› Forums › General Melanoma Community › Rigvir anyone?
- This topic has 42 replies, 7 voices, and was last updated 8 years, 6 months ago by
_Paul_.
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- October 26, 2016 at 1:56 am
Hello I was diagnosed with stage 3 melanoma last year and now have shown a recurrence in the same leg and small spots on the liver. I have been looking into Rigvir for a while and many look at me as if I’m crazy. I have small children and need help and have heard back from their clinic but want to speak to people wgo have tried it. hope4cancer.com
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- October 26, 2016 at 2:12 am
In all my years on this board, I think I have heard this mentioned one time. And I'm not positive it was posted here, it might have been an email from a Latvian native. You might have better luck searching for people on European sites because this isn't something available outside of Eastern Europe that I'm aware of. Certainly not FDA approved as a treatment in the USA. Good luck!
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- October 26, 2016 at 2:12 am
In all my years on this board, I think I have heard this mentioned one time. And I'm not positive it was posted here, it might have been an email from a Latvian native. You might have better luck searching for people on European sites because this isn't something available outside of Eastern Europe that I'm aware of. Certainly not FDA approved as a treatment in the USA. Good luck!
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- October 26, 2016 at 2:12 am
In all my years on this board, I think I have heard this mentioned one time. And I'm not positive it was posted here, it might have been an email from a Latvian native. You might have better luck searching for people on European sites because this isn't something available outside of Eastern Europe that I'm aware of. Certainly not FDA approved as a treatment in the USA. Good luck!
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- October 26, 2016 at 3:04 am
After looking at the youtube video of this poor fellow who lost his life this June 2016, Dr Jimenez of Hope4Cancer does not inspire me at all. If you want to seek alternative medicine, you can look at Gerson institute or Sanoviv institute. And they are all in Tijuana.
I know its scary. Don't you have absolutely no therapies available to you in terms of immuno or targeted therapies?
Are you, like me faced with deceiving adjuvant therapies for stage 3?
I am considering Sanoviv at the moment, not knowing what to do yet. My choices of adjuvant therapies are interferon or two c'inical trials that I'm not even sire I would qualify for. So I'm watch and wait at the moment and I want to do something….
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- October 26, 2016 at 3:04 am
After looking at the youtube video of this poor fellow who lost his life this June 2016, Dr Jimenez of Hope4Cancer does not inspire me at all. If you want to seek alternative medicine, you can look at Gerson institute or Sanoviv institute. And they are all in Tijuana.
I know its scary. Don't you have absolutely no therapies available to you in terms of immuno or targeted therapies?
Are you, like me faced with deceiving adjuvant therapies for stage 3?
I am considering Sanoviv at the moment, not knowing what to do yet. My choices of adjuvant therapies are interferon or two c'inical trials that I'm not even sire I would qualify for. So I'm watch and wait at the moment and I want to do something….
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- October 26, 2016 at 3:04 am
After looking at the youtube video of this poor fellow who lost his life this June 2016, Dr Jimenez of Hope4Cancer does not inspire me at all. If you want to seek alternative medicine, you can look at Gerson institute or Sanoviv institute. And they are all in Tijuana.
I know its scary. Don't you have absolutely no therapies available to you in terms of immuno or targeted therapies?
Are you, like me faced with deceiving adjuvant therapies for stage 3?
I am considering Sanoviv at the moment, not knowing what to do yet. My choices of adjuvant therapies are interferon or two c'inical trials that I'm not even sire I would qualify for. So I'm watch and wait at the moment and I want to do something….
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- October 26, 2016 at 3:26 am
Sorry, I misread you post, you have had a recurrence and liver seems to be affected.
Listen, don't play with your life. Do something you believe in of course but even if it's scary, you have to survive this. Do a holistic approach that includes traditional therapy (allopatic), nutrition, energetic, psychological and spiritual "therapies". This is my point of view and if I progress, I will stick to that plan.
You can gamble with many things but a broad approach seems to me like doing everything in my power to overcome this thing.
Anyway, you will choose what's best for you.
Get some rest.
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- October 26, 2016 at 3:26 am
Sorry, I misread you post, you have had a recurrence and liver seems to be affected.
Listen, don't play with your life. Do something you believe in of course but even if it's scary, you have to survive this. Do a holistic approach that includes traditional therapy (allopatic), nutrition, energetic, psychological and spiritual "therapies". This is my point of view and if I progress, I will stick to that plan.
