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Stage 1B – Curious about what follow up tests others at same stage have had?

Forums General Melanoma Community Stage 1B – Curious about what follow up tests others at same stage have had?

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    kfalkinburg
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      Hi All…I was diagnosed with stage 1B melanoma in January of 2009.  Small mole on my left should that I had my entire life that one day went from brown to black.  Had local wide excision with sentinel node biopsy done on two sentinel nodes.  Everthing was clear and I was staged at 1B based on depth.  All tests and surgery were done at CINJ (New Brunswick, Dr Lee).  My follow up treatment is very simple (which has me concerned).  I now get blood work and a chest xray twice a year at 2 years out.  For the first two years it was done at every 3 months.&

      Hi All…I was diagnosed with stage 1B melanoma in January of 2009.  Small mole on my left should that I had my entire life that one day went from brown to black.  Had local wide excision with sentinel node biopsy done on two sentinel nodes.  Everthing was clear and I was staged at 1B based on depth.  All tests and surgery were done at CINJ (New Brunswick, Dr Lee).  My follow up treatment is very simple (which has me concerned).  I now get blood work and a chest xray twice a year at 2 years out.  For the first two years it was done at every 3 months.  Here is where my concern comes in…my father had a mole in almost the exact same place 8 years prior.  Cancer free until October 2010 when it returned to his left lung.  Once again cleared through his PET scan on Jan 29 2011.  April 28, 2011…melanoma returned with a vengeance going to remaining lung, liver, brain and bones.  In light of the family history I am concerned that the cancer will come back.  My father's oncologists have all said "it is the silent cancer"…hiding until one day it just comes back and there really is no detecting it before it comes back.  I currently go to Fox Chase in Philadelphia for my follow up care because CINJ wasn't the best experience for me.  My doctor's nurse was very laid back and would barely palpate my lymph nodes during my exam.  I didn't see my surgical oncologist once after the day he performed the surgery.  All follow care was with his RN.  Fox Chase dermatology department is beyond thorough…love Dr. Zook!  I tried to get into the Genetic Risk Assessment Program at Fox Chase BUT was told I do not qualify because there ins't enough family history (guess me and my father having melanoma isn't enough?)  So…my question is, what follow testing do you receive?  After I want to be as proactive as possible and just feel that a simple chest xray and bloodwork really isn't enough.  Any advice would be appreciated…thanks much!

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