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  • Post
    • September 8, 2016 at 10:55 pm
    JoshF
    Participant

      Well the initial read from oncologist wasn't the best and wasn't the worst. No immune hepatitis. She said tumor flare is causing issue with enzymes. Didn't real see any significant disease other than what's in liver…my guess looking was over a dozen tumors, mostly small but more in there nonetheless. She was happy that there wasn't immune hepatitis because that most likely puts me out of trial. Bad thing is liver enzymes haven't changed. I'm assuming ipi failed…supposed to leave Wednesday for MDA…not a lot of time. Thanks for all the support!

      Josh

    Viewing 38 reply threads
    • Replies
        • September 8, 2016 at 11:28 pm
        geriakt
        Participant
          Keep pushing through Josh
          • September 8, 2016 at 11:28 pm
          geriakt
          Participant
            Keep pushing through Josh
            • September 8, 2016 at 11:28 pm
            geriakt
            Participant
              Keep pushing through Josh
                • September 8, 2016 at 11:40 pm
                tschmith
                Participant

                  Best of luck, Josh!  You keep fighting and we'll keep praying.

                  Terrie

                  • September 8, 2016 at 11:40 pm
                  tschmith
                  Participant

                    Best of luck, Josh!  You keep fighting and we'll keep praying.

                    Terrie

                    • September 8, 2016 at 11:40 pm
                    tschmith
                    Participant

                      Best of luck, Josh!  You keep fighting and we'll keep praying.

                      Terrie

                    • September 8, 2016 at 11:28 pm
                    geriakt
                    Participant
                      Keep pushing through Josh
                      • September 8, 2016 at 11:28 pm
                      geriakt
                      Participant
                        Keep pushing through Josh
                        • September 8, 2016 at 11:28 pm
                        geriakt
                        Participant
                          Keep pushing through Josh
                          • September 8, 2016 at 11:51 pm
                          JoshF
                          Participant

                            Thanks!!! I need those liver enzymes to drop. My ALT is too high and will exclude me from trial. I also spoke to her after post and she said hoping this is pseudo progression. Don't know what to think…all I can do is keep chopping wood.

                            • September 8, 2016 at 11:51 pm
                            JoshF
                            Participant

                              Thanks!!! I need those liver enzymes to drop. My ALT is too high and will exclude me from trial. I also spoke to her after post and she said hoping this is pseudo progression. Don't know what to think…all I can do is keep chopping wood.

                              • September 8, 2016 at 11:51 pm
                              JoshF
                              Participant

                                Thanks!!! I need those liver enzymes to drop. My ALT is too high and will exclude me from trial. I also spoke to her after post and she said hoping this is pseudo progression. Don't know what to think…all I can do is keep chopping wood.

                                • September 8, 2016 at 11:55 pm
                                Julie in SoCal
                                Participant

                                  Oh Josh, disappointing, yes!  I had so hoped that your liver enzymes were down by now. Maybe by Wed? or maybe there's a liver mets provision in the trial?  I don't know.  Just hoping and praying!

                                  Shalom,

                                  Julie

                                  • September 8, 2016 at 11:55 pm
                                  Julie in SoCal
                                  Participant

                                    Oh Josh, disappointing, yes!  I had so hoped that your liver enzymes were down by now. Maybe by Wed? or maybe there's a liver mets provision in the trial?  I don't know.  Just hoping and praying!

                                    Shalom,

                                    Julie

                                    • September 8, 2016 at 11:55 pm
                                    Julie in SoCal
                                    Participant

                                      Oh Josh, disappointing, yes!  I had so hoped that your liver enzymes were down by now. Maybe by Wed? or maybe there's a liver mets provision in the trial?  I don't know.  Just hoping and praying!

                                      Shalom,

                                      Julie

                                      • September 9, 2016 at 1:34 am
                                      debwray
                                      Participant

                                        Hi   Josh.

                                        I'm here in hospital on iv antibiotics hoping that things will be better by Mon so I can escape knee surgery number 5.  or 7 if you count aspirations of joint in theatre….    But will face it if I need to. Sometimes there is no way round an obstacle.. But there is heaps of goodwill for you coming down from the internet..and there are a number of days to your deadline. Still time for levels to change..this emotional and physical roller coaster may still surprise us both.