You can gamble with many things but a broad approach seems to me like doing everything in my power to overcome this thing.
Anyway, you will choose what's best for you.
Get some rest.
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- October 26, 2016 at 3:26 am
Sorry, I misread you post, you have had a recurrence and liver seems to be affected.
Listen, don't play with your life. Do something you believe in of course but even if it's scary, you have to survive this. Do a holistic approach that includes traditional therapy (allopatic), nutrition, energetic, psychological and spiritual "therapies". This is my point of view and if I progress, I will stick to that plan.
You can gamble with many things but a broad approach seems to me like doing everything in my power to overcome this thing.
Anyway, you will choose what's best for you.
Get some rest.
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- October 26, 2016 at 3:46 am
Why would you not start one of the great and well studied immunotherapy drugs that have helped to save many lives and keep a lot of us living much longer than what would have happened in the past? It's a little crazy not to start with something that is proven to work for melanoma. But, certainly it is your body and your life, up to you to decide what path you want to take.
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- October 26, 2016 at 3:46 am
Why would you not start one of the great and well studied immunotherapy drugs that have helped to save many lives and keep a lot of us living much longer than what would have happened in the past? It's a little crazy not to start with something that is proven to work for melanoma. But, certainly it is your body and your life, up to you to decide what path you want to take.
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- October 26, 2016 at 3:46 am
Why would you not start one of the great and well studied immunotherapy drugs that have helped to save many lives and keep a lot of us living much longer than what would have happened in the past? It's a little crazy not to start with something that is proven to work for melanoma. But, certainly it is your body and your life, up to you to decide what path you want to take.
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- October 26, 2016 at 2:26 pm
I'm from Canada and also looking at Rigvir as an option…the results and information on success rates are exceptional and can actually be complimentary to other therapies. I think it's important to research all options. Although we like to think North American treatment options are best…we have to be honest and look outside the borders and understand why some of these treatments are not offered (it's not always because they do not work). My only option for treatment at this time (since I don't qualify for yervoy etc) is interfuron-alpha (standard treatment in Canada). There is also a clinic in the Bahamas that does Rigvir that I am looking into. I'm also doing as much as possible holistically (natural food products, Conventional doctors think I'm crazy I'm sure as will many of you…but do what your gut tells you. Rigvir is standard of care in many areas outside of north america.
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- October 26, 2016 at 3:29 pm
Hi Geoff, I am kind of curious why you don't quailify for Ipi (Yeryoy) or Pembro (Keytruda) since both are available to stage 4 patients in Canada. Best Wishes!!!!Ed
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- October 26, 2016 at 3:29 pm
Hi Geoff, I am kind of curious why you don't quailify for Ipi (Yeryoy) or Pembro (Keytruda) since both are available to stage 4 patients in Canada. Best Wishes!!!!Ed
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- October 26, 2016 at 3:29 pm
Hi Geoff, I am kind of curious why you don't quailify for Ipi (Yeryoy) or Pembro (Keytruda) since both are available to stage 4 patients in Canada. Best Wishes!!!!Ed
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- October 26, 2016 at 2:26 pm
I'm from Canada and also looking at Rigvir as an option…the results and information on success rates are exceptional and can actually be complimentary to other therapies. I think it's important to research all options. Although we like to think North American treatment options are best…we have to be honest and look outside the borders and understand why some of these treatments are not offered (it's not always because they do not work). My only option for treatment at this time (since I don't qualify for yervoy etc) is interfuron-alpha (standard treatment in Canada). There is also a clinic in the Bahamas that does Rigvir that I am looking into. I'm also doing as much as possible holistically (natural food products, Conventional doctors think I'm crazy I'm sure as will many of you…but do what your gut tells you. Rigvir is standard of care in many areas outside of north america.
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- October 26, 2016 at 2:26 pm
I'm from Canada and also looking at Rigvir as an option…the results and information on success rates are exceptional and can actually be complimentary to other therapies. I think it's important to research all options. Although we like to think North American treatment options are best…we have to be honest and look outside the borders and understand why some of these treatments are not offered (it's not always because they do not work). My only option for treatment at this time (since I don't qualify for yervoy etc) is interfuron-alpha (standard treatment in Canada). There is also a clinic in the Bahamas that does Rigvir that I am looking into. I'm also doing as much as possible holistically (natural food products, Conventional doctors think I'm crazy I'm sure as will many of you…but do what your gut tells you. Rigvir is standard of care in many areas outside of north america.
