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seven years later, it’s back

Forums Cutaneous Melanoma Community seven years later, it’s back

  • Post
    Terry Palardy
    Participant

      Hi, I've just rejoined the conversation after a long hiatus … recent biopsies revealed two new melanoma sites, an a new squamous sites, bringing my total number of individual sites now to ten, I think. The surgeon, who has always done MOH surgeries, said he will do a wide excision this time, to try to get it all in one swoop, one site at a time over a period of several weeks. 

      My husband, best friend of over fifty years and caretaker passed away eighteen months ago, on Christmas morning. It has been a long sad journey without him by my side. My RRMS remains quiet, and I remain med free in that quarter, having experienced the sudden bloom of skin cancers immediately following four years of MS 'disease modifying drugs' that attack the immune system. I will always regret that treatment, and will never treat MS again. My symptoms are minimal: optic neuritis and cognitive decline rather than mobility issues.

      I'm curious as to the term 'invasive.' Does it mean metastasis is ahead? I do have pulmonary nodules, and will be having a routine CT scan next week, monitoring them to assure no 'changes' in size or number. I'm told they are typically benign. The scan was scheduled before I had this recent bout of biopsies and melanoma readings.

      I will be doing my own after-care without my husband by my side. I'm guessing it will be similar to the care of post-MOH surgery sites. Anyone here have any experience to share for me, regarding moving from MOH to Excision? All advice is appreciated. Many thanks – Terry

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        Janner
        Participant

          Invasive when describing a new primary site just means it is deeper than the epidermis.  It is not melanoma in situ.  More than that we couldn't say without knowing what's on the pathology report.  It can be invasive but still thin and low risk.  Do you know the depths of each? 

          As for Mohs versus excision, the main difference in the end will be the size of the scar.  Likely to be bigger with a wide excision depending on location.  The surgery will probably be easier/shorter – just one cut and sew you up and you're done.  Mohs is usually done in stages if the first removal isn't big enough and may take more time.

            Terry Palardy
            Participant

              Thank you for your response. I haven't seen the biopsy reports yet, so don't know the depths. I will see them tomorrow.

              I've wondered why multiple sites aren't treated with surgery all at once, inpatient, with medical rather than self-care followup … I have had Mohs before, some with two or three cuts separated in time by days, and my late husband did all the follow up care. I lost him eighteen months ago to a sudden heart attack, and am on my own, in my late sixties … wishing this could all be taken care of inpatient… is that ever done?

              Janner
              Participant

                In patient for wide excisions?  Not that I've ever heard of.  It's simple surgery that can be done in a doctor's office.  As for the after care?  Changing a dressing and adding neosporin is about the extent of mine.  In fact, I typically have no dressing on mine after the first 24 hours because I'm so allergic to adhesives.  I've even gone back to work after having my excision done.  I have had two small to moderate excisions done at the same time on my back (and I lived alone so after care was mine alone). I don't consider these excisions anything more than an inconvenience and the worse part of it is my allergy to adhesives.  Personally, if my doctor could fit it in I'd have everything done at once and argue pretty strongly for that.  There is no way insurance would pay for inpatient.  They may go along with a out-patient hospital stay to remove them but if you don't need a sentinel node biopsy, it's cheaper and easier to do an in-office procedure.  What after care have you required before that you couldn't do yourself?  Granted, the ones mid-back can be more challenging alone but I even did that 3 times.  I've only had 3 primaries but have had excisions for other atypical sites – maybe about 12 in all.  I guess some consider this major surgery, but I've had major surgeries before and I think these are easy-peasy and try not to stress at all about them.  You can do this without extra help, I'm positive!

                Terry Palardy
                Participant

                  ouch … I can only guess that I am being a wimp, grieving the loss of  my husband compounded by the return of the melanoma and the change in surgical strategy … and that you are in a different place in your life, full of confidence and determination. i am not. I am just at a point of wanting to be done with all of this. This is, for me, one more thing to have to do, on top of having multiple sclerosis, osteoporosis, scoliosis and clinical depression, having lost my career and now my husband. But thanks for trying to encourage me.

                  Janner
                  Participant

                    We all have different tolerances and I get that.  I have a high pain tolerance but I get being stressed out by circumstances.  (Just lost my mom, my constant companion dog of 14.5 years, had eye surgery with complications and my husband lives in another state).  I need an inner eyelid biopsy and I'm putting it off because I cannot deal with another set of doctors and appointments on top of the rest.  I'm not saying my situation compares to yours but I get when something is just too much.  I didn't mean to make it sound cavalier.  But again, you can do this.  If you struggle with bandaging, ask your derm if you can stop by for a nurse visit to have someone else help.  Or again, a home health aide if this is too problematic.  That's their specialty.  Tell your doc you are struggling and would appreciate suggestions on how to cope or get a little extra help.  Also, consider talking to a counselor at your institution if possible.  More melanoma on top of the rest is not trivial.  They may offer other services you hadn't considered.  REACH OUT – there are usually options out there if you tell people this is pushing you past your limit!!!!  Hugs!

                    Janner

                    Terry Palardy
                    Participant

                      Thanks – I will see him again in two days, for the second wide excision (fourth melanoma site) and will ask again about a visiting nurse. Two friends helped me out this week, one a retired LPN and one a friend who has had her own surgical procedures and was here for the mental support. I appreciated both.

                      Terry Palardy
                      Participant

                        HI Janner,

                        It's September now, and my three month checkup shows another two sites requiring surgery; the original melanoma site on my forearm (removed with three days of MOHS surgery five years ago) is again showing positive results for melahoma, superficial. And a new squamous site on my leg, just beside an original squamous treated five years ago with Mohs and jsut above the recent melanoma site treated two months ago with wide excision ,.. these surgeries will be my eleventh and twelvth sites … I don't know if Mohs or wide excision is planned … will know Friday when I go in. Is it unusual to have sites 'bloom' again?

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