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Spent two days in hospital
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Spent two days in hospital

› Forums › General Melanoma Community › Spent two days in hospital

  • Post
    • April 25, 2018 at 12:16 pm
    Scooby123
    Participant

      Hi guys, I resent posted regarding pain in stomach on keydruda and vitamins to help when on treatment plus am going through meanupause and dealing with thyroid issues.

      well after getting home from hospital again yesterday late night I had bloods again X-ray to find out why I was in so much pain in stomach.

       

      Findings was despite I go and empty my Bowles regular excuse me for saying I was bunged up inside . The doctor showed me on X-ray. So hoping meds with help me go more and decrease pain am having.

      Bloods still hemaglobiam going down plus B12 very low. Been put on b12 injections not giving me iron tablets as yet till Bowles better due to can make you more constipated. She not sure why hemaglobia is going down. So if I don't feel better in 5 days with pain scans early due to find if I have a bleed or some thing going on.

      feeling so exhausted due to thyroid still not right and meanupause, aching joints.

      Has anyone experienced problems with b12 low and hemaglobia going down with more infusions of keydruda or treatment.

      cheers guys 

      Scooby❤️

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    • Replies
        • April 26, 2018 at 3:57 am
        corgimom
        Participant

          Yes, I had the same experience.

          My B12 and hemoglobin kept going down until I was completely anemic. The ability of my body to make B12 never recovered and I still need monthly B12 shots. However, the anemia did resolve once treatment was over.

          Hang in there–wishing you the best.

            • April 26, 2018 at 7:19 pm
            Scooby123
            Participant
              Thanks you glad your anemia went back to normal. Hoping to feel more myself after b12 and bloods xx
              Take care
              Scooby x
            • April 26, 2018 at 11:16 am
            Bubbles
            Participant

              Hey Scooby,

              Sorry for the pain and hospitalization.  Hopefully, your pain will improve as your constipation does.  I had very mild decreases in my hemoglobin during my trial (though I tend to blame the leukophoresis that was required for the study…which is kind of like how they take your blood out and put it back in when a person has dialysis…more than my Opdivo) but there are many others that I have communicated with while on anti-PD-1 (keytruda or opdivo) who have had to deal with more significant hemoglobin issues.  They were usually just carefully monitored, some were started on iron, and others had the occasional blood transfusion…though that has been rarely needed.  All of my issues re hemoglobin resolved once I was off the trial and Opdivo.

              So…probably not helping you much here.  But, just wanted to say that I was sorry for what you are dealing with, make your docs keep an eye on these things, and hope you start feeling better very soon.  celeste

                • April 26, 2018 at 7:16 pm
                Scooby123
                Participant
                  Thanks hun, resting back Monday for treatment and b12 injection plus awaiting if having blood transfusion. Xxx
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