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- October 29, 2016 at 5:42 pm
What a coincidence. I am recuperating between OX-40/anti-PD-L1 treatments at a resort in Cancun. On the elevator the other day I said hi to a woman that stepped on, and after a brief exchange she told me her husband was here for treatment of late stage melanoma.Turns out this hotel is part of a very expensive package sold by Dr. Jiminez's Hope 4 Cancer outfit. I met her husband and did some digging on the internet and was saddened by what I found about Jiminez, but encouraged about Rigvir.There are many patients here at the hotel, his practice appears to be booming.Hope 4 Cancer's treatment includes a bunch of voodoo: coffee enemas, ultrasound "therapy", light "therapy" plus other magic juju. But it also includes Rigvir.The Rigvir actually looks promising, even though I can't say the same for Jiminez. It is now available at several locations in Europe and has become the object of growing medical tourism to Europe.The Latvian clinical trials apparently satisfied Latvia and it appears that additional trials are underway in the EU.For me, it means another option. I have failed both Yervoy and Keytruda. TIL is my current plan B, but in my eyes is an extreme measure because of its debilitating toxicity.In that light Rigvir looks appealing. -
- October 29, 2016 at 5:42 pm
What a coincidence. I am recuperating between OX-40/anti-PD-L1 treatments at a resort in Cancun. On the elevator the other day I said hi to a woman that stepped on, and after a brief exchange she told me her husband was here for treatment of late stage melanoma.Turns out this hotel is part of a very expensive package sold by Dr. Jiminez's Hope 4 Cancer outfit. I met her husband and did some digging on the internet and was saddened by what I found about Jiminez, but encouraged about Rigvir.There are many patients here at the hotel, his practice appears to be booming.Hope 4 Cancer's treatment includes a bunch of voodoo: coffee enemas, ultrasound "therapy", light "therapy" plus other magic juju. But it also includes Rigvir.The Rigvir actually looks promising, even though I can't say the same for Jiminez. It is now available at several locations in Europe and has become the object of growing medical tourism to Europe.The Latvian clinical trials apparently satisfied Latvia and it appears that additional trials are underway in the EU.For me, it means another option. I have failed both Yervoy and Keytruda. TIL is my current plan B, but in my eyes is an extreme measure because of its debilitating toxicity.In that light Rigvir looks appealing.-
- November 3, 2016 at 1:06 am
Paul,
I would like to know what studies you have come across that lead you to believe that Rigvir has promising results for late stage patients.
I have seen a few graphs that adress progression free survival for stage 1b, 2a, 2b and 2c. And one clinical case of a woman with stage 4 which was supposedly progression-free and alive but still with active disease.
Please, let me know. I also found out that a single vial of Rigvir costs 900$US and that you have to buy it from one of the facility in Tijuana that carry it (Sanoviv, Hope4Cancer, Chipsa, …) after having followed one of their treatment I suppose.
Unless you are able to give us a way to get it from the people you are with in Cancun.
Let me know please.
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- November 3, 2016 at 1:06 am
Paul,
I would like to know what studies you have come across that lead you to believe that Rigvir has promising results for late stage patients.
I have seen a few graphs that adress progression free survival for stage 1b, 2a, 2b and 2c. And one clinical case of a woman with stage 4 which was supposedly progression-free and alive but still with active disease.
Please, let me know. I also found out that a single vial of Rigvir costs 900$US and that you have to buy it from one of the facility in Tijuana that carry it (Sanoviv, Hope4Cancer, Chipsa, …) after having followed one of their treatment I suppose.
Unless you are able to give us a way to get it from the people you are with in Cancun.
Let me know please.
-
- November 3, 2016 at 1:06 am
Paul,
I would like to know what studies you have come across that lead you to believe that Rigvir has promising results for late stage patients.
I have seen a few graphs that adress progression free survival for stage 1b, 2a, 2b and 2c. And one clinical case of a woman with stage 4 which was supposedly progression-free and alive but still with active disease.
Please, let me know. I also found out that a single vial of Rigvir costs 900$US and that you have to buy it from one of the facility in Tijuana that carry it (Sanoviv, Hope4Cancer, Chipsa, …) after having followed one of their treatment I suppose.
