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Size of tumors
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Size of tumors

› Forums › General Melanoma Community › Size of tumors

  • Post
    • March 6, 2016 at 1:48 am
    Elandmlmom
    Participant

      Hi everyone. I just went from stage 3 to 4….found out yesterday. I have a 10 cm mass  on the head of my pancreas and another 9 cm mass lower down in my abdomen. I was wondering if others have tumors this size or larger. I am dumbfounded by the size…..

    Viewing 17 reply threads
    • Replies
        • March 6, 2016 at 1:59 pm
        jenny22
        Participant

          Hi Anon-

          I cant answer your question specifically, but wanted to say how sorry I am for your recent news…..

          Were the found on routine scans, or were you not feeling well? 

          What are you being told will be your treatment plan?

          Keep us posted….

           

          best,

          jenny

           

          • March 6, 2016 at 1:59 pm
          jenny22
          Participant

            Hi Anon-

            I cant answer your question specifically, but wanted to say how sorry I am for your recent news…..

            Were the found on routine scans, or were you not feeling well? 

            What are you being told will be your treatment plan?

            Keep us posted….

             

            best,

            jenny

             

            • March 6, 2016 at 1:59 pm
            jenny22
            Participant

              Hi Anon-

              I cant answer your question specifically, but wanted to say how sorry I am for your recent news…..

              Were the found on routine scans, or were you not feeling well? 

              What are you being told will be your treatment plan?

              Keep us posted….

               

              best,

              jenny

               

              • March 6, 2016 at 8:21 pm
              Jubes
              Participant

                Hi

                I know this seems so terrible. I can still remember the day of my diagnosis except it was straight to stage 4, 8 cm mass in my lung. No other primary. Get into the immunotherapy and kick this thing!!!!

                anne-Louise 

                • March 6, 2016 at 8:21 pm
                Jubes
                Participant

                  Hi

                  I know this seems so terrible. I can still remember the day of my diagnosis except it was straight to stage 4, 8 cm mass in my lung. No other primary. Get into the immunotherapy and kick this thing!!!!

                  anne-Louise 

                  • March 6, 2016 at 8:21 pm
                  Jubes
                  Participant

                    Hi

                    I know this seems so terrible. I can still remember the day of my diagnosis except it was straight to stage 4, 8 cm mass in my lung. No other primary. Get into the immunotherapy and kick this thing!!!!

                    anne-Louise 

                    • March 6, 2016 at 8:57 pm
                    Polymath
                    Participant

                      Yes, I am one of those.  I have/had multiple tumors in the 8cm to 10cm size.  Several of mine were sub-cutaneous, causing huge lumps right up on the surface.  Depending on where they are located they can be very painful and disfiguring.  I had the worst one's (3) treated with radiation which was very effective in bringing their size under control.  I still am trying make some determinations on the plus/minus of treating some internal ones this way.  Unfortunately for me I remain a non-responder to immunotherapy even though at this time I remain on the maintenance dose of Nivlomab after the ipi/nivo combo.  I think these large ones may be more resistant but it seems that with everything, everyone responds differently.

                      Gary

                       

                      • March 6, 2016 at 8:57 pm
                      Polymath
                      Participant

                        Yes, I am one of those.  I have/had multiple tumors in the 8cm to 10cm size.  Several of mine were sub-cutaneous, causing huge lumps right up on the surface.  Depending on where they are located they can be very painful and disfiguring.  I had the worst one's (3) treated with radiation which was very effective in bringing their size under control.  I still am trying make some determinations on the plus/minus of treating some internal ones this way.  Unfortunately for me I remain a non-responder to immunotherapy even though at this time I remain on the maintenance dose of Nivlomab after the ipi/nivo combo.  I think these large ones may be more resistant but it seems that with everything, everyone responds differently.

                        Gary

                         

                        • March 6, 2016 at 8:57 pm
                        Polymath
                        Participant

                          Yes, I am one of those.  I have/had multiple tumors in the 8cm to 10cm size.  Several of mine were sub-cutaneous, causing huge lumps right up on the surface.  Depending on where they are located they can be very painful and disfiguring.  I had the worst one's (3) treated with radiation which was very effective in bringing their size under control.  I still am trying make some determinations on the plus/minus of treating some internal ones this way.  Unfortunately for me I remain a non-responder to immunotherapy even though at this time I remain on the maintenance dose of Nivlomab after the ipi/nivo combo.  I think these large ones may be more resistant but it seems that with everything, everyone responds differently.

