› Forums › General Melanoma Community › Spitz naevus
- This topic has 21 replies, 3 voices, and was last updated 8 years, 5 months ago by
annouk.
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- December 29, 2016 at 10:52 pm
Hi,
i will try to keep it short…
back in April I noticed a mole at the back of my upper arm – it was small, symmetrical and red/brown coloured but scabby and itchy. Since then I had 3 doctors looking at it (GP,derm and oncologist) all of them assured me it was fine. However it itched a tiny bit every now and then and I finally went to have it removed privately (we have national health service in the UK)
after 3 weeks of waiting for the biopsy results I got a call from my doctor saying that the path report said it was a Spitz naevus, fully excised. She said they have sent it for a second opinion and scheduled me for a WLE (5mm). I'm currently waiting to hear back from her as this was just before Christmas.
After researching it online I've found that Spitz naevus and melanoma are very similar and often mistaken for one another. I also have a palpable lymph node on my neck and groin so I'm really worried that the path misdiagnosed me. Has anyone else here had a Spitz naevus? Has anyone been told that they have Spitz naevus but it turned out it was melanoma? Do you think that if the second opinion comes saying it is melanoma (I really hope this doesn't happen ๐ ) is it likely to be early stage? Is it possible that path says Spitz naevus but then it turns out to be metastatic melanoma? I'm really anxious and can't stop worrying about it ;( I also find it hard to trust doctors since 3 assured me it was nothing!
any advice would be very appreciated.
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- December 29, 2016 at 11:19 pm
How old are you? Spitz nevi are typically found on those 20 and younger. Not to say they can't be found on older folks but that's the general rule. If you're young, then it likely is a Spitz nevi. If you're older, then it's a bit more unclear. And a Spitz Nevus IS nothing so your doctor's may not be wrong at all. Spitz nevi are totally benign if that is what it truly is.
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- December 29, 2016 at 11:19 pm
How old are you? Spitz nevi are typically found on those 20 and younger. Not to say they can't be found on older folks but that's the general rule. If you're young, then it likely is a Spitz nevi. If you're older, then it's a bit more unclear. And a Spitz Nevus IS nothing so your doctor's may not be wrong at all. Spitz nevi are totally benign if that is what it truly is.
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- December 29, 2016 at 11:19 pm
How old are you? Spitz nevi are typically found on those 20 and younger. Not to say they can't be found on older folks but that's the general rule. If you're young, then it likely is a Spitz nevi. If you're older, then it's a bit more unclear. And a Spitz Nevus IS nothing so your doctor's may not be wrong at all. Spitz nevi are totally benign if that is what it truly is.
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- December 29, 2016 at 11:26 pm
Hi Janner,
thanks for your response. I'm 25 so I guess I'm a bit in between. Do you think that completely excised means clear margins? I haven't even seen my report as I was away for Christmas. Why do they need to excise 5mm more? Pretty sure they wouldn't bother if it was nothing to worry about? Sorry I'm just very panicky!
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- December 29, 2016 at 11:26 pm
Hi Janner,
thanks for your response. I'm 25 so I guess I'm a bit in between. Do you think that completely excised means clear margins? I haven't even seen my report as I was away for Christmas. Why do they need to excise 5mm more? Pretty sure they wouldn't bother if it was nothing to worry about? Sorry I'm just very panicky!
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- December 29, 2016 at 11:26 pm
Hi Janner,
thanks for your response. I'm 25 so I guess I'm a bit in between. Do you think that completely excised means clear margins? I haven't even seen my report as I was away for Christmas. Why do they need to excise 5mm more? Pretty sure they wouldn't bother if it was nothing to worry about? Sorry I'm just very panicky!
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- December 29, 2016 at 11:39 pm
Yes, I'd say completely excised means clear margins if that is what the path report states.
They take extra margins all the time with atypical moles – it is "just in case". Atypical moles are not melanoma but… just in case they miss a bad cell, they want to have extra margins to remove any cells that might have escaped the main tumor. 5mm margins are typically taken for severely atypical moles as well as melanoma in situ. (Conservative margins – 2-3mm – may be taken for less atypical moles). So extra margins, in your case, is just a conservative measure. I wouldn't read anything in to it except doctors being cautious.
