I always love to see some of my fellow melahomies post good news on here, brings a bit of hope to our world that can be full of doubts and uncertainties.
So, yesterday I got some good news of my own after my PET/CT scan on Tuesday… the left groin that we knew for sure had a recurrence of melanoma is now showing NO ACTIVITY on the PET scan and much smaller on CT!
The other lymph nodes that had been lighting up but we didn't really know if they were lighting up because of melanoma or because of the treatment (can't go around poking my whole body with needles to find out if every area that lights up is positive for mel) are now either not lighting up at all or have much less uptake and are all smaller in size. My spleen is also back to a normal size.. it was quite enlarged at my last scan.
This is the closest to NED that I've gotten in quite a while… doc won't throw that term out there just yet, but perhaps after the next scan in a few months I'll be able to use those lovely letters again. Continuing on Nivo only infusions every other week for a year… as long as everything continues on the right path.
As far as the anemia mystery, still don't have an answer for that. I am still showing as anemic on my blood tests. No iron deficiency. Reticulocyte count is normal, so it's not hemolytic anemia. Waiting on my B12 blood test results to see if I'm deficient in that. For now, the mystery continues. But, I feel pretty good.. besides my joints making me feel like an 80 year old some days.
Enjoy the weekend everyone, sending love and hugs to anyone who needs a little extra right now.
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