Spitzoid Melanoma Help Treatment
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Spitzoid Melanoma Help Treatment

› Forums › General Melanoma Community › Spitzoid Melanoma Help Treatment

  • Post
    • December 8, 2017 at 2:45 pm
    Tjvcc
    Participant

      Hi,
      30 / Male Boston MA
      I posted 5 weeks back when I had my Spitzoid taken out. The doctor thought it was nothing, the path reports came back conflicting Atypical Spitzoid Unknown Biological / Spitzoid Melanoma.
      Unfortunately it 5 weeks later, I have one of my 4 nodes in my groin  positive. The path says Sentinel lymph Node #1 Metastatic Melanoma is observed with levels and positive for strains 2 100 mart 1 MITT, — HMB45 is Negative Tumor is present as scattered cells (they indicated there was not a lot.
      Just looking for experience. I have heard the prognosis for Spitzoid melanoma is a little batter than traditional. I also have a pathologist who seems to think this could still be benign because the HMB45 was negative, I am sending to his lab to review.
      Any comments would be great. treatments or stories?

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    • Replies
        • December 8, 2017 at 2:59 pm
        Bubbles
        Participant

          Sometimes pathology can be complicated.  A second pathologist/opinion can often help clarify.  If you are dealing with melanoma of any sort with a positive node….here are the basics:

          http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2017/08/melanoma-intel-primer-for-current.html   

          I hope your status is not melanoma and that you gain clarity soon.  However, if melanoma it is…there is hope!  There are many bright and caring folks on this board, ask questions as you need.  For myself, I was orignially diagnosed in 2003, and despite brain and lung mets in 2010 am still here after surgery, SRS and immunotherapy, with my last treatment in June of 2013…and remain NED.  

          I wish you my best.  Celeste

           

          • December 8, 2017 at 3:51 pm
          Becky
          Participant

            Hi

            3 pathologissts looked at my sons biopsy…the first two said melanoma and the third basically said serverely atypical poliferation..melanoma could not be ruled out. There was a spread to one lymph node so they treated it as melanoma. However as I was doing reserach I found that it is also possible that atypical cells from benign spitz nevus can also spread to lymph nodes making diagnosis more complicated. My son is NED today after 8 years ( did go through a year of interferon which was all that was offered back then) so to this day I am not totally sure if it was a true melanoma. Could be a Moms wishful thinking. Anyway, either way there is lots of hope for you!

            • December 10, 2017 at 5:14 pm
            jymarks2011
            Participant

              I had a spitzoid removed in march and a positiive SNB done in may with a full lymph dissection in June. Spitzoid Melanoma are very hard to determine by looking at the skin. They look like normal moles with no issues, My surgeon told me spitzoids are the worse to have because of there etiology. They are in fact melanoma. I have Stage IIIB and am currently on infusions bi-weekly of Opdivo

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