                                        Sending a big hug .and loads of good wishes to you and your family

                                        Deb

                                        • September 9, 2016 at 1:34 am
                                        debwray
                                        Participant

                                          Hi   Josh.

                                          I'm here in hospital on iv antibiotics hoping that things will be better by Mon so I can escape knee surgery number 5.  or 7 if you count aspirations of joint in theatre….    But will face it if I need to. Sometimes there is no way round an obstacle.. But there is heaps of goodwill for you coming down from the internet..and there are a number of days to your deadline. Still time for levels to change..this emotional and physical roller coaster may still surprise us both.

                                          Sending a big hug .and loads of good wishes to you and your family

                                          Deb

                                          • September 9, 2016 at 1:34 am
                                          debwray
                                          Participant

                                            Hi   Josh.

                                            I'm here in hospital on iv antibiotics hoping that things will be better by Mon so I can escape knee surgery number 5.  or 7 if you count aspirations of joint in theatre….    But will face it if I need to. Sometimes there is no way round an obstacle.. But there is heaps of goodwill for you coming down from the internet..and there are a number of days to your deadline. Still time for levels to change..this emotional and physical roller coaster may still surprise us both.

                                            Sending a big hug .and loads of good wishes to you and your family

                                            Deb

                                            • September 9, 2016 at 1:58 am
                                            Casitas1
                                            Participant

                                              Good luck, Josh

                                              • September 9, 2016 at 1:58 am
                                              Casitas1
                                              Participant

                                                Good luck, Josh

                                                • September 9, 2016 at 1:58 am
                                                Casitas1
                                                Participant

                                                  Good luck, Josh

                                                  • September 9, 2016 at 2:27 am
                                                  Bubbles
                                                  Participant

                                                    Hey Joshie,

                                                    So sorry for "one more thing"!!!  But, you're right…Just keep choppin!….or….Just keep swimming!!!  Whatever it takes!  Fingers and toes crossed for Wednesday.  I know it is all beyond crazy and nerve wracking and ….  well…all of that!  Hang in threre.  Love, celeste

                                                    • September 9, 2016 at 2:27 am
                                                    Bubbles
                                                    Participant

                                                      Hey Joshie,

                                                      So sorry for "one more thing"!!!  But, you're right…Just keep choppin!….or….Just keep swimming!!!  Whatever it takes!  Fingers and toes crossed for Wednesday.  I know it is all beyond crazy and nerve wracking and ….  well…all of that!  Hang in threre.  Love, celeste

                                                      • September 9, 2016 at 2:27 am
                                                      Bubbles
                                                      Participant

                                                        Hey Joshie,

                                                        So sorry for "one more thing"!!!  But, you're right…Just keep choppin!….or….Just keep swimming!!!  Whatever it takes!  Fingers and toes crossed for Wednesday.  I know it is all beyond crazy and nerve wracking and ….  well…all of that!  Hang in threre.  Love, celeste

                                                        • September 9, 2016 at 3:28 am
                                                        Polymath
                                                        Participant

                                                          Josh,

                                                          Safe travels.  We're with you in spirit.

                                                          Gary

                                                          • September 9, 2016 at 3:28 am
                                                          Polymath
                                                          Participant

                                                            Josh,

                                                            Safe travels.  We're with you in spirit.

                                                            Gary

                                                            • September 9, 2016 at 3:28 am
                                                            Polymath
                                                            Participant

                                                              Josh,

                                                              Safe travels.  We're with you in spirit.

                                                              Gary

                                                              • September 9, 2016 at 4:21 am
                                                              Patrisa
                                                              Participant

                                                                Dear Josh,

                                                                hoping and praying your trial will start as planned… Hang in there!

                                                                Love,

                                                                 

                                                                Patrisa

                                                                • September 9, 2016 at 4:21 am
                                                                Patrisa
                                                                Participant

                                                                  Dear Josh,

                                                                  hoping and praying your trial will start as planned… Hang in there!

                                                                  Love,

                                                                   

                                                                  Patrisa

                                                                  • September 9, 2016 at 4:21 am
                                                                  Patrisa
                                                                  Participant

                                                                    Dear Josh,

                                                                    hoping and praying your trial will start as planned… Hang in there!

