MRF-Logo2019-Horizontal-RGB
Scans coming up
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Scans coming up

› Forums › General Melanoma Community › Scans coming up

  • Post
    • October 22, 2018 at 3:24 am
    Coragirl
    Participant

      Hi all, I have not been reading much lately. I just needed a little break from melanoma. My 11 year old son broke his leg and he has been home for 2 weeks so he has been keeping me very busy. My husband has scans next Tuesday. These will be the first scans since he had the radiation treatment back in August. I am just so anxious about the results. I will not be going to Houston with him because I need to be here for my son. I'm just scared. Hope all of you are well and hopefully keeping melanoma at bay. Thanks for reading.

    Viewing 4 reply threads
    • Replies
        • October 22, 2018 at 11:53 am
        Johnjk04
        Participant

          Good day Amie – I am so hopeful that your husband's results are showing signs of recovery. Now your son breaks his leg, hopefully a few years from now all of you will look back and be thankful for your good health. With melanoma you will have a lot of good and bad days in your journey.

            • October 23, 2018 at 1:43 am
            Coragirl
            Participant

              Thank you John, hopefully in a few years there will be a cure for melanoma and we can all have a party! I really appreciate your kindness. Hope you are well.

            • October 22, 2018 at 1:15 pm
            marta010
            Participant

              Hi Amie – we all know how you feel.  The anxiety that comes with scan time is nerve wracking – while it gets better with time, the anxiety always comes back.  I remind myself that the medical team has a Plan B…and Plan C if the scans don't have the outcome we hope to see.  Hope you get great news this week!

              Take Care 

              Ann

                • October 23, 2018 at 1:48 am
                Coragirl
                Participant

                  Thank you for easing my mind, sometimes it feels like we live our lives 3 months at a time. I hate scans but I am also grateful for scans that catch things early.Ugh. 

                • October 22, 2018 at 6:13 pm
                jbronicki
                Participant

                  Hi Amie,

                  I haven't logged in for months as well because it can get overwhelming and sometimes need a break between scans.  My husband has his scans at MD Anderson next week and I'm fearing the absolute worse, it is hard to deal with the scanxiety for sure.  He is four years out from original stage 4 diagnosis. I'm scared too, just going to try to manage the anxiety the best I can.  He says I worry too much (he has a headache and I tend to panic), but it's hard when it's the person you love the most and it is out of your control.  The good thing is to know how much the treatments have advanced (thank you Dr. Allison!)

                  I live in Houston about 15 minutes from MD Anderson.  My husband's scans are Wednesday and Thursday and he sees Dr. Amari.   Please let us know if your husband needs anything (support, food, transportation, someone to sit in waiting room  etc).  I'm in clinical research and work remotely for University of Michigan School of Public Health  so quite familiar with the whole med center here in Houston.   We have several clinical trials here in Houston.  

                  Finger's and toes crossed for your husband.

                  best,

                  Jackie

                    • October 23, 2018 at 2:05 am
                    Coragirl
                    Participant

                      Thank you so much, he always takes work with him for the waiting room and is usually pretty calm. I think he actually likes it a little when I have to stay home. I sent you a private message.

                      • October 23, 2018 at 1:09 pm
                      jbronicki
                      Participant

                        Hi Amie,  got your message and will reply for sure later today after appointments.  Too funny, my husband has told me in no uncertain terms he would prefer if I stay home! And that I stress myself out too much (it's hard in its own way to be the one without the disease and have no control over results but try to help in any way you can but not let the other person see how much you worry)  Dr. Amaria knows us as the couple who "argues" in her office, since I'm a big believer in every patient needing an informed advocate and my husband doesn't believe you ask any questions in the office.  I've seen too many people fall through the cracks in the system, even though I know all the staff/researchers/doctors have good intent.  I'm a medical librarian and clinical research manager, so I have just enough knowledge to be dangerous…… I just wish I could bring Celeste/Bubbles to all our appointments 🙂

                      • October 23, 2018 at 1:59 am
                      lkb
                      Participant

                        Coragirl, Jackie has it right with "scanxiety." Wishing you and your family all the best!

                          • October 23, 2018 at 2:07 am
                          Coragirl
                          Participant

                            Thank you!

                          • October 24, 2018 at 1:05 am
                          MelanomaMike
                          Participant
                            Hi Amie! Yes! Long See No Time! I hope his scan goes smooth & results are quick & NED! or atleast SHRINKING the damn devils! Right? Either or is VICTORIOUS!I remember you talkin about that very same trip into Houston, my good pal Tex (also a member here at MRF) Is now NED thanx to first, God almighty, 2nd, his wonderful Team that Zapped his little devils using Keytruda & PV-10 and is Free & Clear of disease! I cant remember his Dr. Or the hospital he goes to but, it is in Houston as well & its a Roadtrip he says (you both must be Rural Folk! Haha) anyways, prayers your way sis, somethings gotta give! Take care..
                              • October 24, 2018 at 2:35 am
                              Coragirl
                              Participant

                                Hi Mike! First I really enjoy your posts, you are so funny and positive. I am sure you make a lot of people smile, and that is a wonderful gift! I know Tex he was very kind and helpful at the beginning of my husband's diagnosis. I would be so happy with shrinking, stable, nothing new! Thank you so much for the prayers, I will be thinking of you on November 12. Be well.

                          Viewing 4 reply threads
                          • You must be logged in to reply to this topic.
                          About the MRF Patient Forum

                          The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                          The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                          Popular Topics