MRF-Logo2019-Horizontal-RGB
Stage 3 one month ago
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Stage 3 one month ago

› Forums › General Melanoma Community › Stage 3 one month ago

  • Post
    • September 17, 2015 at 3:25 am
    Debbieamccoy
    Participant

      4 weeks ago all my scans were clear to day a MRI showed probable mets to liver after first dose of yervoy 3,weeks ago I am so upset and discouraged any and all advice 

    Viewing 5 reply threads
    • Replies
        • September 17, 2015 at 2:00 pm
        mkirkland
        Participant

          I am so sorry to hear this for you! Stay strong and positive! I know it's easier said than done! What is your original diagnosis/timeline? 

          • September 17, 2015 at 2:00 pm
          mkirkland
          Participant

            I am so sorry to hear this for you! Stay strong and positive! I know it's easier said than done! What is your original diagnosis/timeline? 

              • September 17, 2015 at 3:13 pm
              Debbieamccoy
              Participant

                DX 3 b 5/15 all scans clear for first 2 started yervoy and 2 weeks later have spots on my liver 

                • September 17, 2015 at 5:19 pm
                mkirkland
                Participant

                  If u don't mind me asking – did u do the lymph node dissection? 

                  • September 17, 2015 at 5:19 pm
                  mkirkland
                  Participant

                    If u don't mind me asking – did u do the lymph node dissection? 

                    • September 17, 2015 at 5:19 pm
                    mkirkland
                    Participant

                      If u don't mind me asking – did u do the lymph node dissection? 

                      • September 17, 2015 at 3:13 pm
                      Debbieamccoy
                      Participant

                        DX 3 b 5/15 all scans clear for first 2 started yervoy and 2 weeks later have spots on my liver 

                        • September 17, 2015 at 3:13 pm
                        Debbieamccoy
                        Participant

                          DX 3 b 5/15 all scans clear for first 2 started yervoy and 2 weeks later have spots on my liver 

                        • September 17, 2015 at 2:00 pm
                        mkirkland
                        Participant

                          I am so sorry to hear this for you! Stay strong and positive! I know it's easier said than done! What is your original diagnosis/timeline? 

                          • September 17, 2015 at 3:17 pm
                          Never Gonna Stop
                          Participant

                            Sorry to hear that you've progressed. Have you looked into trials for PD-1 or PD-L1 inhibitors? Sounds like you fit the definition of "failing" Yervoy, and I would think some new doors would be opened up for you in trials.

                            Know that there's always hope, though!

                              • September 18, 2015 at 4:02 pm
                              Debbieamccoy
                              Participant

                                I had a CLND with no evidence of melanoma. Yesterday I was told I had autoimmune hepatitis which based on my labs but we are waiting biopsy results . My. Enzymes continue to decline and my other labs are normal. My dr hasn't decide if he is taking me off Yervoy . I'll keep you posted 

                                • September 18, 2015 at 4:02 pm
                                Debbieamccoy
                                Participant

                                  I had a CLND with no evidence of melanoma. Yesterday I was told I had autoimmune hepatitis which based on my labs but we are waiting biopsy results . My. Enzymes continue to decline and my other labs are normal. My dr hasn't decide if he is taking me off Yervoy . I'll keep you posted 

                                  • September 18, 2015 at 10:27 pm
                                  mkirkland
                                  Participant

                                    Bless you!! Please keep us posted in your progress! Sending prayers! 

                                    • September 18, 2015 at 10:27 pm
                                    mkirkland
                                    Participant

                                      Bless you!! Please keep us posted in your progress! Sending prayers! 

                                      • September 18, 2015 at 10:27 pm
                                      mkirkland
                                      Participant

                                        Bless you!! Please keep us posted in your progress! Sending prayers! 

