanoma cells had been deposited and were taking hold. 

                     

                    My husband is finishing up localized radiation and it hasn't been too bad.  Fatigue, a bit of nausea here and there, just generally feeling crummy.  But we know why and we know it will get better.

                     

                    Kathy

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