                          Gary

                           

                          • March 6, 2016 at 9:51 pm
                          Gwen in Maine
                          Participant

                            Hi Anon,

                            Unbelievable, right? I have a 9 cm mass on my adrenal gland. Wouldn't even know it was there until recently. It's stubborn — doesn't want to respond to any treatment so far. I'm getting ready this week to start stereotactic radiation to that tumor specifically. I need to slow it down while I'm in a washout period before starting a clinical trial.

                            Gwen

                            • March 6, 2016 at 9:51 pm
                            Gwen in Maine
                            Participant

                              Hi Anon,

                              Unbelievable, right? I have a 9 cm mass on my adrenal gland. Wouldn't even know it was there until recently. It's stubborn — doesn't want to respond to any treatment so far. I'm getting ready this week to start stereotactic radiation to that tumor specifically. I need to slow it down while I'm in a washout period before starting a clinical trial.

                              Gwen

                              • March 6, 2016 at 9:51 pm
                              Gwen in Maine
                              Participant

                                Hi Anon,

                                Unbelievable, right? I have a 9 cm mass on my adrenal gland. Wouldn't even know it was there until recently. It's stubborn — doesn't want to respond to any treatment so far. I'm getting ready this week to start stereotactic radiation to that tumor specifically. I need to slow it down while I'm in a washout period before starting a clinical trial.

                                Gwen

                                • March 6, 2016 at 10:17 pm
                                Elandmlmom
                                Participant

                                  Thanks everyone for your responses. I had started feeling queasy…went to the dr thinking I had an ulcer and ended up hearing that I have this huge mass on my pancreas and the other lower in my abdomen. I'm still reeling. I find out tomorrow what my "plan" is for moving forward. 

                                  • March 6, 2016 at 10:17 pm
                                  Elandmlmom
                                  Participant

                                    Thanks everyone for your responses. I had started feeling queasy…went to the dr thinking I had an ulcer and ended up hearing that I have this huge mass on my pancreas and the other lower in my abdomen. I'm still reeling. I find out tomorrow what my "plan" is for moving forward. 

                                    • March 6, 2016 at 10:17 pm
                                    Elandmlmom
                                    Participant

                                      Thanks everyone for your responses. I had started feeling queasy…went to the dr thinking I had an ulcer and ended up hearing that I have this huge mass on my pancreas and the other lower in my abdomen. I'm still reeling. I find out tomorrow what my "plan" is for moving forward. 

                                      • March 6, 2016 at 11:00 pm
                                      jennunicorn
                                      Participant

                                        May I ask, how long had you been stage 3 before this now recent stage 4 diagnosis? Sorry you're going through this. 

                                        • March 6, 2016 at 11:00 pm
                                        jennunicorn
                                        Participant

                                          May I ask, how long had you been stage 3 before this now recent stage 4 diagnosis? Sorry you're going through this. 

                                            • March 7, 2016 at 3:18 am
                                            Gwen in Maine
                                            Participant

                                              I was diagnosed Stage 3 in 2009. I went to stage 4 in 2014. You can see my history in my Bio.

                                              Gwen

                                              • March 7, 2016 at 3:18 am
                                              Gwen in Maine
                                              Participant

                                                I was diagnosed Stage 3 in 2009. I went to stage 4 in 2014. You can see my history in my Bio.

                                                Gwen

                                                • March 7, 2016 at 3:18 am
                                                Gwen in Maine
                                                Participant

                                                  I was diagnosed Stage 3 in 2009. I went to stage 4 in 2014. You can see my history in my Bio.

                                                  Gwen

                                                • March 6, 2016 at 11:00 pm
                                                jennunicorn
                                                Participant

                                                  May I ask, how long had you been stage 3 before this now recent stage 4 diagnosis? Sorry you're going through this. 

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