                                        • September 18, 2015 at 4:02 pm
                                        Debbieamccoy
                                        Participant

                                          I had a CLND with no evidence of melanoma. Yesterday I was told I had autoimmune hepatitis which based on my labs but we are waiting biopsy results . My. Enzymes continue to decline and my other labs are normal. My dr hasn't decide if he is taking me off Yervoy . I'll keep you posted 

                                          • September 18, 2015 at 7:32 pm
                                          ed williams
                                          Participant

                                            Never Gonna Stop, please be careful when giving advice about Yervoy!!!! The reason that we have the drug today  in part is due to Oncologist that didn't stop giving it. In early trials patients had scans that looked worse before they eventually got better. Dr. Jedd Wolchok of Memorial Sloan Kettering who is one of the leading Oncologist in the Melanoma field has stated this finding of delayed response with Ipi many times when giving lectures to other Oncologist about how to manage the side effects of Yervoy and how the drug works!!! The most important advice that we can give to new Melanoma patients is to seek out a Oncologist that is a specialist in Melanoma.

                                            • September 18, 2015 at 7:32 pm
                                            ed williams
                                            Participant

                                              Never Gonna Stop, please be careful when giving advice about Yervoy!!!! The reason that we have the drug today  in part is due to Oncologist that didn't stop giving it. In early trials patients had scans that looked worse before they eventually got better. Dr. Jedd Wolchok of Memorial Sloan Kettering who is one of the leading Oncologist in the Melanoma field has stated this finding of delayed response with Ipi many times when giving lectures to other Oncologist about how to manage the side effects of Yervoy and how the drug works!!! The most important advice that we can give to new Melanoma patients is to seek out a Oncologist that is a specialist in Melanoma.

                                              • September 18, 2015 at 8:22 pm
                                              Never Gonna Stop
                                              Participant

                                                Good information, thanks. Was not aware of that!

                                                • September 18, 2015 at 8:22 pm
                                                Never Gonna Stop
                                                Participant

                                                  Good information, thanks. Was not aware of that!

                                                  • September 18, 2015 at 8:22 pm
                                                  Never Gonna Stop
                                                  Participant

                                                    Good information, thanks. Was not aware of that!

                                                    • September 18, 2015 at 9:30 pm
                                                    Debbieamccoy
                                                    Participant

                                                      I've heard the same thing from other oncologist , they are certain the yervoy caused the hepatitis now to decide to continue with yervoy and go on prednisone if that's possiblev

                                                      • September 18, 2015 at 9:30 pm
                                                      Debbieamccoy
                                                      Participant

                                                        I've heard the same thing from other oncologist , they are certain the yervoy caused the hepatitis now to decide to continue with yervoy and go on prednisone if that's possiblev

                                                        • September 19, 2015 at 7:47 am
                                                        Ninniditti
                                                        Participant

                                                          I too got hepatitis after one dose of yervoy. I had to stay in hospital for two weeks and got a huge amount of prednisol (160 mg daily). I was told I never ever could have any kind of immunoterapi again. I was on chemo for one year and the tumor kept steady. Then I changed oncologist and she let me try pembro. I have no side effects and have had 3 doses. Good luck!

                                                          • September 19, 2015 at 4:39 pm
                                                          Debbieamccoy
                                                          Participant

                                                            I'm hoping the liver biopsy doesn't show mets , just one worry after another. I'm scared and angry. I will keep you posted 

                                                            • September 20, 2015 at 7:57 pm
                                                            Debbieamccoy
                                                            Participant

                                                              My biopsy came back positive for liver mets. I refuse to give up. I start Keytruda this week

                                                              • September 20, 2015 at 7:57 pm
                                                              Debbieamccoy
                                                              Participant

                                                                My biopsy came back positive for liver mets. I refuse to give up. I start Keytruda this week

                                                                • September 22, 2015 at 2:24 am
                                                                BrianP
                                                                Participant

                                                                  Sorry to hear that.  You have a lot of reason to be optimistic about Keytruda.  Myself and many on here have done great on Keytruda and Opdivo.  Hang in there.

                                                                  • September 22, 2015 at 2:24 am
                                                                  BrianP
                                                                  Participant

                                                                    Sorry to hear that.  You have a lot of reason to be optimistic about Keytruda.  Myself and many on here have done great on Keytruda and Opdivo.  Hang in there.