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- December 29, 2016 at 11:39 pm
Yes, I'd say completely excised means clear margins if that is what the path report states.
They take extra margins all the time with atypical moles – it is "just in case". Atypical moles are not melanoma but… just in case they miss a bad cell, they want to have extra margins to remove any cells that might have escaped the main tumor. 5mm margins are typically taken for severely atypical moles as well as melanoma in situ. (Conservative margins – 2-3mm – may be taken for less atypical moles). So extra margins, in your case, is just a conservative measure. I wouldn't read anything in to it except doctors being cautious.
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- December 29, 2016 at 11:39 pm
Yes, I'd say completely excised means clear margins if that is what the path report states.
They take extra margins all the time with atypical moles – it is "just in case". Atypical moles are not melanoma but… just in case they miss a bad cell, they want to have extra margins to remove any cells that might have escaped the main tumor. 5mm margins are typically taken for severely atypical moles as well as melanoma in situ. (Conservative margins – 2-3mm – may be taken for less atypical moles). So extra margins, in your case, is just a conservative measure. I wouldn't read anything in to it except doctors being cautious.
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- December 30, 2016 at 3:47 pm
I was 35 when I had a spitz removed. It was tiny maybe 3-4 mm, pink shiny bump. I noticed it in the summer and it annoyed me because I didn't know what it was. It never grew and last feb had a WLE to remove it. I think my dermatopathologist did 3-4mm margins ( I may be wrong) I actually spoke with my dermatopathologist because I was very nervous about it as well. He explained in an adult you can never simply diagnose a normal spitz. It will always be spitz Nevus with a differential diagnosis depending on the characteristics. He said mine was as close to a normal spitz as possible, small, symmetrical, shiny, pinkish lesion with no growth, he then explained the pathology of mine but that was so over my head .he explained that the differential diagnosis was atypical spitz. Had my lesion had other funky characteristics, large, growing, multicolored, bleeding, etc and the pathology read different the diagnosis would have been atypical spitz with a dif diagnosis of melanoma and he would have sent my slides out to an expert for a second opinion. What put my mind at ease was he said your lesion was so small even if it was a melanoma the likely hood this will haunt you is so slim. The margins would have been slightly larger but with my WLE I had clear margins. I do not think you should worry too much as you received the appropriate standard of care !
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- December 30, 2016 at 8:34 pm
Thank you very much for your response. My mole was pretty small too, I would say 4-5 mm. it was perfectly round and one coloured although didn't quite look like Spitz nevi on the internet. I wish I knew how deep it was . I really worry because I have a couple of tender lymph nodes too but I hope that pathologist wouldn't diagnose something if he wasn't sure and that he wouldn't miss advanced melanoma. I'm glad that my doctor asked for a second opinion but waiting is really hard especially that I'm a massive worrier.
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- December 31, 2016 at 6:46 pm
Just to put your mind at ease there are a few pub med studies of the long term prognosis of these lesions. One study looked at 157 patients and followed them over 9.1 years. Only 1 patient had a distant metastases…and that patient also had a separate superficial spreading melanoma. At 9.1 years none of the patients had passed away. Your lymph node may be enlarged because of the biopsy. When I had my spitz removed my wound was nasty !!! If the lesion was excised and margins clear it is very very rare that this will haunt you.
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- December 31, 2016 at 6:46 pm
Just to put your mind at ease there are a few pub med studies of the long term prognosis of these lesions. One study looked at 157 patients and followed them over 9.1 years. Only 1 patient had a distant metastases…and that patient also had a separate superficial spreading melanoma. At 9.1 years none of the patients had passed away. Your lymph node may be enlarged because of the biopsy. When I had my spitz removed my wound was nasty !!! If the lesion was excised and margins clear it is very very rare that this will haunt you.
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- December 31, 2016 at 6:46 pm
Just to put your mind at ease there are a few pub med studies of the long term prognosis of these lesions. One study looked at 157 patients and followed them over 9.1 years. Only 1 patient had a distant metastases…and that patient also had a separate superficial spreading melanoma. At 9.1 years none of the patients had passed away. Your lymph node may be enlarged because of the biopsy. When I had my spitz removed my wound was nasty !!! If the lesion was excised and margins clear it is very very rare that this will haunt you.