                                                                    Love,

                                                                     

                                                                    Patrisa

                                                                    • September 9, 2016 at 1:13 pm
                                                                    jenny22
                                                                    Participant

                                                                      Damn Josh!!!!!

                                                                      But have high hopes for your upcoming visit to MDA……though I dont have personal experince with all you are facing, I know the landscape has cahgne so dramatically, and am hopeful will so soon be the benediary of that progress.

                                                                      For now, and  again, sending BEST thoguhts for a good vist next week.

                                                                      Thinking about you.

                                                                      jenny

                                                                      • September 9, 2016 at 1:13 pm
                                                                      jenny22
                                                                      Participant

                                                                        Damn Josh!!!!!

                                                                        But have high hopes for your upcoming visit to MDA……though I dont have personal experince with all you are facing, I know the landscape has cahgne so dramatically, and am hopeful will so soon be the benediary of that progress.

                                                                        For now, and  again, sending BEST thoguhts for a good vist next week.

                                                                        Thinking about you.

                                                                        jenny

                                                                        • September 9, 2016 at 1:13 pm
                                                                        jenny22
                                                                        Participant

                                                                          Damn Josh!!!!!

                                                                          But have high hopes for your upcoming visit to MDA……though I dont have personal experince with all you are facing, I know the landscape has cahgne so dramatically, and am hopeful will so soon be the benediary of that progress.

                                                                          For now, and  again, sending BEST thoguhts for a good vist next week.

                                                                          Thinking about you.

                                                                          jenny

                                                                            • September 9, 2016 at 1:15 pm
                                                                            jenny22
                                                                            Participant

                                                                              Sorry about the typos….typing too fast!

                                                                              you probably knew wHAt i meant, but to re-iterate.  I AM HOPEFUL YOU WILL SOON BE THE BENEFICIARY OF THAT PROGRESS. 

                                                                              KEEP US ALL POSTED!

                                                                              JENNY

                                                                              • September 9, 2016 at 1:15 pm
                                                                              jenny22
                                                                              Participant

                                                                                Sorry about the typos….typing too fast!

                                                                                you probably knew wHAt i meant, but to re-iterate.  I AM HOPEFUL YOU WILL SOON BE THE BENEFICIARY OF THAT PROGRESS. 

                                                                                KEEP US ALL POSTED!

                                                                                JENNY

                                                                                • September 9, 2016 at 1:15 pm
                                                                                jenny22
                                                                                Participant

                                                                                  Sorry about the typos….typing too fast!

                                                                                  you probably knew wHAt i meant, but to re-iterate.  I AM HOPEFUL YOU WILL SOON BE THE BENEFICIARY OF THAT PROGRESS. 

                                                                                  KEEP US ALL POSTED!

                                                                                  JENNY

                                                                                • September 9, 2016 at 1:32 pm
                                                                                RaquelP
                                                                                Participant

                                                                                  Josh – still thinking and praying for you. Let's try to focus on getting those enzymes to drop. So…try to avoid any fever reducing medication including ibuprophen/tylenol.

                                                                                  Grapefruit is the BEST thing you can feed to your liver. Next up…beets. I know you are from chicago, so head over to your local Mariano's and get one of their liver detox smoothies that contain the beets and leafy greens your liver needs. 

                                                                                  There's no way to tell if these natural remedies will lower your liver enzymes, but it can't hurt. Detoxing the liver and eating liver cleansing foods can only help your liver in the long run.

                                                                                  • September 9, 2016 at 1:32 pm
                                                                                  RaquelP
                                                                                  Participant

                                                                                    Josh – still thinking and praying for you. Let's try to focus on getting those enzymes to drop. So…try to avoid any fever reducing medication including ibuprophen/tylenol.

                                                                                    Grapefruit is the BEST thing you can feed to your liver. Next up…beets. I know you are from chicago, so head over to your local Mariano's and get one of their liver detox smoothies that contain the beets and leafy greens your liver needs. 

                                                                                    There's no way to tell if these natural remedies will lower your liver enzymes, but it can't hurt. Detoxing the liver and eating liver cleansing foods can only help your liver in the long run.