Unless you are able to give us a way to get it from the people you are with in Cancun.
Let me know please.
-
- November 3, 2016 at 5:53 pm
Studies are maddeningly difficult to find. What I found that is hopeful is that it apparently has received a grant from the EU to conduct additional trials: https://www.google.com.mx/amp/medicalxpress.com/news/2016-08-virus-rigvir-cancer-survival.amp?client=safari
I don't know these folks that happen to be at this hotel. And as I mentioned I am not a big fan of hope4cancer since it appears to exist simply to generate revenue from desperate people.
I did contact the folks in Latvia, to inquire about cost. They want some details of my case first which has to wait for my return stateside.
-
- November 3, 2016 at 5:53 pm
Studies are maddeningly difficult to find. What I found that is hopeful is that it apparently has received a grant from the EU to conduct additional trials: https://www.google.com.mx/amp/medicalxpress.com/news/2016-08-virus-rigvir-cancer-survival.amp?client=safari
I don't know these folks that happen to be at this hotel. And as I mentioned I am not a big fan of hope4cancer since it appears to exist simply to generate revenue from desperate people.
I did contact the folks in Latvia, to inquire about cost. They want some details of my case first which has to wait for my return stateside.
-
- November 13, 2016 at 3:28 am
In ~1999 Hope4Cancer’s “Dr Tony” got a diploma from Basil Earle Wainwright, a con-man who had gone to jail in USA for impersonating a doctor … http://archive.is/cIeD8#selection-235.617-235.895 . In 201? “Dr Tony” got another diploma, from the manufacturers of Rigvir® in Latvia … http://archive.is/DHvCR#selection-1861.0-1879.1 . Given the context, there is something not right about Rigvir® … http://archive.is/rLZ8i#selection-1927.4-1927.56 -
- November 13, 2016 at 3:28 am
In ~1999 Hope4Cancer’s “Dr Tony” got a diploma from Basil Earle Wainwright, a con-man who had gone to jail in USA for impersonating a doctor … http://archive.is/cIeD8#selection-235.617-235.895 . In 201? “Dr Tony” got another diploma, from the manufacturers of Rigvir® in Latvia … http://archive.is/DHvCR#selection-1861.0-1879.1 . Given the context, there is something not right about Rigvir® … http://archive.is/rLZ8i#selection-1927.4-1927.56 -
- November 13, 2016 at 3:28 am
In ~1999 Hope4Cancer’s “Dr Tony” got a diploma from Basil Earle Wainwright, a con-man who had gone to jail in USA for impersonating a doctor … http://archive.is/cIeD8#selection-235.617-235.895 . In 201? “Dr Tony” got another diploma, from the manufacturers of Rigvir® in Latvia … http://archive.is/DHvCR#selection-1861.0-1879.1 . Given the context, there is something not right about Rigvir® … http://archive.is/rLZ8i#selection-1927.4-1927.56 -
- November 17, 2016 at 1:59 am
I got the same feeling. Here is what the folks at the "International Virotherapy Center" in Latvia sent me after I asked about clinical data:
"There were patients with advanced melanoma stages and there were positive experience but statistical data on such cases has not been summarized yet. Here you can find publications on Rigvir in melanoma cases as well as some patient experience:
Melanoma: http://rigvir.com/post-registartion-experience/
Clinical publications: http://www.virotherapy.eu/clinical-publications.phpIt seems odd that if 75% of patients are receiving Rigvir, which has been the standard of care for years, that they would have some clinical data. Most of the above links hash the same stories over and over again, and only 1 stage 4 patient's results are actually discussed.
Also, I agree that since they are allowing a criminal con like Hope 4 Cancer to provide Rigvir that it sounds very fishy.
Bummer.
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- November 17, 2016 at 1:59 am
I got the same feeling. Here is what the folks at the "International Virotherapy Center" in Latvia sent me after I asked about clinical data:
"There were patients with advanced melanoma stages and there were positive experience but statistical data on such cases has not been summarized yet. Here you can find publications on Rigvir in melanoma cases as well as some patient experience:
Melanoma: http://rigvir.com/post-registartion-experience/
Clinical publications: http://www.virotherapy.eu/clinical-publications.phpIt seems odd that if 75% of patients are receiving Rigvir, which has been the standard of care for years, that they would have some clinical data. Most of the above links hash the same stories over and over again, and only 1 stage 4 patient's results are actually discussed.