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- January 3, 2017 at 8:42 pm
Thank you for this. My wound heals well and the lymph node on my neck was there before the biopsy. I have a really big, hard and tender lymph node in my groin (same side). I really don't know what to think anymore ๐ I don't want to think that pathologist would miss advanced melanoma but I'm not ill so no reason for my LN to pop up
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- January 3, 2017 at 8:42 pm
Thank you for this. My wound heals well and the lymph node on my neck was there before the biopsy. I have a really big, hard and tender lymph node in my groin (same side). I really don't know what to think anymore ๐ I don't want to think that pathologist would miss advanced melanoma but I'm not ill so no reason for my LN to pop up
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- January 3, 2017 at 8:42 pm
Thank you for this. My wound heals well and the lymph node on my neck was there before the biopsy. I have a really big, hard and tender lymph node in my groin (same side). I really don't know what to think anymore ๐ I don't want to think that pathologist would miss advanced melanoma but I'm not ill so no reason for my LN to pop up
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- December 30, 2016 at 8:34 pm
Thank you very much for your response. My mole was pretty small too, I would say 4-5 mm. it was perfectly round and one coloured although didn't quite look like Spitz nevi on the internet. I wish I knew how deep it was . I really worry because I have a couple of tender lymph nodes too but I hope that pathologist wouldn't diagnose something if he wasn't sure and that he wouldn't miss advanced melanoma. I'm glad that my doctor asked for a second opinion but waiting is really hard especially that I'm a massive worrier.
-
- December 30, 2016 at 8:34 pm
Thank you very much for your response. My mole was pretty small too, I would say 4-5 mm. it was perfectly round and one coloured although didn't quite look like Spitz nevi on the internet. I wish I knew how deep it was . I really worry because I have a couple of tender lymph nodes too but I hope that pathologist wouldn't diagnose something if he wasn't sure and that he wouldn't miss advanced melanoma. I'm glad that my doctor asked for a second opinion but waiting is really hard especially that I'm a massive worrier.
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- December 30, 2016 at 3:47 pm
I was 35 when I had a spitz removed. It was tiny maybe 3-4 mm, pink shiny bump. I noticed it in the summer and it annoyed me because I didn't know what it was. It never grew and last feb had a WLE to remove it. I think my dermatopathologist did 3-4mm margins ( I may be wrong) I actually spoke with my dermatopathologist because I was very nervous about it as well. He explained in an adult you can never simply diagnose a normal spitz. It will always be spitz Nevus with a differential diagnosis depending on the characteristics. He said mine was as close to a normal spitz as possible, small, symmetrical, shiny, pinkish lesion with no growth, he then explained the pathology of mine but that was so over my head .he explained that the differential diagnosis was atypical spitz. Had my lesion had other funky characteristics, large, growing, multicolored, bleeding, etc and the pathology read different the diagnosis would have been atypical spitz with a dif diagnosis of melanoma and he would have sent my slides out to an expert for a second opinion. What put my mind at ease was he said your lesion was so small even if it was a melanoma the likely hood this will haunt you is so slim. The margins would have been slightly larger but with my WLE I had clear margins. I do not think you should worry too much as you received the appropriate standard of care !
-
- December 30, 2016 at 3:47 pm
I was 35 when I had a spitz removed. It was tiny maybe 3-4 mm, pink shiny bump. I noticed it in the summer and it annoyed me because I didn't know what it was. It never grew and last feb had a WLE to remove it. I think my dermatopathologist did 3-4mm margins ( I may be wrong) I actually spoke with my dermatopathologist because I was very nervous about it as well. He explained in an adult you can never simply diagnose a normal spitz. It will always be spitz Nevus with a differential diagnosis depending on the characteristics. He said mine was as close to a normal spitz as possible, small, symmetrical, shiny, pinkish lesion with no growth, he then explained the pathology of mine but that was so over my head .he explained that the differential diagnosis was atypical spitz. Had my lesion had other funky characteristics, large, growing, multicolored, bleeding, etc and the pathology read different the diagnosis would have been atypical spitz with a dif diagnosis of melanoma and he would have sent my slides out to an expert for a second opinion. What put my mind at ease was he said your lesion was so small even if it was a melanoma the likely hood this will haunt you is so slim. The margins would have been slightly larger but with my WLE I had clear margins. I do not think you should worry too much as you received the appropriate standard of care !
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