                                                                    • September 22, 2015 at 2:24 am
                                                                    BrianP
                                                                    Participant

                                                                      Sorry to hear that.  You have a lot of reason to be optimistic about Keytruda.  Myself and many on here have done great on Keytruda and Opdivo.  Hang in there.

                                                                      • September 20, 2015 at 7:57 pm
                                                                      Debbieamccoy
                                                                      Participant

                                                                        My biopsy came back positive for liver mets. I refuse to give up. I start Keytruda this week

                                                                        • September 19, 2015 at 4:39 pm
                                                                        Debbieamccoy
                                                                        Participant

                                                                          I'm hoping the liver biopsy doesn't show mets , just one worry after another. I'm scared and angry. I will keep you posted 

                                                                          • September 19, 2015 at 4:39 pm
                                                                          Debbieamccoy
                                                                          Participant

                                                                            I'm hoping the liver biopsy doesn't show mets , just one worry after another. I'm scared and angry. I will keep you posted 

                                                                            • September 19, 2015 at 7:47 am
                                                                            Ninniditti
                                                                            Participant

                                                                              I too got hepatitis after one dose of yervoy. I had to stay in hospital for two weeks and got a huge amount of prednisol (160 mg daily). I was told I never ever could have any kind of immunoterapi again. I was on chemo for one year and the tumor kept steady. Then I changed oncologist and she let me try pembro. I have no side effects and have had 3 doses. Good luck!

                                                                              • September 19, 2015 at 7:47 am
                                                                              Ninniditti
                                                                              Participant

                                                                                I too got hepatitis after one dose of yervoy. I had to stay in hospital for two weeks and got a huge amount of prednisol (160 mg daily). I was told I never ever could have any kind of immunoterapi again. I was on chemo for one year and the tumor kept steady. Then I changed oncologist and she let me try pembro. I have no side effects and have had 3 doses. Good luck!

                                                                                • September 18, 2015 at 9:30 pm
                                                                                Debbieamccoy
                                                                                Participant

                                                                                  I've heard the same thing from other oncologist , they are certain the yervoy caused the hepatitis now to decide to continue with yervoy and go on prednisone if that's possiblev

                                                                                  • September 18, 2015 at 7:32 pm
                                                                                  ed williams
                                                                                  Participant

                                                                                    Never Gonna Stop, please be careful when giving advice about Yervoy!!!! The reason that we have the drug today  in part is due to Oncologist that didn't stop giving it. In early trials patients had scans that looked worse before they eventually got better. Dr. Jedd Wolchok of Memorial Sloan Kettering who is one of the leading Oncologist in the Melanoma field has stated this finding of delayed response with Ipi many times when giving lectures to other Oncologist about how to manage the side effects of Yervoy and how the drug works!!! The most important advice that we can give to new Melanoma patients is to seek out a Oncologist that is a specialist in Melanoma.

                                                                                  • September 17, 2015 at 3:17 pm
                                                                                  Never Gonna Stop
                                                                                  Participant

                                                                                    Sorry to hear that you've progressed. Have you looked into trials for PD-1 or PD-L1 inhibitors? Sounds like you fit the definition of "failing" Yervoy, and I would think some new doors would be opened up for you in trials.

                                                                                    Know that there's always hope, though!

                                                                                    • September 17, 2015 at 3:17 pm
                                                                                    Never Gonna Stop
                                                                                    Participant

                                                                                      Sorry to hear that you've progressed. Have you looked into trials for PD-1 or PD-L1 inhibitors? Sounds like you fit the definition of "failing" Yervoy, and I would think some new doors would be opened up for you in trials.

                                                                                      Know that there's always hope, though!

                                                                                  Viewing 5 reply threads
                                                                                  • You must be logged in to reply to this topic.
                                                                                  About the MRF Patient Forum

                                                                                  The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                                  The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                                                  Popular Topics