Also, I agree that since they are allowing a criminal con like Hope 4 Cancer to provide Rigvir that it sounds very fishy.
Bummer.
-
- November 17, 2016 at 1:59 am
I got the same feeling. Here is what the folks at the "International Virotherapy Center" in Latvia sent me after I asked about clinical data:
"There were patients with advanced melanoma stages and there were positive experience but statistical data on such cases has not been summarized yet. Here you can find publications on Rigvir in melanoma cases as well as some patient experience:
Melanoma: http://rigvir.com/post-registartion-experience/
Clinical publications: http://www.virotherapy.eu/clinical-publications.phpIt seems odd that if 75% of patients are receiving Rigvir, which has been the standard of care for years, that they would have some clinical data. Most of the above links hash the same stories over and over again, and only 1 stage 4 patient's results are actually discussed.
Also, I agree that since they are allowing a criminal con like Hope 4 Cancer to provide Rigvir that it sounds very fishy.
Bummer.
-
- November 17, 2016 at 2:01 am
The spam filter blocked me from posting the remaining links from the "International Virotherapy Center".
Preclinical publications: http://www.virotherapy.eu/preclinical-publications.php
Publication in PubMed: http://www.ncbi.nlm.nih.gov/pubmed/26193376
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- November 17, 2016 at 2:01 am
The spam filter blocked me from posting the remaining links from the "International Virotherapy Center".
Preclinical publications: http://www.virotherapy.eu/preclinical-publications.php
Publication in PubMed: http://www.ncbi.nlm.nih.gov/pubmed/26193376
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- November 17, 2016 at 2:01 am
The spam filter blocked me from posting the remaining links from the "International Virotherapy Center".
Preclinical publications: http://www.virotherapy.eu/preclinical-publications.php
Publication in PubMed: http://www.ncbi.nlm.nih.gov/pubmed/26193376
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- November 17, 2016 at 2:01 am
The last two:
http://www.ncbi.nlm.nih.gov/pubmed/27457663
Patient stories: http://www.virotherapy.eu/patient-stories.php" -
- November 17, 2016 at 2:01 am
The last two:
http://www.ncbi.nlm.nih.gov/pubmed/27457663
Patient stories: http://www.virotherapy.eu/patient-stories.php" -
- November 17, 2016 at 2:01 am
The last two:
http://www.ncbi.nlm.nih.gov/pubmed/27457663
Patient stories: http://www.virotherapy.eu/patient-stories.php" -
- November 3, 2016 at 5:53 pm
Studies are maddeningly difficult to find. What I found that is hopeful is that it apparently has received a grant from the EU to conduct additional trials: https://www.google.com.mx/amp/medicalxpress.com/news/2016-08-virus-rigvir-cancer-survival.amp?client=safari
I don't know these folks that happen to be at this hotel. And as I mentioned I am not a big fan of hope4cancer since it appears to exist simply to generate revenue from desperate people.
I did contact the folks in Latvia, to inquire about cost. They want some details of my case first which has to wait for my return stateside.
-
- October 29, 2016 at 5:42 pm
What a coincidence. I am recuperating between OX-40/anti-PD-L1 treatments at a resort in Cancun. On the elevator the other day I said hi to a woman that stepped on, and after a brief exchange she told me her husband was here for treatment of late stage melanoma.Turns out this hotel is part of a very expensive package sold by Dr. Jiminez's Hope 4 Cancer outfit. I met her husband and did some digging on the internet and was saddened by what I found about Jiminez, but encouraged about Rigvir.There are many patients here at the hotel, his practice appears to be booming.Hope 4 Cancer's treatment includes a bunch of voodoo: coffee enemas, ultrasound "therapy", light "therapy" plus other magic juju. But it also includes Rigvir.The Rigvir actually looks promising, even though I can't say the same for Jiminez. It is now available at several locations in Europe and has become the object of growing medical tourism to Europe.The Latvian clinical trials apparently satisfied Latvia and it appears that additional trials are underway in the EU.For me, it means another option. I have failed both Yervoy and Keytruda. TIL is my current plan B, but in my eyes is an extreme measure because of its debilitating toxicity.In that light Rigvir looks appealing.
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