                                                                                    • September 9, 2016 at 1:32 pm
                                                                                    RaquelP
                                                                                    Participant

                                                                                      Josh – still thinking and praying for you. Let's try to focus on getting those enzymes to drop. So…try to avoid any fever reducing medication including ibuprophen/tylenol.

                                                                                      Grapefruit is the BEST thing you can feed to your liver. Next up…beets. I know you are from chicago, so head over to your local Mariano's and get one of their liver detox smoothies that contain the beets and leafy greens your liver needs. 

                                                                                      There's no way to tell if these natural remedies will lower your liver enzymes, but it can't hurt. Detoxing the liver and eating liver cleansing foods can only help your liver in the long run.

                                                                                      • September 9, 2016 at 3:22 pm
                                                                                      jbronicki
                                                                                      Participant

                                                                                        Hi Josh,

                                                                                        I'm so sorry, so frustrating to deal with the cascade of issues from treatment, etc. I can only imagine the overwhelming nature of it.   I've been trying to find some research on lowering the liver enzyme values, but nothing directly related to how quickly the numbers can come down.  I've read anectodal stories of liver enzyme values coming down both quickly and over time but not sure what it all means.So since I'm no help research wise, I'm thinking these throughts for you today and send out some positive vibes and prayers:

                                                                                        L – Lower D – Decline H – Hastily,  A – At once L – Lower T – Today

                                                                                        We are all rooting for you so much. 

                                                                                        Best,

                                                                                        Jackie

                                                                                         

                                                                                         

                                                                                        • September 9, 2016 at 3:22 pm
                                                                                        jbronicki
                                                                                        Participant

                                                                                          Hi Josh,

                                                                                          I'm so sorry, so frustrating to deal with the cascade of issues from treatment, etc. I can only imagine the overwhelming nature of it.   I've been trying to find some research on lowering the liver enzyme values, but nothing directly related to how quickly the numbers can come down.  I've read anectodal stories of liver enzyme values coming down both quickly and over time but not sure what it all means.So since I'm no help research wise, I'm thinking these throughts for you today and send out some positive vibes and prayers:

                                                                                          L – Lower D – Decline H – Hastily,  A – At once L – Lower T – Today

                                                                                          We are all rooting for you so much. 

                                                                                          Best,

                                                                                          Jackie

                                                                                           

                                                                                           

                                                                                          • September 9, 2016 at 3:22 pm
                                                                                          jbronicki
                                                                                          Participant

                                                                                            Hi Josh,

                                                                                            I'm so sorry, so frustrating to deal with the cascade of issues from treatment, etc. I can only imagine the overwhelming nature of it.   I've been trying to find some research on lowering the liver enzyme values, but nothing directly related to how quickly the numbers can come down.  I've read anectodal stories of liver enzyme values coming down both quickly and over time but not sure what it all means.So since I'm no help research wise, I'm thinking these throughts for you today and send out some positive vibes and prayers:

                                                                                            L – Lower D – Decline H – Hastily,  A – At once L – Lower T – Today

                                                                                            We are all rooting for you so much. 

                                                                                            Best,

                                                                                            Jackie

                                                                                             

                                                                                             

                                                                                            • September 10, 2016 at 12:31 pm
                                                                                            Jubes
                                                                                            Participant

                                                                                              Good luck josh. We're all thinking of you!

                                                                                                • September 10, 2016 at 2:21 pm
                                                                                                Patrick O.
                                                                                                Participant
                                                                                                  Wishing and praying for ya Josh. You got this!
                                                                                                  • September 10, 2016 at 2:21 pm
                                                                                                  Patrick O.
                                                                                                  Participant
                                                                                                    Wishing and praying for ya Josh. You got this!
                                                                                                    • September 10, 2016 at 2:21 pm
                                                                                                    Patrick O.
                                                                                                    Participant
                                                                                                      Wishing and praying for ya Josh. You got this!
                                                                                                    • September 10, 2016 at 12:31 pm
                                                                                                    Jubes
                                                                                                    Participant

                                                                                                      Good luck josh. We're all thinking of you!

                                                                                                      • September 10, 2016 at 12:31 pm
                                                                                                      Jubes
                                                                                                      Participant

                                                                                                        Good luck josh. We're all thinking of you!

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